9 Jun 2018

Pain and depression while on CAP


Hello all, this is my first post. For two weeks I have been looking at the forum trying to understand more about Cpn and its treatment, not yet on CAP. I found one thing from the first survey http://cpnhelp.org/publicimages/CAPsSurveyFolder/ReportCpnCAP's.htm and couldn't help but notice that on average pain and depression have increased, even when the average reported time on CAP was around 9 months. I understand that maybe it is different for different people, but is this common/expected?


Loby, I'll be the first to reply to your first post!  In my case, I have never, ever, suffered from depression, but when taking pulses of metronidazole, you could guarantee that I would suddenly start crying within half an hour.

Pain, unusually for someone with MS was not a problem either, until I arrived at my third pulse.   Then I developed the most excruciating thalamic pain in my right arm.  Previously nearly paralysed but now recovering, this made me rather worried.  It  would luckily lessen at night, enabling me to sleep, but would always return by seven o'clock in the morning.  It only lasted a few weeks and when I had my next scan, a couple of weeks later, my biggest improvements were shown, so that pain must have been a good thing. I have never had any pain since.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Thank you Sarah, that brings me more light to the above results!

Here for my mother. She has been having neurological and other health problems that were unexplained for many years and just recently a test showed positive for Cpn and Mycoplasma. Still trying to understand more about Cpn, treatment and possibly start it soon.

Pain was never an issue for me, but by the third day of a metronidazole pulse, I was short-tempered and sometimes weepy.  It's the med, not the disease, by the way, because I'd taken flagyl alone in the past and had experienced the same thing. 

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Me too! :) And I am in the first year of Protocol... and still it is not nice... but slowly the time passes and the effects surprise you less and less... and step by step... something gets better. :)

Lots of courage! :)



Started the Protocol: 01/06/2017

MS Diagnosed: 21.IX.2016