MediTest
Submitted by Barcelona on Thu, 2018-06-07 10:49

Yesterday I stepped into a movie, completely random on Netflix... it turned to be about MS. The movie was released in Autumn 2016, the period I got diagnosed. Casuality? Maybe... anyhow, it made me cry as a baby, re-remembering back... and this days, the Seas seem to be filled up with the amount of rain in Barcelona... 

If there is someone reading... this is a nice and entertained movie to watch about MS. 

https://m.youtube.com/watch?v=oNZqDFeP5wo

My story just changed after Sarah, David, and consequently, this website. 

Whatever is there to come, we go back underwater in a couple of months. 

We change my dearest Barcelona for the Canary Islands... the Sea is waiting for us. And some diving will make us some good. 

I could not be more excited... nor affraid... (trying to low my heart beats while explaining that... ?)

Blog comments

Oh my goodness: that is such good news that you feel ready to go diving again!  I think I won't watch the Netflix film though because it might make me think too much about the bad old days!

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I understand completely... I think it shocked me to see myself through it without expecting it... it is a funny movie though... real, and about a man with MS which finishes an iron-man... pretty inspiring if not taken from a personal point of view... ??

About diving... well... I am not sure if ready or not... but after these 2 last crazy years... we have been waiting enough... so the decision has been taken and... OMG... I feel butterflies all over... my nerves have never been more goose bumpies... I am afraid to lose them though, in any of my sporadical explosions... and I wonder how the pulses, the diving and the sunlight will contrast... 

But afterall, the Sea has been waiting enough... and there is nothing more relaxing than feeling gravityless surrounded by him... ?  So giving it a try, seems Wild enough for what I remember of whom I used to be... cross fingers Sarah! ?❤️

Gisel·la

Started the Protocol: 01/06/2017

MS Diagnosed: 21.IX.2016

 

The thing is, the combination of doxycycline and sunshine, or does it not affect you?  I must say that I forgot about this yesterday, but living so much nearer the equator than us, you must have felt the way that sunshine affects you by now.  I'm guessing that the seawater should act as a sunlight filter as well, so you would only need to be careful when you return to dry land.  Once you stop getting reactions to the abx you could think about intermittent therapy and then just stopping.  

Talking about reactions to the abx, metronidazole will always make you feel either fatigued or depressed, so don't take that as a reaction.

I will certainly keep my fingers crossed and maybe the diving will actually make you feel better!

Sarah xx

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

The thing is I became a vampire! I had never been whiter... and surely I did not go out to the sun much during last year... Mostly after I discovered Antibiotics came from Fungus... O.o Really? What sort of an ecosystem am I carrying? Fungus against Bacterias... 

The sofas became my best friends... ;)

So I will put the neoprene on, be well covered, and just hope all this heat reacts ok-ish with the antibiotics.

About the pulses... I am decreasing the doses slowly: (June: 3 weeks; July: 2 weeks; August till the future: 1 week).

I was planning on going on for 3 more years pulsing, just as you did... 

I did not forget any of the antibiotics during the first year, though, I run out of NAC a couple times for a few weeks, and I am afraid the diarrheas pushed some of the Antibiotics away... Just for in case... I guess I got used to them... :p 

I will keep on posting on how going back to 'normal' is. I am so excited. :)

 

Gisel·la

Started the Protocol: 01/06/2017

MS Diagnosed: 21.IX.2016