We have found a Naturopath (very very expensive - we don't know if his fees are out of line or not, but 500 an hour seems a lot!).
Rick has an appointment to see him in August after an initial interview a week or so back. The Doctor is an infectious disease specialist, who knows of CPN, the other Doctor we were working with and perhaps Dr.'s Stratton and others.
During his conversation with Rick, he mentioned that IV antibiotics (infusion) - with a port installed, may be one way he will recommend going.
I have heard from some friend that it is a lot less scary than it sounds - and that the damage to your stomach is prevented entirely.
My question is - does anybody have any experience with this kind of treatment? I am very open to it right now as Rick has gotten to (and has been at actually) EDSS of 8 or even 8.5 - and has been there a bit though there are fine points between 8 and 8.5. Clearly he is in one or the other and recently has started worsening as he went off of Tysabri. He will transition off of Ocrevue back to Tysabri but only once every 8 weeks as that is shown to be far safer as far as PML is concerned - but I believe the antibiotics are what has been driving his stabilization.
So -again, my question is, does anybody have any experience with IV antibiotics and do they offer any major advantage? Thank you so very much.