Cpnhelp.org

I am by no means an expert, and I had the exact same question as you in the beginning.

Most people divide the supplements into two doses a day so your Dad wouldn't have to take pills so many times per day.  One thing that I see missing is acidophilus to replenish the good gut bacteria the antibiotics will destroy. Acidophilus should be taken at least two hours after any abx. Finally, many find it easier, especially when adding the azithromycin, to take the two doxys at once.

Here's a sample schedule:

Breakfast: 7:a.m.-Doxy with breakfast

               9:a.m.-Vitamins/Acidophilus

Lunch:      12:p.m.-more Acidophilus

Dinner:     5: p.m.-azithromycin (every other day)

                7:p.m-Vitamins/Acidophilus

Bedtime:   Melatonin              

I would, if you haven't, print out the Supplement Chart available on the home page of this website.

Hope this helps

Lexy

Karen, I will list my schedule as simply as possible - with am coffee - about 6:30 - 7:   acidophilus, magnesium, acetyl-L-Carnetine, "super" b-complex, vit C, glucosamine/chondroitin,  vit D, alpha-lipoic-acid, sub-lingual B-12, a multivitamin-mineral, calcium, B 6, folic acid, 2 - 600 mg NAC, Co enzyme Q 10, fish oil..  Two hours later I take  200 mg Doxycycline and Azithromycin  (if MWF)   After abx I wait at least an hour before eating.  In the afternoon or around dinner:   acidophilus, vit C, glucosamine/chondroitin, vit D, alpha-lipoic-acid, sub-lingual B-12, calcium, B 6,  2 - 600 mg - NAC, Co enzyme Q 10, fish oil, selenium, vit E.  If it is flagyl time I take the 1st with am pills, 2nd with afternoon pills, 3rd at bedtime.   Bon voyage (or suitable salutation!)

In 2 weeks I will have been on this protocol for 2 years   3 weeks of these abx is only long enough to send these "bugs" into hiding. 

Rica        EDSS 6.7 at beginning - now 2
Ignorance is voluntary bad luck.  Lauritz S.   A true Viking
If you come to a fork in the road, take it. Yogi Berra

Karen, I'll email you something tomorrow, but you do realise that your father needs to take the antibiotics for at least a year, full-time, don't you?  Maybe your GP does need to contact David.  If she can't speak English very well, I can help out........Sarah

 

Started the Wheldon regime in August 2003, due to very aggressive SPMS.  Moved to intermittent therapy after one year.  In May 2006 still take this, two weeks every two months.  EDSS was about 7, now less than 2.

An Itinerary in Light and Shadow  Berger.

Hi Karen,

Here is what Ella started on, it is a bit different now, she takes CAL/MAG as one preparation for example.   This is the most efficient way we found of handling things, mainly because now that Ella is looking after herself it has to stay simple...

 

 

April 2006

Vitamins and supplements chart

 

Taken at meal time

Amount taken daily

Suggested break down

Notes

Vitamin C

2000mg

2 X 1000mg

 

E 800iu

800iu

2 X 400mg

 

Omega 3 fish oil

1000mg

1 X 1000mg

 

Evening primrose oil

1000mg

1X1000mg

 

Acetyl L-Carnitine

500mg

 

Break down tab. dependant

Alpha Lipoic acid

150mg

1 X 150mg

 

  Coenzyme Q10

200mg

 

Break down tab. dependant

Selenium

200mcg

1 X 200mcg

 

N-acetyl cysteine

1200mg

2 X 600mg

 

Vitamin D

4000iu

2 X 2 1000iu

 

B complex,

1 tablet

1 X 1 tablet

 

Vit B6

 

50mg

1 X 50mg

 

Antibiotics (doxy – Azi (MWF))

 

 

 

Bedside AM/PM Supplements

 

 

 

 

Magnesium,

300mg

PM x 300mg

 

Calcium

500mg

PM x 500mg

 

Acidophilus

 

AM + PM

 

N-acetyl cysteine

PM x 600mg

PM x 600mg

 

Turmeric

PM x 500mg

PM x 500mg

 

Chlorella

200mg

1 x AM 1 x PM

 

 

Sublingual B12 at least 4 times a day

Antibiotics at meal times 

Hope this helps 

 

Michele:  on Wheldon protocol since 1st May 2006 for a variety of long standing ailments, also spokesperson for Ella started Wheldon protocol 17th March 2006 for RRMS

Sussex, UK

I'm going to add this as a page in the handbook since it covers the question quite well. Keep adding any other versions to it. It's a great resource! 

Combined Antibiotic Protocol for Chlamydia pneumonia in Chronic Fatigue Syndrome & Fibromyalgia- Currently: 150mg INH, Doxycycline/Zithromycin, Tinidazole pulses. Northern Ohio, USA

Hi Karen, here is my list of supplements, many things combined so you don't have to take too many different items. It is good both for beginners and people wanting a maintenance schedule. In between times many people are going to experiment somewhat. They all come from the same place to make ordering easier and from a very reliable company with good quality, good dosages and very good prices.

You can take most of them at any time you wany, but take care not to have the cal/mag too close to the doxycycline - leave about two hours between these. Also take the acidophilus as far apart from abx as you can manage. Take both doxycyclines together early in the day, with azithromycin on M/W/F, then the day is yours. When flagyl/tinidazole is started, it will be a little more difficult, but that is only for a few days at a time.......Sarah

 

NAC, the wonder antioxidant but also to avoid reinfection of CPn.  Work up to four of these: http://tinyurl.com/m8n6x

 

B12 - essential for helping to repair CNS damage: http://tinyurl.com/p4hhs

B and C combined, includes adequate amounts of thiamin and niacin: http://tinyurl.com/nqp7a

 

CoQ10 - for cell energy, which obviously ends up as personal energy: http://tinyurl.com/qdfmf  I take two of these, but not neccesarily at the same time.

 

Acetyl l-carnitine with ALA - ditto above but from a slightly different angle: http://tinyurl.com/ohfzh

 

Vitamin D - essential, especially if you don't go out much in the sun: http://tinyurl.com/s9fqd  Up to 4 a day

 

Fish oil, complete, making evening primrose oil superfluous: http://tinyurl.com/rs7l8

 

calcium and magnesium combined - http://tinyurl.com/pdwnu

 

Multivitamin - Source Natural's Visual Eyes because it contains enough of other things I don't mention like selenium, vit e and beta-carotene and it is very good for eyes: http://tinyurl.com/q65vn

Acidophilus with fructo oligo-saccharides, which means you don't need to store it in the fridge and risk forgetting to take it: http://tinyurl.com/pouqz  

 

Started the Wheldon regime in August 2003, due to very aggressive SPMS.  Moved to intermittent therapy after one year.  In May 2006 still take this, two weeks every two months.  EDSS was about 7, now less than 2.

An Itinerary in Light and Shadow  Berger.

Hi, i have'nt started the protocol yet as i have only just found out about it and i still have to find a receptive doctor (which i hope to do today). The protocol from where i am sitting (have to legs for most of the times are wheels not the brum, brum kind the manual ones) seems very daunting but i am excited about the prospect. I am also very glad i found this web site as i am sure i will need a lot of help and support.

Thanks jennie

Hi Jen.

I hope you are lucky with your search for a doctor... I know that you have MS, but others won't until you add a signature statement at the end of your post.   You can do that by going to your profile and editing it.   At the bottom of the page you will find a window in which you can write something about yourself that might make it easier for us to understand your questions.   As Rica says, we are good listeners here and most of us are either undergoing the treatment of helping someone that is.   I am both... 

Michele: on Wheldon protocol since 1st May 2006 for a variety of long standing ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy, also spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS

Jen, have you been in touch with David?  You should be able to find his email address here: http://www.davidwheldon.co.uk/ms-treatment.html except it seems to have fallen off the bottom, so I'll PM you with it.  He would be more than willing to give advise to your doctor about this.  You might also like to print out this PDF file to give him/her.  I can also send you some useful papers which you can give to your doctor if you send me your email address..........Sarah

An Itinerary in Light and Shadow.Wheldon regime since August 2003, for very aggressive SPMS.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.

What a great thread! I study my hubby's list of supplements, and ABX, and wonder if he's taking things at the right time...

I try to spread his vitamins out over the day, so he doesn't have so many to take at once. But, most people take all of theirs at once? I guess the body absorbs them okay when all are taken at the same time?

Thanks all. Best wishes.

Hubby DX 10-05 by LLMD; positive for Borreliosis; took 200-400 mg Doxy for 2 mons; followed by zith daily for 6 wks; small does of flagyl daily for 3 mons; tested by ID for Cpn 6-06;  Tested positive and took Ketek for 6 weeks; Began Cap 8-06

Hi, forgive my ignorance but what is ABX. Jen

Thanks for catching that! These things floated up to 'recent posts' because I rearranged some book chapters. Good we review these from time to time. 

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 150mg INH, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot!

My comment addresses only the initial list of meds, particularly the sleeping meds of '2mg of Klonopin' and 50 mg of Elavil or Amitriptyline (a maximum dose to be sure). I'm sorry, but that's a serious dose of both drugs! I would be afraid of doing that. Anyone taking that dose of both of those drugs must be nearly comatose in the morning, especially with the lag on the Elavil? And 2 mg of Klonopin is double the typical prescription. I would suggest seeking an assortment of milder OTC supplements, cutting both of those doses in half. This comment is based on my own experience, and, of course, your results may vary. 

 -whitman

"Of all the things I've lost, I miss my mind the most."
-Ozzy Osbourne

The initial list is a combination of this regime
and what has been taken for a long time by Karen's father, who has very severe secondary progressive multiple sclerosis.  They were all
prescribed by his doctor.......Sarah
 
An Itinerary in Light and
ShadowWheldon regime since August 2003, for very aggressive SPMS.  Intermittent therapy after one year. 2006 still take this, now two weeks every three months.  EDSS was about 7, now 2. United Kingdom.