22 Feb 2013 07:12 pm
I have had Cpn for about 4 year or so now and have been treating with doxy and azithromycin along with NAC. I had my labs drawn last fri and my results are: Igg 1:28 and Iga 1:32. My Igm was neg. my labs 3 months prior to that my IGG was the same and my IGA was 1:64. Does this mean I don't have cpn anymore? How do you know when to stop the antibiotics?
22 Feb 2013 07:12 pm
These are from Quest diagnostics. I'm really fatigued, but I also have sjogrens syndrome so I'm sure that plays a role as well. the meds are starting to add up and our bills are getting hard to pay. I feel better and a lot of my Cpn symptoms are gone. I'm just to quite sure how you can tell if you're ready to stop treatment. Is it the IGG and IGA levels?
Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements.
jchatagnier1,Blood tests are unreliable and it is more likely they are a false-negative. We THINK about stopping taking the abx when we stop reacting to them. If you stop too soon, you can easily be reinfected and all your hard work will be for nothing.Are you still reacting to the abx and NAC?
22 Feb 2013 07:27 pm
Thanks for the replies! Yes, that's what I'm scared of. I would hate to go through all these months of hell with the treatment and then not irradiate the Cpn. I had really bad NAC flu symptoms at first but now it isn't that bad. I just ont understand how the doctor tells you, "ok, you can stop the antibiotics now". Does he look at my titers? Symptoms?
Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements.
Many of us do the CAP independent of a doctor, which has its obvious perks. Ideally, you should keep going. If he won't go along with that, can you convince him to try an intermittent schedule instead of stopping all together? The intermittent schedule would entail cutting back the first 2 antibiotics (Doxy and Azith/Roxi) to a 14-day course, taken once a month. In the middle of those 14 days, insert a five-day course of the third antibiotic (Metro/Tini).At least you don't need him to prescribe the NAC. That will help prevent reinfection. I plan on taking NAC for the rest of my life.
Thanks! Yeah, I don't ever plan to stop taking the NAC. I'm just confused on how someone determines if I'm cured or not.
Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements.
Sorry if I'm missing something obvious, jchatagnier1, but have you been taking metronidazole or tinidazole? I think 'cured' is when we no longer react to any of the abx in the protocol, rather than something that someone else can determine.
Neuro symptoms & many health problems from 1989. NAC+all supps(04/11) CAP(05/11-10/17)
I'm doing the metronidazole pulse as we speak. Bu this is only my second time to do it. I take it BID for 7 days. It maks me really fatigued and my sjogren symptoms have really flared for some reason. M also having chills and runny nose. My doc told me to stay on the treatment/antibiotics for 2 more months and then I can stop. I just didn't want to go through all of this and then stop treatment when I havent killed all bacteria cpn.
Doxy 100mg BID, Azithro 250mg MWF, NAC 2600mg, adderal 20mg, VCO, recently switched from flagyl to Tini pulse once monthly & supplements.
Im so sorry to have so many
Im so sorry to have so many questions for your questions.. do you know what laboratory these are from? Focus dx? Do you still have symptoms? Is there any reason you want to stop?