For a long time it has been fairly obvious that some of us have something going on besides C. Pn. It has been brought up repeatedly, and for some of us has lifted its very ugly head over and over stubbornly.
My beginning was Rifampin and Doxy, followed in four months by flagyl. I was then flattened for almost a year and a half, most of which I cannot find in my fog of memory. After four years and four months, I quit, thinking I had gained all the benefit I was going to achieve. After that I sank rapidly nearly back to where I had been four years before. Now, I have been battling with all five abx for three years, and have regained lost ground and much more, but am still not all the way - whatever that may mean.
My thought is that those of us who don't get where we need to be ahould think seriously about Rifampin and Amoxicillin in addition to ...
There are people here who KNOW first hand about the Lyme protocol and I hope will speak of it. I spent my first six years in tick country and came home from all-day rides in the Indiana State Forest covered with ticks, so I may very well have had some "co-infections". There is much that we here don't know - we are learning more FIRST HAND every day. I have four sisters who were with me on those rides, two of whom have MS, one chronic bronchitis, and one with rosacea.