Choose your user name with care

First, a disclaimer.  I tend to guard my personal information more than most people, so I may be more sensitive to the issue than those who freely use face-place and other public sites. is not a private website.  Anyone can read here without signing up. Those who post here need to be aware that anything they post here will be readily accessible on the internet.  Once you post your real name, or use your real name as your user-name, it will forever be linked to you.  If a prospective employer does a search of your name, they will find out every detail of your medical circumstances, treatment, highs and lows, specifics about your personal life, etc.  Even if you edit it, it will always be available in internet archives, which can be located fairly easily.

If you have read the terms of use, you know this.  If you haven't, please review them. And, if you're okay with your personal information being out there permanently on the net, pay this post no mind at all.

But for those of you who do not want friends, family, employers, employees, bankers, insurers, or whoever, to know your every sneeze and setback, your daily doses of medication, your  rants and raves, etc., please  choose your user-name on the site carefully.   


The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Great  reminder. I obviously want to avoid this, but I do use my first name at the end of my message. I never thought that would be a huge security risk. I mean how many Julie's are there in this world?  Am I right or did  you used to work in cyber security and know some technique that you could track this back to me. I'm not being a smart a#%$ just a dumba#%$.



MS: First sx '93 dx '09 no obvious relapses just steady decline since '07. Crippling fatigue, too weak to sit up for extended periods of time. Cane/walkers/electric chair inside, helicopter outside. 

Started protocol 11/16/13.  1200mg N

Nope, no cyber security whiz here.  (I do know, though, that on Blogger, there's a way to track the IP address of anonymous posters.) 

A lot of new people on this site are using their first and last names as their usernames, though.  If somebody (let's say, an employer or prospective employer)  runs their first and last names, their posts on this site will come up. 

Signing your first name - unless it's really unusual - probably won't identify you, but if you start giving personal info like your town, the type of car you drive, your occupation,  whatever, you're helping to narrow it down for cyberstalkers.  

Some here are very open about their identities, intentionally, to help validate the treatment protocols. Some are open because they are comfortable with the information they post being public.  But, for those who are not, this is just a reminder to be aware that the site is not a private, closed community.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks for the reminder Mack and those that have done it and want to change that it can be done?  I think you can help them, is that true?   Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support