Thank you for the welcome.  I am so happy to read about people who have similar issues and who don't think I"m crazy for wanting to try and do this protocol. 

Cpnⁱ is probably very similar to Lyme's in what kinds of disease states it produces in those unlucky enough to get it and have a weakened immuneⁱ system. 

The Lyme's folks all know what I mean when I say "cracking popping in my neck" for example! 

I was just wondering if anyone out there knows of an ME Doctor in Australia that treats Chlamydia Pneumoniae or who would be open to researching into the treatment protocol for it?

About a week ago I started getting minor pains in my muscles that would last for a second or so. Now. I feel them more frequently and on different parts of the body. This all started after I took a week of Levaquin. I hope its not from the Levaquin!! Anybody got any information on this Myalgia and what to expect. This is all new to me and its scary.

“Life is a highway & I’m gonna ride it all life long”

 

Hello fellow wellness adventurers…… Mad CAPpers

 

I have not been able to post for some time as my life has been…..well, eventful.

Hi Everyone,

Just an observation about Klonopin: I find that I should not take it until I am fully ready to sleep. In other words, if I take it and then stay up and do anything at all, it is ineffective for that night. I lay down, read a bit, spend time with Dianna, etc. until I am ready to sleep, then take the pill, turn out the light, and settle in. If I don't have 8 hours before the alarm goes off, I'll be a little groggy, but if I take the pill 8 hours before the alarm and don't go right to sleep, I apparently "burn off" all the extra GABA or something. Just in case you use it and have wondered why its effectiveness varies so much, maybe this is why.

 

 

 

It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

This is the news:  In England, possible antibioticsⁱ to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

I haven't looked at the eMedicine definition of Chronic Fatigue Syndromeⁱ for a while. Low and behold, they actually said this in the first definitional paragraph:

Chronic fatigue syndrome (CFS) is a disorder of unknown etiology, which probably has an infectious basis.

 Really! Go see for yourself. They even mention Chlamydia pneumoniae in the article. As one of the potential causes for CFS. I just about fell out of my computer chair. eMedicine is considered a "standard of care" reference, so this is a big deal. Their lit review on the immuneⁱ and other abnormalities in CFS is also quite good. 

has anyone had a diagnosis of chronic strep? If so what treatments/protocolsⁱ were you treated with.

I think this is the most on-topic diagnosis tool I've seen.

Diminished Cardiopulmonary Capacity During Post-Exertional Malaise

and here's a nice summary of the legal implications of the test

Legal and Scientific Considerations of the Exercise Stress Test

 

There is a disease characterized by protracted recovery from exertion. It doesn't have a name. It used to be what was meant by "CFSⁱ", then by "CFIDSⁱ".

Chronic Fatigue Syndromeⁱ, Fibromyalgiaⁱ & Chlamydia Pneumoniae[1]

Introduction

(Note: the original page for this became non-functional for some reason. This copy is identical except for some minor text layout details)

This abstract caught my eye, given the second-hand knowledge of MSⁱ I have picked up here: Dysregulated Epstein-Barr virus infection in the multiple sclerosis brain

It is also known that elevated EBVⁱ titres are common in CFIDSⁱ -- so common, in fact, that during the early outbreaks around Incline Village, it was called "Chronic Epstein-Barr" for a while.

  This just struck me as very significant intellectually, but also personally, since it seems likely that there is some problem in my family with the way we handle EBV

We’ve had a big influx of members with CFSⁱ/ME in the past year, especially with my article appearing in a web CFS newsletter. Getting on the CAPⁱ is confusing enough, and difficult enough for this group, so I have been reluctant to report my own particular experiments and treatment results so as not to add more confusion. My story on the Patient Stories pages is accurate and honest: I report a 60-68% improvement using the CAP for Cpnⁱ, and that some particular symptoms have not improved as much as I would like. But it begs the question about what can someone with CFS/ME expect from Cpn CAP treatment?