It has been some time since I have updated my blog so here goes. What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress. I apologize for this as I know that my support has made a difference to some. I found myself reading the posts and was getting stressed out & frustrated with it all.
myalgic encephalomyelitis
Antibiotics to be available without prescription
Submitted by Mariapatri on Fri, 2008-08-08 14:30.- Alopecia
- Alpha Lipoic Acid
- Alzheimer's disease
- Amoxicillin
- Anti-Inflammatory Drugs
- Antibiotics
- Antigen
- Arthritus
- Aspirin
- Asthma
- Atherosclerosis
- Autoimmunity
- Azithromycin
- Bacterial forms/stages
- Bacterial load
- Behcet's disease
- Bowel diseases
- Cardiovascular Disease
- Charles Stratton
- Cholesterol
- Chronic Fatigue Syndrome
- Cox-2 inhibitors
- Crohn's Disease
- Cryptic form
- Cytokines
- David Wheldon
- Diseases
- Doxycycline
- EB- Elementary body
- Encephalitis
- Endotoxins
- Fibromyalgia
- Flagyl
- Folic acid
- Genetics
- GERD
- Heat shock protein
- Hypertension
- Immune
- Infections
- Inflammation
- INH
- Interstitial cystitis
- Iritable bowel syndrome
- Lab testing
- Lipopolysaccharide endotoxin
- Lymphoma
- Macular Degeneration
- Melatonin
- Minocycline
- Multiple Sclerosis
- myalgic encephalomyelitis
- NAC
- Neurological diseases
- niacin
- Non-steroidal Anti-Inflammatory Drugs
- PCR
- Penicillan
- Persistence
- Pneumoia
- Porphyrias
- primary biliary cirrhosis
- Prostititis
- Protocols
- RB- Reticular body
- Respiratory disease
- Rhematoid arthritus
- Rheumatoid diseases
- Rifamcin
- Rosacea
- Rosacea
- Roxithromycin
- Seratonin
- Serology
- Sinusitus
- Skin disorders
- Steroids
- Supplements
- Tinidazole
- tinnitus
- TWARS
- Urinary tract problems
- Uterine fibroids
- Vanderbilt Protocol
- Vitamin D
- Vitamins
This is the news: In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!
This is the story form http://www.guardian.co.uk/society/2008/aug/06/health
Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.
A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.
Could Medicine be catching up? Make it so!
Submitted by Jim K on Tue, 2008-03-11 19:44.I haven't looked at the eMedicine definition of Chronic Fatigue Syndromei for a while. Low and behold, they actually said this in the first definitional paragraph:
Really! Go see for yourself. They even mention Chlamydia pneumoniae in the article. As one of the potential causes for CFS. I just about fell out of my computer chair. eMedicine is considered a "standard of care" reference, so this is a big deal. Their lit review on the immunei and other abnormalities in CFS is also quite good.
L form of strep
Submitted by Lisa B on Wed, 2008-02-20 18:06.- Co-Conditions and Co-Factors
- Alzheimer's disease
- Asthma
- Autoimmunity
- Bowel diseases
- Charles Stratton
- Crohn's Disease
- Cytokines
- David Wheldon
- Encephalitis
- Endotoxins
- Fibromyalgia
- Genetics
- GERD
- Heat shock protein
- Immune
- Inflammation
- Iritable bowel syndrome
- Lipopolysaccharide endotoxin
- Lymphoma
- Macular Degeneration
- Multiple Sclerosis
- myalgic encephalomyelitis
- Neurological diseases
- Persistence
- Pneumoia
- Porphyrias
- primary biliary cirrhosis
- Protocols
- Respiratory disease
- Rosacea
- Sinusitus
- tinnitus
- Vanderbilt Protocol
has anyone had a diagnosis of chronic strep? If so what treatments/protocolsi were you treated with.
CFIDS/ME diagnosis breakthrough
Submitted by paron on Sun, 2008-02-17 07:39.I think this is the most on-topic diagnosis tool I've seen.
Diminished Cardiopulmonary Capacity During Post-Exertional Malaise
and here's a nice summary of the legal implications of the test
Legal and Scientific Considerations of the Exercise Stress Test
There is a disease characterized by protracted recovery from exertion. It doesn't have a name. It used to be what was meant by "CFSi", then by "CFIDSi".
Chlamydia Pneumoniae in CFS/ME & Fibromyalgia
Submitted by Jim K on Sat, 2007-12-29 18:53.Epstein-Barr Virus: a prime henchman with C.Pn. in MS and CFS
Submitted by paron on Sun, 2007-12-09 01:11.This abstract caught my eye, given the second-hand knowledge of MSi I have picked up here: Dysregulated Epstein-Barr virus infection in the multiple sclerosis brain
It is also known that elevated EBVi titres are common in CFIDSi -- so common, in fact, that during the early outbreaks around Incline Village, it was called "Chronic Epstein-Barr" for a while.
This just struck me as very significant intellectually, but also personally, since it seems likely that there is some problem in my family with the way we handle EBV
Number this Pulse? CFS/ME, Cpn & CAP: a complex thang!
Submitted by Jim K on Mon, 2007-12-03 09:58. We’ve had a big influx of members with CFSi/ME in the past year, especially with my article appearing in a web CFS newsletter. Getting on the CAPi is confusing enough, and difficult enough for this group, so I have been reluctant to report my own particular experiments and treatment results so as not to add more confusion. My story on the Patient Stories pages is accurate and honest: I report a 60-68% improvement using the CAP for Cpni, and that some particular symptoms have not improved as much as I would like. But it begs the question about what can someone with CFS/ME expect from Cpn CAP treatment?
National CFIDS Association (USA)
Submitted by ruthless1 on Wed, 2007-10-31 17:38.Please go down to the bottom as below is a response to my email to add our site as a link for patients to review. I have been trying & right about now, after having read MANY of the obituaries (on www.ncf-net.org) of people who have died from ME due to its complications & some by their own hand; I could care less if I offended her or anyone for that matter.
The Troll Queen
Response:
Really, while there are other viruses & bacteria that may be involved, The Stratton Wheldon protocol actually addresses many of them. Besides that, we have doctors who are supposed to help heal the whole body.
What Is A Chronic Illness, Anyway?
Submitted by Louise on Tue, 2007-10-23 05:49. What Is A Chronic Illness, Anyway?
A chronic illness is a disease or disorder that a person has to cope with on a continuous basis. Many people become so ill, they are unable to work and are forced to give up activities they have always enjoyed. Often their illness goes undiagnosed for years, leaving thousands of people frustrated, depressed and without answers to why their bodies will not cooperate with their desires.
A chronic illness is a disease or disorder that a person has to cope with on a continuous basis. Many people become so ill, they are unable to work and are forced to give up activities they have always enjoyed. Often their illness goes undiagnosed for years, leaving thousands of people frustrated, depressed and without answers to why their bodies will not cooperate with their desires.
Antibiotic Protocol - Rheumatologist Annual Meeting
Submitted by Louise on Mon, 2007-10-22 12:07.The Road Back Foundation is exhibiting again at the American College of Rheumatology's annual meeting in November in Boston. After the meeting, on Sunday, November 11th from 9:00 am to 2:00 pm, a number of Road Back volunteers will be gathering to brain storm about the work of the Foundation. If you are interested in participating (i.e., have some skill and time to contribute to the Foundation), there are two spots open. If interested, please send a brief bio and your experience with AP treatment/the Foundation to info@roadback.org
top this for duh factor....
Submitted by ruthless1 on Mon, 2007-08-20 22:10.The other day, I received a letter from our Tax Assessment Department. They have requested my receipts for medical & charitable giving for the past year. So, no big deal...I go to where I put it & my Tax Return was not there. I have nicely filed my husbands away, but mine???
Well, I have turned everything upside down & bass ackwards & I cannot find my return, much less the receipts which would have been attached to it!
I have no idea where it could have gotten too, it has seriously vanished. Talk about brain fog, my word. I still need to call the accountant but I am sure he doesn't have it anyway. I recall taking the folder from his house along with my spouses. I could have sent it out to recycle by error???
eyesight
Submitted by Janice C on Tue, 2007-06-26 18:04.Best labs in years, 18-month update
Submitted by paron on Sat, 2007-06-23 04:55. As a part of my annual physical, my blood work came back the best it has in years. My fasting glucose was in the normal range for the first time since '00 or so, and my cholesteroli was low enough that the doctor said that even if I were high-risk, he'd be happy with that number.
So, this is very, very good news -- I'd hate to give up using glucose to stop porphyriai. No significant weight loss, sadly, although my doctor cited that as the reason for my improved labs (this with a puzzled look, since he could see that the loss was only 5-10 pounds.)
Overall improvement remains slow, but mostly positive. We are 3/4 of the way through moving houses, which muddies the water a lot. Stress and exertion galore!
Nirvana.....are we there yet?
Submitted by Elinor on Fri, 2007-06-22 11:37.Midsummer's Day saw the end of my twelfth pulse and a new beginning. Last week I found the diary I started with my first antibioticsi and realised two things, it has taken more than two years of treatment to get to this point and I am on the path to Forgettory. Dr Wheldon's Forgettory must be Cpni Nirvana, that state of being beyond the bad times and free of the memories so before I let it all go this is a little account of several false starts and how I came to be diagnosed with a bewildering array of syndromes and disorders.