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Jim’s Story- Chlamydia Pneumoniae and Chronic Fatigue/Fibromyalgia

Submitted by Jim K on Sat, 2005-09-17 19:56.

The Tunnel of Illness

I want to update my story on the front end so readers know even before reading the "agony post" how much benefit I've gotten from the treatment. It is August 26th, 2006. Coming up on two years I've been on the Combined Antibiotic Protocol (CAPi) for Chlamydia pneumoniae (Cpni). A recent forum poster asked if anyone with CFSi has improved on the CAP. My response:

Damned right I'm getting better!When I started the CAP I was in a 2 year slide after 25 years of CFS, then added FMSi. For many years I'd struggled and somehow maintained a semblance of a life. Then over 2 years my pain, brain fog, restricted functioning, etc. slid to a point where I had to stop traveling and could for the first time see the possibility that I would become bedridden eventually.

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US Blood Banks warned against CFS donors due to XMRV

Submitted by paron on Tue, 2010-06-29 10:51.

I finally upgraded this topic from the "Back Porch." The AABB, formerly the American Association of Blood Banks, has joined the Canadians in recognizing the risk from XMRV transmission through the blood supply.

Unlike CPni, which is fairly common in the general population, XMRV is relatively uncommon in people without CFS. 

 The AABB notification is apparently in response to the rumored release of NIH and FDA findings confirming the original Whittemore-Peterson Institute findings published in September, 2009.

Thought all the people with CFS/CFIDSi/ME  ought to know.

 

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Happy days! My new doc & my ongoing progress.

Submitted by Miying Meng on Sat, 2010-06-19 15:22.

Hello faithful Cpni members and newbies.

Persistencei pays off! I just finished my #3 Tinii pulse for this year. Did as many back in 2009 before complications with LLMD & tests detoured me for awhile. Anyway, this last pulse was interesting. I didn't get nearly as sick during the actual 5 day pulse. This time I had symptom increase the week after but even so I was not slain with unbearable symptoms. It was tiring and trying and the "Troll Queen" had a tamer & more limited visit. This week, which is 23 days later, I have been feeling quite good compared to all my days of illness the past 8-9 years. More energy, less pain and windows of actually feeling like a "normal person". As much as I can recall it, that is. lol

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Amy Yasko, PhD discusses her biomedical treatment protocol

Submitted by Louise on Thu, 2010-06-10 11:15.
Amy Yasko, PhD discusses her biomedical treatment protocol
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Methylation, Metals Toxicity and Nutrogenomics Testing Results, a major Adjunct Treatment enables Nerve Coating (Re-myelination)

Submitted by Louise on Tue, 2010-06-08 11:50.

Methylation, Metals Toxicity and Nutrigenomic Testing Results,a major Adjunct Treatment enables Nerve coating repair.

Blogpage Originally Submitted by Louise on Sunday, 2010-03-21 17:06.   Chronic Fatigue Syndromei Fibromyalgiai Folic acidi Geneticsi Immunei Infectionsi Inflammationi Melatonini Multiple Sclerosisi Neurological diseasesi Seratonini Supplementsi

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Talks on Metal Toxicity

Submitted by Louise on Tue, 2010-06-08 11:07.

Online recordings of multiple presentations on the topic of Metal Toxicity.

http://www.autismmedia.org/media4.html

of particular interest is;

Dr. Richard Deth

"Richard Deth, Ph.D., is a neuropharmacologist, professor of pharmacology at Northeastern University in Boston, Massachusetts and is on the scientific advisory board of the National Autism Association. Deth has become a significant voice in the escalating controversies in autism and vaccine controversy, due to his ongoing research backing his theory that certain children are more at risk than others because they lack the normal ability to excrete neurotoxic metals.

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Biofilms - Clinical Implications of, by Dr. Stephen Olmstead, Chief Science Officer for Prothera and Klaire Labs -

Submitted by jeanneroz on Wed, 2010-06-02 19:35.

On February 26, 2009, Dr. Stephen Olmstead, Chief Science Officer for ProThera® and Klaire Labs™, gave a lecture to the Physicians’ Roundtable meeting in Greenville, North Carolina on gastrointestinal biofilm.

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My first entry - The long and winding road

Submitted by Joppe on Fri, 2010-05-28 18:31.

Years after joining this web site or support center as I call it, I am finally being allowed/ready to start one of the protocolsi. I'm excited and scared at the same time. I think I have a good idea of what's in store for me and I'm not looking forward to that but it's just a small piece of the puzzle calls ME, Myalgic Encephalomyelitis or CFIDSi as it is called in the US.  

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Trial with NK boosters

Submitted by biohazard on Fri, 2010-04-30 11:51.

The latest trial was NK boosters like Beta-Glucans, AHCC and RBAC (NK-3). Did not get as ripped as I did on the Iodine but enough to make me stop for now.

Sun exposure is giving me brain fog. I'm not sure what to take for that. I'm assuming at least a 10,000 IU shot of D3 entering my blood within 20 minutes of full exposure.

Going to look into addressing the mental issues of depression and anxiety. Might ask the doc for a go at Ritalin. I've taken Wellbutrin and Bupropion in the past (Bupropion is the generic and not time released) with some improvement. I'd like to know what has helped others here.

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Want a Lyme test that looks for antigens?

Submitted by Louise on Wed, 2010-04-28 17:00.

A Lyme Test test that Looks for antigens:

http://www.lyme-disease-research-database.com/lyme_disease_blog.html

http://www.centralfloridaresearch.com/

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Making some good progress :)

Submitted by Miying Meng on Sun, 2010-04-25 21:14.

2010 March - April Update

Pulse date: Mar. 29th - Apr. 2nd.

I finally did my first 5 day tinidazole pulse since July 2009.

But first a refresher with a bit of my pulse history follows:

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CFS

Submitted by snolen6301 on Thu, 2010-04-22 21:13.

I am looking for legitimite medical help for my 13 year old daughter recently diagnosed at Nationwide Childrens Hospital with CHF.  Although I do not disagree with the benefits of supplementsi, I am hesitant to the hit or miss approach when it comes to a child. I would like to know of a doctor in the Columbus, Ohio area using  the ATB/supplement aproach for CFSi.

Thank-You,

Sandy Nolen 

 

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3 Year Anniversary (4/14/2010) .... My Rear View Mirror

Submitted by jeanneroz on Fri, 2010-04-16 10:22.

reminder to self to complete

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Hypercoagulation in CFS, FMS, MCS, MPS, Lyme Disease, Thyroid, and more...

Submitted by Louise on Fri, 2010-04-16 07:56.

Link to information on Hypercoagulation :

http://www.anapsid.org/end/diffdx/hypercoagulation.html

Sources of TF (Transfer Factor) included within this article.

List of Related Articles on hypercoagulable state in general, is included at the end of this article.

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Biofilm Testing

Submitted by jeanneroz on Wed, 2010-04-07 12:35.

I picked up a comment in another post (by K23la) regarding Biofilm Testing and it perked my interest.  I 'm not sure what advantage it would be to know specifically what pathogens are hiding in the biofilms we have  as the removal process is, I believe, the same. Perhaps some of the more scientifically-minded  here may have input.   

The test  is available at Fry Labs in Arizona and your own prescribing doctor can order it (the test kit will then be sent free).  If you order it yourself, the test kit is $15.00.

The cost of  the Fluorescent DNA Stain is $350.00.   All information is available at http://www.frylabs.com

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