I last completed a maintenance pulse in November 2009. 

I had my annual visit with the neurologist at the medical school in Houston in January 2010.  EDSSⁱ now "about a 2" versus the "about 2.5" it was in January 2009.  As he considered my progression (or lack thereof), he asked whether I was taking antibioticsⁱ.  I told him none since November 2009 which left him scratching his head since he can't account for my "atypical progression".  (For the record, I previously discussed antibiotics with him and he dismissed it since he is of the belief that M.S. is caused by a virus).

http://cpnhelp.org/lauricidin#comment-55186

 

Last spring I added Vitamin K complex to my list of daily supplementsⁱ.  My primary motivation was as an adjunct for bone health, because on a regular basis, I simply was not eating enough dark green leafy vegetables.  

Recently a list of research articles has broadened my perspective on Vitamin K's diverse possible supportive functions in the body. 

I wonder how many here might be supplementing their Vitamin K levels.  It seems that this could be a relevant discussion as I looked at the titles on the list or research articles.

Louise

   Has anyone used Niacinamide?  I heard it can help with poor circulation. Would like to hear from anyone who has used it and it's effects.

 

I thought it has been some time since I gave an update to my progress. As I sit here trying to write my update, I feel disappointed in myself that I have not pulsed and moved forward with more improvements.

It began with elevated blood pressure and chest pressure and then I started having difficulty in walking. This made me conclude I have some kind of vascular issues that were getting worse on the antibioticsⁱ. I started with Diovan as need for when my blood pressure was out of control , but then my feet started turning red and blue.

As the months have gone by,I was hopeful for a better update. I have hit another road block that has put me on pulse hold. My doctor has been trying to figure out my circulation issues. I was seen by a cardiologist and had echo and stress testing done. All the test came back normal. And then my blood work came back to find that I have a fibrogen gene defect. My body is producing to much fibrogen and this causes sticky blood and circulation issues. This is known to reduce oxygen and nutrients making it to cells. I hope this is making sence, as now I Know why my brain fog is of the charts. I was wondering if anyone has used heprin?

Join with me in singing (to the tune of "Oh, How I Love Jesus"):

Oh, how I hate hydrazine

Oh, how I hate hydrazine

Oh, how I hate hydrazine

Because it upsets my stomach.

First session of intermittent therapy nearly completed.  

An old one (1998) but still a good (IMOⁱ) reference:

Evidence of Systemic Dissemination of Chlamydia pneumoniae via Macrophages
in the Mouse

My "stash" of antibioticsⁱ is nearly depleted.  I have enough left to do two occasions of intermittent treatment and then that will have to have been sufficient.

I will continue the supplementsⁱ (including NACⁱ).

Those of you who recognize the quote will understand the desperation to find an effective treatment that led me here as well as my fear that I may be stopping just short of the depot with disasterous consequences. I do not in any way seek to connect my present circumstances to the quote's spirit of self-sacrifice.

 

People

People who need Doctors

Are the sickest people in the world...

Now, I'm not trying to start a controversy here about the fact that there sick people who don't have access to medical care, just trying to come up with a subject line based in popular culture that is at least somewhat obliquely related to the subject of the post and might keep me in contention for the Bulwer-Lytton prize.

Anyway, some time ago I went to one of the Lyme disease sites and downloaded the names of some doctors who are willing to treat patients with antibioticsⁱ. 

I had an MRI in January 2009.  The M.S. specialist ordered it because I have been having mild headaches at the top of my head that precede things "happening". 

• For example, I had a headache that came on before I temporarily lost my ability to write a cursive "D" (and hence lost the ability to sign my name).
• I also had a headache come on and when it had passed, my need to get up at 3:00 a.m. to go to the bathroom had all but vanished. 

The MRI was done:

Well, pulse #19 was so mild that I wanted to get the next one in before starting vacation.  Pulse #20 was completed on 3/12/2009.  I'll be really surprised if the post-pulse reaction sends me to the emergency room in Hot Springs.

I recall reading an observation that when people on the CAPⁱ start to feel better, they seem to blog less often.  I guess there must be something to that because I forgot to log on and blog when I completed pulse #19.

The aftermath was not entirely reaction-free as I did have some shortness of breath on the 4th, but more charcoal banished it in short order.  

Completed pulse #18 tonight. 

My wife is listening to a recording of "Jerusalem" on Youtube.  The music makes typing this whole thing sound more auspicious than it is.