TO: ANYONE LIKE ME!
I write this post not long after finishing the antibiotic routine. I am writing this for other people who are perhaps like me. When I first came here I could see there were many very sick people on this site and although I was quite unwell, I was not in the extreme category. So, this may be worth reading for other people who feel they are in a similar situation to me.
SYMPTOMS BEFORE BEGINNING TREATMENT (JAN 2016)
Chronic fatigue and fibromyalgia (muscular pain especially in my upper back and neck). I've always been a healthy, balanced, "normal", energetic person but I had been on a bit of a downhill slide for about 2 - 3 years (little by little) although I was able to function sufficiently - and could somehow present myself as a normal person even if when I felt pretty awful. The thing is, I knew that I was struggling and getting worse. By Christmas 2015, i finally fell apart and I told my husband and kids i was feeling in pain and felt terrible all the time. I just couldn't hide it anymore. I had tried everything you would expect - I completely gave up alcohol (not that i ever drank much), imrpoved my already very good diet, got lots of sleep, had almost stopped exerising (as it wiped me out for days), but i still felt terrible. I wondered each morning how I could get through the day. I realised I was sick and it was not because of my lifestyle (how could it be?). For all the measures I had taken, I should have felt amazing.
I had this odd chest squeezing and fatigue feeling, which I had never really understood. My neck was sore and felt sort of puffy and swollen to me (although not extremely obvious to others). I also had a lot of pain in my muscles (despite using magnesium). I had terrible brain fog and was constantly tired and exhausted and this had become worse and worse over 6 - 12 months. I found this made me feel irritated agitated and it was difficult to ever feel mentally alert.
So, my symptoms were serious enough for me to seek answers. I saw many doctors who said I was fine and I just needed to "get a massage"/"get used to it because it was probably hormonal" or told me i was imagining things. I cannot tell you how upsetting that was.
THE TREATMENT - STARTED IN FEB 2016
I did exactly what this website suggests. Doxy, Zithro and pulsed very carefully with Flagyl. I read everything over and over, startign with the simple information first, and progressing through many of the scientific artiles (as my brain fog lifted!).
I experienced the endotoxin die off effects such as (pain, tingling, aching, terrible headaches) which were often awful, but i felt okay because I was expecting them and I understood what was happening.
I experienced very definite apoptosis (in my view), whereby, with introduction of a new antibiotic, I would first get endoxotin effect, followed by extreme and very specific fatigue in my chest about 5 days later. It was quite a strong feeling of exhaustion which scared me a bit. Again, i understood what was happening so I was okay. I was just very gentle with myself and took great care.
I have never had any "gut" or tummy problems in my life so i never had any gut difficulty with the antibiotics in that sense. (I had originally worried a lot about destroying my gut with antibiotics). Although I have also been very careful to take great care by using supplements and very good foods using bone broth, organic foods, lots of leafy greens and gave up gluten 2 months ago.
I took all the recommended supplements and particularly took moppers to help with what may have been porphyria (althoguh I am not sure). I also took NAC (of course), D3, K2, Zinc, Selinium, Vit C, Olive Leaf Extract, Quercitain, chlorella, magnesium, garlic, echinacea. A lot of tablets, but all important.
I continued with the antibiotics untill all the reactions stopped.
So, everyone is different, but I just wanted to let other people out there that my journey was 6 months. I remember hoping at the beginning it would take me only 4 weeks (like I would somehow be special or lucky!!), but that's just not realistic - you are kidding yourself it you think that.
HOW I FEEL NOW - AUGUST 2016
I am better! I feel normal, with my energy back, brain fog completely gone, muscular pain gone. I will continue with NAC and supplements. I may do intermittent pulses of antibiotics just to check and make sure it has gone.
I am so extremely grateful for this website. The explanations and information on this website enabled me to learn and understand and continually build on my understanding over the 6 months. It is true that you cannot understand it all in one hit. I just came back here every time I needed to learn more.
Thank you to David Wheldon, to Sarah, to Mackintosh and Jim K. Thank you, thank you, thank you so much. I am forever in your debt.
Today, is inded a "Sunny Day"