Well I finally got the decision from my GP.
"Forget it."
He spent several weeks talking to the rest of the practice doctors, several of whom have refused to treat other MSi sufferers with Naltrexone. He also consulted the Medical Council and my Neuroi, who seems to have announced that as I currently have no symptoms then I really don't need any drastic treatments.
It was news to me that I don't have any symptoms. Next time I find myself on the floor I'll have to remember that it's nothing to do with MS. 
Anyway, I wasn't going to just let it go. I questioned him thoroughly about his reasons. The first reason was that it's not a licenced treatment. I countered that I was under the impression that it was the drug that is licenced, not the treatment, and as abxi are used for other illnesses there was no reason for him not to be able to prescribe.
He said that this was true but as it's not a recognised treatment he wasn't happy to put himself in a position of prescribing for something that might not work but have knock on effects.
I asked how new treatments were supposed to get approved, given that trials are normally done by drug companies who would not be interested in trialling abxi as there was no money in it. He agreed that was the case and said that treatments become routine when GPs routinely prescribe them.
This of course begged the question that if no GPs are willing to prescribe as it's not routine, but it only becomes routine if lots of GPs prescribe, then how the heck is anything ever supposed to move forward?
He said it does happen. There are two new treatments, one for ovarian cancer and one for post traumatic syndrome, both using existing drugs, that have gone mainstream but he was unable to tell me how they did, other than lots of GPs were using it.
So it appears the only way we'll get anywhere with this is if we can report back a significant number of cures, with proof, and get a lot of GPs and or Neuros on side.
In the meantime he's handed me over to David Wheldoni so I can at least do something off my own bat.
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Berkshire, UK. Diagnosed RRMSii Feb 4th 2008.
NACi 2400mg. All supps. Doxyii 200mg. Zithii 250mg. Metroii 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPii 20th April 2008. First pulse June 2008
I am sorry you wasted your
I am sorry you wasted your energy, though it is always interesting to see the reasons Doctors give. Still at least you know where you stand, and can see a way forward, with best wishes for the future.
M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
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M.E./CFSi 20 years, intermittent. Wheldon Protocol - Started NACi and supplementsi Sept 2007. Doxyi and Roxy full dose by Dec '07. First Flagyli pulse January 2008.
The trouble with modern
The trouble with modern medicine is that it rewards cowardice and punishes bravery. Any doctor who simply hides behind other doctors isn't much use to anyone.
Your gp might want to read the following book.
CFSi. Started CAPi 03-07.
Currently: Roxi 600mg + Doxyi 200mg . 10 Pulses done. Sauna every other day. D 7200IU
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Hunter: Don't think - experiment
LOL. "Who moved my cheese"
LOL. "Who moved my cheese" would be another good one. It's all about why people reject change.
Berkshire, UK. Diagnosed MSi Feb 4th 2008. NACi first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Maybe you can change GP?
Maybe you can change GP? Although how you'd find one willing to go along with this in the NHS system puzzles me. Now if you moved down here to the forest you could go to mine who is one of those who actually wants to help and has the maturity to do so.
Still I am sure that DW will help you to sort this out, one way or another.
Garcia - our docs have no free time to read...but the film was really good, I am sure that their salary would cover a private showing.
New Forest, UK. Progressive MSi dx 12/06 LDNi 3/07 CAPi 6/07: Wheldon version.
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Progressive MSi dx2006. LDNi & CAPi: Wheldon version. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.Pulses #17...I can because I think I can.
Certainly he will, but
An Itinerary in Light and Shadow...........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent. Still slowly improving and no exacerbation since starting. EDSSi was 7, now 2, less on a good day.
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Change GP! Round here, all
Change GP! Round here, all the GP lists are closed. People moving in to the area are waiting months to get on one.
Berkshire, UK. Diagnosed MSi Feb 4th 2008. NACi first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
In the annals of cheese
In the annals of cheese moving I think that is a little beyond even my stupidity.
Berkshire, UK. Diagnosed MSi Feb 4th 2008. NACi first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Andesine, just found your
Andesine, just found your post, your story sounds like an exact carbon copy of my experience. Listening to two doctors, in consecutive appointments, trying to sell me the same worthless explanations, felt like being sold snake-oil. I was given the same verbal runaround as yourself and came to the conclusion that I would have to be the one to take action for myself, so I did, with the support of Sarah and DW. Sounds like you might have to do the same.
Good luck
Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 4th pulse.
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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 10th pulse.
Thanks Robert. It kind of
Thanks Robert. It kind of makes you think that if only all these doctors would actually talk to each other we might get somewhere. Then again, they might all convince each other that it was rubbish. Sigh.
Yes I'm all fired up and ready to do this on my own and my doctor is more than aware that I am. I'm seeing David in a couple of weeks. To be honest I'd be more than delighted if the only thing the CAPi clears up is this darn Tinnitusi.
Berkshire, UK. Diagnosed MSi Feb 4th 2008. NACi first dose 600mg Feb 9th 2008. Increased to 2400mg Feb 19th.
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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.
NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008
Well, sorry you had this
Well, sorry you had this happen; some docs just aren't going to be educated. They are simply just capable of treating colds & flu, I guess they have their place.
I wonder if these docs read their oath. Is it not their duty to heal their patients.
I laughed at your comment about the next time you are on the floor- because I was having neuroi symptoms & told there was nothing wrong with me in the MS department. GREAT, but then why was I having MS symptoms? She couldn't answer that!
CFIDSi/ME 25yrs, FMSi, IBSi, EBVi, Cpni, (insomnia - melatonini, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysI honestly dont think they
I honestly dont think they know any better. They simply just arent too bright in my opinion. The only reason we know the truth is because we know the cause and effect of abxi through experience and have educated ourselves on our own disease. When we try to explain our situation and experiences and cpni's biology to them all they hear is...
Dont take abx = feel bad, take them = feel good, take then long time = feel better.
What they are taught in thier textbooks is that this is actually placebo effect.
They have little or no education on cpn or inf disease in general because of the way the curriculim is. This curriculum is dictaed by drug company research. Infectous disease is treatable where drug companies need people to be chronically ill in order to make $ for more research and boost thier stocks. Thus Dr's are taught only to treat msi and disease in general not to cure it.
Drugs companies are the source of funding for ms research and the drug companies would much rather soak 1500 a month from you for ms for the rest of your life as opposed to 150 per month for only a few years worth of abx.
Cost of capi treatment seems to be about 2500- 6500 <- at my wild guess, assuming 2.5 years treatment time and depending upon supplement use and lenght of treatment.
Cost of ms meds = 1200 per month x 12 months...... times the rest of your life... not to mention miscelanious meds for inflamation and pain.
Drug companies are the key influence of the curriculum in schools via thier research. They influence the direction of the research and that research dictates disease treatments not disease cure. They are corrupt and money oriented stockmarket players. They make an ass of luis pasteur and humanitys evolutionary state in general. The drug companies look at most dr's like mindless puppets anyway, so just feel sorry for thier stupidity and get your treatment from those DR's with thier own brains and who have a humanitarian motivation. The majority of Dr's do not have the skills to solve problems in anything other than calculus, and human beings are not numbers.
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CPNi pcri and antibody positive , treating MSi,
CFSi, TMJ, trigeminal neuralgia,IBSineutropenia, pus found in facial bone,Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.