Central nervous system regeneration - is it possible?

Submitted by michael30 on Wed, 2008-12-17 10:48

As I am deeply depresed about my condition and the fact what CPN really did to my nerve tissues, nerve cells, axons, neurons...etc

I would like to get some input from you about the potential for the CNS regeneration.

 Anyone here is dealing with the peripheral neuropathy caused by CPN. What is the prognosis? Has anyone really got better and regained what he/she lost within these tissues. If anyone really recovered from neurological defficiencies, what would be the time frame to know whether it can still regenerate or not.

Is there any interest in the steem cell therapy over this site. Is there a potential for the nerve regeneration provided with these sophisticated technics.

 I will greatly appreciate your comments.

 

 

 

 

Michael, most of us are a work in progress and we cannot give you any guarantees, I've answered your question in your previous blog as best as I can.   There are several people here who have recovered from quite severe MS symptoms and their stories are in the patient stories tab at the top of the page.

I understand how scarry this is, my daughter has gone through and still goes through these episode but we cannot say how you will recover, we can only say that the outcome is likely to be much better than you would have had without the ABX.

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Amen Michele, thanks for adding that clear response. 
  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Just want to add that these cpntoxins and porphyria are were toxic for your whole body and also very neurotoxic. (As you of course already know). Have you read about that we have antibodies to vitamin b12?

So we need a lot of it. And nervous system also need a lot o it to regenerate. My neuroproblem got much better since I started metyl b 12 injections.

Wish you all the best, Maria

 

Cpn since sep 2006. Autoimmune thyroid,hypofunction.levaxin,b12+folic acid.All classic cpn,porphyria and toxinsymtoms.Not able to work.Selftreating cpninfection with AllicinMax(garlic), NAC, high vitamin D3. CAP for over 3 years. Back to work and life

Do a google on Fampridine.  I think it's in phase 3.  It's not ideal, but someone is working on this.  IMO, I beleive the cns can regenerate over time.  Ken

In pursuit of ABX

Don't Allow What You Know To Get In The Way Of What Might Be

Hi Michael,I was able to heal with natural foods and supplements such as B12. The injectable B12 is best and will assist in nerve regeneration.

In my case, I had a small area of inflammation in an area of the brain--the Pons from the Cpn infection.

I read about blueberries being beneficial for brain regeneration and began eating 1 cup a day--fresh when I could get them and frozen when they were not available. Within two years there was no trace of the original inflammation on my MRI.

So I would say that injectable B12 for nerve repair is essential. Then foods such as blueberries and wild salmon would be at the top of my list. I also take 1500 mgs of niacinamide that has been shown to repair nerve function in rats. I was taking 3,000 mgs of it my first few years of treatment and found it very helpful. At such high doses it is also anti-Chlamydial.

You might also try some flaxseed oil as it is very good for dampening inflammation.Mix a tablespoon with some plain yogurt as it needs to be taken with protein for good absorbtion. 

Hope this helps,

Raven

 

 

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Hi Raven. Thanks for your effort. Isn't it possible to use B12 in the pills form. I do not enjoy injections. I know that the absorbtion is better but in a long run it would not make any difference I guess. Bluberries cool, will add it to my everyday regimen just like I use salmon

Recently I bought Thiogamma 600. This is simlpy alpha lipolic acid which also helps to regenerate nerves in the neuropathy.

 

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

I take alpha lipoic acid 600mg along with Acetyl L-Carnitine HCl 1g from Vitacost because this is on the list of supplements to support the Wheldon protocol. You really should take the time to read and understand the CAP by using the Getting Started pages available from the link above.

speedbird

Michael30, B-12 is poorly absorbed through the intestinal track for many people, increasingly as they age because of the necessity of a component that is manufactured by the body called intrinsic factor is deminished or missing.  Sublingual route can now be used but some folks do not get enought from that route.  I personally use sublingual route it is OTC in USofA.  I use a brand called superior Source, No Shot, instant desolve,  methylcombalamine 5000mcg/B-6,2mg/Folic Acid 800 mcg per tablet.  They have many formulations of SL Sublingual Vitamins.  You put them under your tongue on in your cheek and let them disolve and absorb, that is the hard part they are tasty and not to be played with.  I also take 2000mcg cyanocobalamin for extra measure as it is another form of it for the body.

I understand that the injections are not large volumes and are not very uncomfortable and studies suggest that it is the best route to raise levels.    It has been know for many, many years that B-12 defficiency causes neuropathies.   Still few people get the treatment without seeking it.

There is a forumulation by Metagenics that call Intrinsi - B12 or something like that.  It can be had from natural physicians or even located on the internet.   I took it years ago before knowing about my CPn load.  It was helpful even then but not the full answer.

I may ask my MD about injections sometime this year.  Right now I am doing quite alright with my supplements and supports.  Please see my signature for more details.

Happy Holiday wishes for you.  I am in appreciation for this site and all the discussions and information that it has provided me.

Holiday Blessings to all,   Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

I take alpha lipoic acid, acetyl-carnitine, sublingual methyl-cobalamine, and idebenone (a syntetic form of Q10), and DHEA. Plus all the common supplements (vitamins, minerals, oils, etc.).
And I had two stem cells treatments.
Yes, nerve regeneration (to some extent: don't expect miracles) is possible.

< SPMS - EDSS 7 > < NAC 600mg X 2, Doxy 100 mg X 2, Azith 250 mg MWF, Flagyl pulses, green tea, curcumin, flavonoids + all the supplements listed on Wheldon's Protocol (and possibly more) >

Steem Cells treatment??

 

Can you tell me in details about this please.

 

 

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

I read today that neuropathy can also be triggered by antibiotics. Metronidazol is very well known for the neuropathy effect. I am also interested if this whole misture of antibiotics is not responsible for the remaining neurological disorder that I am going through. I would like to try to stom CAP to find it out but on the other hand I am afraid of CPN load that would come next.

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

Well, I'm afraid that dealing with stem cells would be much out of place for CPNHELP.ORG Web Site.

Apart from being just a "field for pioneers", there are so many different treatment options (and techinques) that a discussion would be not much different from "Drugs? Tell me about drugs....".

Stem cells hold great promise for nerve regeneration, but (in my limited experience) stem cells alone have a limited effect if not combined with a suitable supply of neurotrophic nutrients.
The supplements mentioned by many people here are thougth to be neurotrophic (or precursor of nerve growh factors): they might work as well with anybody's own stem cells. Receiving some "surplus stem cells" may speed up the regeneration, but only works for a limited amount of time, not for anybody, and along with a lot of additional factors (some of which still unknown).

One fact should be clear: stem cells don't cure from any degenerative illness (they don't addrees the causes of the disease), but rather (may) provide some temporary and marginal improvement.

< SPMS - EDSS 7 > < NAC 600mg X 2, Doxy 100 mg X 2, Azith 250 mg MWF, Flagyl pulses, green tea, curcumin, flavonoids + all the supplements listed on Wheldon's Protocol (and possibly more) >

Yes. I consider going under steem cell therapy only when I will remove the stressor. There is a hope in such treatment cause I am really pretty confident to say that my condition is not related to endotoxins nor porphiryns. I removed a lot of CPN  from CNS, but this area is still a pure desert without any neurology in there. The thing that I am really currious about is how I even move or exist.. I do not feel anything in my body. It is almost like touching someone else body, my neck, brain is virtual. On the other hand i can speak, drive my car. This is like I would live inside someone else body and the world around is just the slideshow. My life is a movie. Unbelievable.

This is really devastating.

CFS, Severe Peripheral neuropathy, Insomnia, Azitromycine/Clarithromycine/Roxytromycine, Doxycycline 2x100mg, Caffeine every day, Tinidazol for pulsing, ACC 2 x 600 mg -  treatment duration: 24 months

The best protective against peripheral neuropathy is vitamin B6 during pulses (and at other times if you have problems with this).

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Go to www.suv.org and find out about the anti-inflammatory benefits of an akaline diet.

I've been on a roller coaster ride with CAPs since 2006- but I think the Wheldon P. plus an akaline diet and thyroid hormone replacement- T3 is finally the answer.

Hope you are finding some answers.