Cpnhelp.org

I have celiac disease. I am sure I had it since childhood. I was so skinny I looked like I lived in a concentration camp. My hip and leg bones are slightly mishappen like in rickets. I am also sure I had cpni infection since I was a child. I don't know which came first, but they worked together to cause me much harm. The percentage of people with gluten intolerance is much higher than is commonly believed. Agriculture has bred wheat to be so high in gluten, that a slice of bread is almost a trampoline.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Now that's interesting. As a child I too was skinny as a rake even thought I ate like a horse. I was diagnosed with hyperactive thyroid which spontaneously righted itself when I was 20.

Reading the Celiac info it seems they link it to thyroid problems.

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Berkshire, UK. Diagnosed RRMSi Feb 4th 2008.

NACi 2400mg. All supps. Doxyi 200mg. Zithi 250mg. Metroi 400mg.
No GP/Neuroi support. Self medicating with help from David Wheldoni.
Started CAPi 20th April 2008. First pulse June 2008

Hmmm, and I contend those thyroid problems are cpni-related. And so the wheel turns.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I think I had Hashimotos's when I was 12, and I was hot and my eyes slightly bulged out. My thyroid then sputtered out, and I became cold-natured. I stayed skinny. I already had white spots on my skin as a teenager, and red nose and hands.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Hi Andesine, nice to hear from you, have not seen any of your posts and had begun to wonder about you.  Well I like the terms gluten enteropathy or gluten intolerance which can go along with lactose intolerance, more descriptive as such it is not a disease from my perspective.    So yes I have been treating this with diet for 20 years.   Female line direct female cousin of my mother's sister outed the condition and her tissue typing etc postive results.  She sounded like a match to me, so I emperically (a bit like emperical tx of CAPi based on symptoms for some here) became totally and religiously abstinant of all gluten containing food items.   About 10 years into the process I went to a Gastroenterologist who was knowledgable and he did blood and bowel xrays, I did not follow up with Biopsy tissue testing.  Both blood and x-ray results were negative and I was in remission per his estimation and he concurred based on my symptoms history and symptoms from rare indiscretions that I had gluten enteropathy and should educate my children as well.  I have with limited success. A little like suggesting to folks that CPni may be a part of their complaints .  At least once they need the solution they will have a clue as what is up and how to handle it.  They ate from a rice based kitchen for years!  Like a few things in life abstinance is the cure!   An emprical trial is not hazardous to your health, sometimes limits choices out to eat and requires some creativity balancing a meal and learning about the ingredients in foods. 

  Now 20 years after, gluten and wheat free products are available and somewhat palatable.  When you want something crisp and dry to eat there are always the old standby rice cakes.   Also in the UK oat cakes abound, some with celiac sprue (another name for the same condition, I think there may be 4 or 5 just to confuse things.  Thanks for the link it was a fairly good one for education). Some can tolerate oats but not all with the condition.  Oat cakes here in the US are expensive and imported but I am fond of them and use them as a treat on occasion.

Please continue to blog your experiences around this addition to your self treatment approach.  I for one will be most interested to follow and discuss this with you.

Louise

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Louise  CFSi,CPNi+/Bb+(Lyme) Cholestyramine 1-2 pks @ HS for Porphyriai +fattyEndotoxins HS PRN, Wheldon CAPi 6/07,all supps, Doxyi 200QD, Roxi 300BID, Tinidazole 500 BIDx20day Pulses, VitD3-10,000IU,Iodoral25mg,SAM-e100mgQD+B-vits, Pyruvate3.75Gm at 1PM