I haven't posted anything in a while. I thought I had got on top of CPn and that I just needed to build up stamina. Unfortunately, a few months ago, I had to face the fact that my post-exertion malaise was getting worse. I tried 600 mg of NAC and had a reaction. It took me a couple of weeks to get back up to 2400 mg per day.
I am in a transition period with this. I was a patient of Michael and Dr. P and with the closing of their office I had to decide where I was going next. After reading about the Buhner protocol, particularly in the 2nd edition of Healing Lyme, and being a believer in herbs, I decided to give it a try.
It took me about two weeks to get up the full dosage of the eight or nine herbs. I believe it is working, and perhaps faster than the antibiotics did. (I was on them for over two years, as I recall.) The most succinct way for me to tell this audience why I think it's working is this: it feels like I'm on flagyl. (Another member of this forum described it to me the same way without my prompting, via PM.) In fact, the last few days have been as bad as I remember any of the flagyl pulses being.
The other thing that has been on my mind is why I never got on top of CPn. Michael often told me that something else was going on or missing because I should not have plateaued where I did for so long. That got me wondering about some of the co-infections. I was mildly positive for HHV-6 and EBV but I don't believe I was ever tested for Lyme. Because the Lyme protocol overlaps with treatment for other co-infections (bartonella, babeosia), because I was only three herbs away from the Lyme protocol with the herbs on the CPn protocol, and because Lyme tests are not highly reliable, I decided to just start that protocol without actually getting tested for Lyme or the other co-infections.
To begin the Lyme protocol, I started Japanese knotweed and eleuthero because the local health food store had them. Two days later, I was feeling terrible. It may have been the Japanese knotweed or it may have been my switch from capsules to tincture on andrographis. I started the cat's claw last night and knowing it has anti-inflammatory effects, I started on a higher dosage than I normally would have. I think that with extra chlorella and ibuprofen has taken some of the edge off the herx.
That's where I am at the moment. I am interested in hearing from others who have tried the Buhner protocol. I'll try to keep posting some updates.