First off - hello y'all, what an amazing response, you've just blown me away. I never thought there would be such feedback. I'm glad the idea of the foil hat tickled you, we could all do with a little humour, but I felt so patronised by my GP's attitude. He treated me like a crank!
I have been taking the NAC for 3 days and have the predicted vague flu-like symptoms. However I was already experiencing similar effects from a recent relapse, this was followed by a viral? type episode. So I cannot attribute my feelings with total certainty.
I have had no feedback from the neurologist and it has now been a week. I think I need to give it a little while longer but I will keep you posted.
Malcolm, a travelling companion is always nice to have - yes keep in touch and good luck to you also.
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Robert - MSi for 16yrs. CAPii since Jul 07, NACi 2400mg, Doxyii 200mg daily, Azith 250 mg MWF, Flagylii 10th pulse.
This uncertainty is the most
This uncertainty is the most difficult thing to bear with this treatment. What pains and nausea would we not put up with if we knew for certain that we were addressing the Cpni. It gets better with time, but at the back of your mind is always what if....
Im pleased you found us a good bunch to share your experiences with. Hope you have some positive feed back from the neuroi, but I won't hold my breath...
Michele (UK) GFAi: Wheldon CAP1st May 2006 . Daily Doxyi, Azi MWF, Flagyli at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMSi Wheldon CAP 16th March 2006
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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 6.5 Wheldon CAP 16th March 2006
Hi, Steady wins the race! I
Hi,
Steady wins the race!
I hope you have good luck with the Neuroi!
Grace & Peace
Ruth
CFIDSi/ME, FMSi, IBSi, EBVi, Cpni, Babesia, insomnia (sleep- melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, Doxyi 200 mg day pm, Azith 250 mg M/W/Fday
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 daysHi, Steady wins the race! I
Hi,
Steady wins the race!
I hope you have good luck with the Neuroi!
Grace & Peace
Ruth
CFIDSi/ME, FMSi, IBSi, EBVi, Cpni, Babesia, insomnia (sleep- melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, Doxyi 200 mg day pm, Azith 250 mg M/W/Fday
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CFIDSi/ME 32 yrs, FMSi,
IBSi, EBVi, CMV, Cpni, H1, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, Full CAP 6-2-08, all supplementsi +Sea Kelp, Chitosan Pulse 16 1-4-09 1gm Flagyli/day-3 days