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NAC

Hi there,

I am continuing with NACi until I can get a doctor to prescribe the antibioticsi

I am taking 2400mg per day.  I'd been taking 1200 in the morning and 1200 at night.

Yesterday I tried something different.  I took it all before bed.  I'd read that someone else had tried that.  The theory was that you'd have fewer symptoms in the day-time as your body worked through the night.  This didn't work for me.  Today is the worst day I've had.  So I won't be trying a big does before bed again. I woke up feeling hungover - exhausted, with a head-ache and very flu-ish!

The good thing is it is a lesson for me about what not to try when I get the anitbiotics.  My body needs things spaced out...

My NAC test

LOL, I ran a NACi test on myself. I have been taking NAC 3x day, 600mg at 9am, 3pm, 9pm; total of 1800mg for 4 days - no big affects. So I thought I would up it and try to achieve 3600mg for a day on Saturday: 1200mg at 9am, 3pm and 9pm. Well I took the 9am 1200 and took a nap and achieved a deep sleep, then at 2pm took 1200 more of NAC and started getting the brain fatigue, or toxic shock. I was very groggy and felt like I had a head ache, and took 800 of moppers. It's a strange kind of headache, more like a straght-jacket around my brain. By 9pm I decided to skip those pills and just sleep it off.

Augmentin and porphyria

Just a quick note--hoping I am seeing some progress and would like some feedback if possible. As written in my blog....lots of words  :)  lol I have MSi, tested positive for Cpni.

Started minocycline--tested this several times--and quit due to horrific porphyriai.  Regrouped, Wahls diet and supplementsi--I have my life back. Hard to describe the transition from being ill for so long.

So, planned on revisiting antibioticsi when I had completed a list of  health building things, such as sauna, ketogenic diet (currently doing--another fabulous increase in energy and clear thinking) etc..

7 months on and happy

Ok I am 7 months into it and am doing ok, I haven't had any msi symptoms except for fatigue for around 2 months, I am very good at taking all my supplementsi and my last pulse was only for 6 days as I could handle any longer. I am walking everyday and have been back at the gym for a couple of days a week, I am really tired though but feel sick if i don't exercise & it seems to help me even though it's hard.

Still haven't got much energy in the body and really find it hard to move somedays but all in all I am getting better. 

I think once I can get off the antibioticsi I will feel good but am glad that i have stuck it out, i think it will pay off.

My brain function has improved quite significantly and I am remembering so much more now.

7 months on and happy

Ok I am 7 months into it and am doing ok, I haven't had any msi symptoms except for fatigue for around 2 months, I am very good at taking all my supplementsi and my last pulse was only for 6 days as I could handle any longer. I am walking everyday and have been back at the gym for a couple of days a week, I am really tired though but feel sick if i don't exercise & it seems to help me even though it's hard.

Still haven't got much energy in the body and really find it hard to move somedays but all in all I am getting better. 

I think once I can get off the antibioticsi I will feel good but am glad that i have stuck it out, i think it will pay off.

My brain function has improved quite significantly and I am remembering so much more now.

Just Plain Silliness

8 Rules of Cpni Fight Club

1st RULE: You must tell everyone you know about Cpn and its connection to so many so-called ‘autoimmune disorders’

2nd RULE: You must tell everyone you know about Cpn and its connection to so many so-called ‘autoimmune disorders’

3rd RULE: If during treatment the Cpn says "stop", goes limp or taps out…the fight is NOT over. The sneaky SOBs can hide in cells, so treatment must continue til die-off symptoms are almost non-existent and even then you should undergo intermittent treatment before officially stopping.

4th RULE: A minimum of 3 abxi to a fight. Monotherapy will not work.

PLEASE anyone know a Canadian doctor traeating Cpn for MS? Near London Ontario or Toronto CANADA???

My Dad is suffering with progressive MSi and is very disabled 

At this point.He needs a doctor willing to prescribe these

Antibioticsi.Desperating seeking any info from

Anyone, we live near London Ontario CanadaI if we could find

A doctor within driving distance we would drive  thx for any input

And any suggestions

c.pn test

I got my c.pn test results back but haven't met with my Dr. (they post the results on-line). Does anyone know what these numbers mean? 

Worried I've gotten worse :(

Hi all,

 

a bit depressed this week.

when I was on CAPi the first three months, I felt great.

i was slowly getting better and better.

in the last 3-4 weeks, got my old symptoms back and some new ones.

my right leg is getting weak as well as left. Not good.......

you,re all going to tell me off.....I have only been on AB,s and some supplementsi.

didnt start on NACi as was doing well without and was a bit worried about starting something I would have to stay on forever.

i have ordered them now.

Should be here soon.

started the paleo diet...terry wahls inspired 4 days ago .....so far, the upside is that I'm losing weight fast.

next NAC level

Starting next NACi dosage: 1800mg. Take 600mg at 9am, 3pm, and 9pm.

 

I wonder if its better to spread it out like I've done or take 1800 all at once at bedtime so I can sleep on it.

 

Tinnitus from antibiotics?

Hi folks, I've been on the Wheldon Protocol since early December 2012 and within the last couple weeks have been experiencing significant ringing in the ears (Tinnitusi). My MD suggested stopping all abxi and switching to a naturopathic CPNi treatment, the specifics of which we have not discussed yet. It seems to have subsided somewhat since I stopped taking abxi a few days ago, and fortunately, coincidentally, my asthmai seems to be in significant REMISSION over the past week (!). 

New user - just dx with MS :(

Hi everyone. I hope I am posting this in the right section.

I am a 30 year old guy from Brisbane Australia and I have just been diagnosed with RRMSi.

I just saw the episode on the catalyst program which lead me to this site.

The neurologist wants me to go on MS meds but I don't want to. To put it bluntly, I think it's bullshit and supported by the pharmaceutical companies.

I'm trying to read as much as I can on this site but my vision is a bit blurry and I can't type well with my left hand due to paraesthesia/numbness. 

I haven’t been able to go to work for the last two weeks as the paraesthesia/numbness has spread to my left leg.

Depression

I started the protocol 14th Feb and have been going slowly as recommended, each time I have taken something extra I have been more fatigued but this usually resolves. I am now on full dose of doxi and roxi and 1200mg NACi. I am really fatigued and have been more emotional, depression which is unusual for me, feel like crying a lot more too, is depression a common side effects from doing this?

NAC and LDN

Im still saving money until I get 500 dollars so I can buy 6 months worth of abxi. Maybe ill get lucky and find a doctor that can treat me. I think I might be able to persuade my doctor into treating me if I can get some more accurate tests done that will come up positive. But anyways until I get my abxi I am starting LDNi and NACi today. I guess we wil see if these 2 substances work or not.

Neuro said I'm a different person, but still won't prescribe abx!

I've been on the Wheldon Protocol now for 6 months and my msi has improved dramatically. I visited my neuroi for the first time since I started this treatment and her reaction was interesting. Note that 18 months ago she recommended that I take a Total and Permanent Disability payout and totally give up work, which I did.

In this appointment, she commented that I was a different person since last time she saw me, which was 6 months ago just before starting CAPi. She then tested my reactions and strength on both sides of my body. She said that she could hardly tell the difference between my left and right sides - 6 months ago my left side was weak and my walking was deteriorating. I was having trouble swallowing and my brain was jelly.

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