Blog posts

Six and a half weeks

Submitted by JaneK on Wed, 2017-05-24 06:49

Feeling like I'm getting worse, I've been horribly depressed (although I'm over that now) a bit nauseous and weak and generally MS fatigued.  I, initially, wondered if the abx weren't doing their job, but, realised that feeling worse is still movement and that, although it doesn't feel good, I should probably blame (an oxymoron) improvement!  Hope my improvement improves soon!

Cpn treatment for Chronic fatigue - 1 year in

J R
Submitted by J R on Sat, 2017-05-20 12:21

I have been on CPN treatment for Chronic Fatigue for over a year now, and have been very bad at keeping tabs on this forum. I have done really well until the last month or so, but I really just followed the protocol, and stuck on a relatively low sugar diet, which seemed to help me in the past. Right now I am struggling a little, and realizing that I need to keep better tabs on the forum: to receive your collective help and help others too. I struggle to keep up with my email and so stopped getting the automatic messages. In fact I mostly struggle to keep up with my life in general - I have a family and am the sole breadwinner - somehow I've managed to keep up with a fairly demanding job, but it's very challenging.

Still here

jam
Submitted by jam on Fri, 2017-05-19 23:52

I stopped the abx for approx two months due to stomach issues. 

The panic was too much and i am now back on the train.   Just finished a three day pulse with Ornidazole.   I was feeling the effects.  I may stick to three if it is too much.  


Jam







Lift legs on bed

Submitted by MMHHPP on Sun, 2017-05-07 04:00

Hi all
I hope someone can help here. I am reaching desperation now….

When i walk my feet are so stuck on the floor that in order to move with my walker is daunting! 

I only walk from sofa to toilet from bed to toilet from bed to landing

Go on my bottom down staircase, husband needs to lift my legs up the stairs

This is so desperate, and when i finally make it to the bed my legs don’t lift up and my upper body is not strong enough to do anything . 

I see many of you have just started ms but is there someone in same situation? Please reply saying how you do it! 

I am most of the time on my own kids in school husband working so this is now quite upsetting…..

20 days in!

Submitted by JaneK on Sun, 2017-04-30 07:33

It's been nearly thre weeks, I'm taking Doxyand Roxy and some supplements, including NAC.

I've been taking my ABX twice a day (Doxy after breakfast and Roxy 12 hours later), but today I've decided to take them together, after my evening meal, remembering that they multiply in strength, when taken together, but I don't know if this means concurrently!

A few side effects, but nothing to write about and nothing no-one else knows!.

Sarah warned me to expect my early  progress to unravel, and it has, it 's good to know this is normal.  but what could be more onerous than the permanency of MS disability? 

Jane

11th 12th 13th Pulse

Submitted by panc on Thu, 2017-04-27 17:53

11th and 12th pulse gave me some really bad headaches, maybe because I acted really stupid and did not use any mopers.

13th pulse, I felt only the usual flagyl "anoyances" that reminds you that you are on flagyl, like metalic mouth taste, very slight nausea etc

Another one.

Submitted by willingtocope on Tue, 2017-04-25 14:24

This time i went to bed at normal time, watched some TV for awhile, and went to sleep.  Woke at 1am...chills...lasted until about 2:30.  Went back to sleep.  Woke at 5:30.  Tried to get out of bed.  Legs gone.  Went back to sleep again.  Woke again at 7:30...struggled...but finally got out of bed.  Legs not real cooperative, but I was able to get in my power chair without falling.

Its now about 1:30pm, and I'm feeling better.  I can stand and move around in my chair.

Overall, I've bee feeling okay for the past two months.  Not great, and I do have trouble co9ntrolling my body temperature...flucuates between 97 and 100 F.

At last!

Submitted by JaneK on Sun, 2017-04-16 08:51

I haven't ever believed MS is incurable, nor do I believe it's a stand-alone, simply definable disease, but what do I know? My neurologist had a, surprising, change of heart and , although British law says he could be struck-off if he prescribed so many ABX, he intends to monitor my progress.