Blog posts

Summer is flying by

Submitted by wiggy on Wed, 2008-08-06 10:49
I want to update my blog while I can. My vacation was great and I was able to keep covered up and enjoy the beach. I am leaving again this weekend - so counting pills and doing laundry. I am still taking 400 mgs doxy + diflucan. I am keeping a journal as I am up and down but managing to get out. For Barbara: My spasticity is much improved and I am giving credit to the meds. I am on the stationary bike - keep in mind a very slow speed, can't get bike to light up also had to use hands to pull up legs to keep going. Just this week I was able to bike with no hands. I starting screaming to husband and daughter "look, no hands"!!!!! I also was pedaling hard enough to get lights flickering - I'll take it.

Why Peanut Butter?

Submitted by Sunnivara on Tue, 2008-08-05 22:50
During my first flagyl pulse I craved bread with peanut butter every day sometimes eating it 2-3 times a day. When my pulse was done so was the desire for peanut butter. I thought maybe it was a coincidence but the first day of my second flagyl pulse I'm back into the peanut butter jar! Why on Earth would flagyl make me crave peanut butter? Anyone else get weird cravings during pulses?

NAC question

Submitted by tapper57 on Tue, 2008-08-05 19:23

Hi all, 

Started NAC 7/23. Began with 1 cap every other day and am currently up 1 per day. Initially caused sinus like headache and congestion. Plan on upping dosage and was wondering if it can be taken along with other supplements or should it be taken solo. Also- better taken with/without food... or does it matter? 


Inflammation waddling, wall walking what do we have in common?

Submitted by jak7ham9 on Tue, 2008-08-05 18:01
Well the combination of the heat and abx induced inflammation has really left me waddling. I just read far and wide , wiggy and minai and I wonder why some of us ms'ers have more mobility issues than others. Why are some improving why some not? I used to get breaks of feeling realitively looser and able to move pretty well but those improved times have stopped as i've continued with abx. Hmm I take a lot of probiotics, and for the first time I have started to feel like I am starting to get a pre-yeast so I added nystatin. So i upped my magnesium and I can't say I am any loosy goosier though I deffinately go to the bathroom more.  So I reread sarah and katman and they seem to say that tightness does fade. Well when ?

cpn livith in the oral cavity

Submitted by clammed_up on Tue, 2008-08-05 13:43

Cpn does live in my oral cavity. It was confirmed by CPR of the granulation tissue from my jaw. Everything else was negative including candida, mycoplasma and staph. Thats just insane.

Although Im doing well right now, I feel discouraged because I wonder at what point does cpn have a hold on you where you cant escape it ever.

The ms clinic finally called me back and booked my MRI. I do know that just based on the way i feel now compared to before that the mri will show less activity, so Im curious to see whether dr stupid #2 will actually acknolege the abx as the CAUSE of the improvement, Yes I said CAUSE- For any professionals reading this. I need to say it again "CAUSE" of the improvement. Just making that clear.

The bugs' long-overdue deaths

Submitted by katman on Tue, 2008-08-05 12:12

The title was suggested by a conversation between two of our most battle-hardened warriors, and I couldn't resist it. This has been one of the most eventful years of my life - busy, too. Beginning in January with surgery and moving through kidding season, then a very, very good show season, this last taking a temporary break after the best Nationals in years, then linear classification of our goats, now a break for the really bad August heat (this is AFTER the really bad July heat), then a resumption of show season next month, which wil begin my fifth year of MS treatment.

The wandering road...

Submitted by farandwide on Mon, 2008-08-04 14:34

I was reflecting on my morning and decided to put something down.  This is a typical  morning in terms of what can and often happens to me.  The CAP I've been following for 25 months has impacted it somewhat, albeit in subtle ways. 

Most recently, I have thought that I _may_ have greater heat tolerance then last year (last summer) but it's hard to tell when the ambient temperature jumps so much, so fast.  If my imagining are correct, I've inched up to about 90 degrees F before the heat really starts to slow me down and impact my mobility.  Last year, it was 87 degrees F.  The year before, 81 degrees F.  I'm not sure about it though, just seem to be tolerating the heat a little better.

Joyce's PBS Update: A breakthrough

Submitted by cypriane on Mon, 2008-08-04 10:24

Those who "know" me know that I have Potbelly Syndrome issues and other issues that are equally pedestrian. The only difference between me and billions of other middle-aged women with pudgy midsections is that I discovered that my common maladies are linked to chronic Cpn and other chronic infections, because I found this site while investigating meaningful treatment for my husband who has MS.

Paula Had A Bad Crash Last Night

Submitted by Mark Hall on Sun, 2008-08-03 21:33

I know that the reason for a blog is so when things are getting a bit better, you can look back to how bad things were.

Or, when things are going bad, you can look back to how worse things used to be.

This is my reason for this post.

Paula doesn't like me "airing my dirty laundry in public", but when she is better that's when she can tell me off for doing it.

The way I see it, this blog is for both of us.

Joy's Blog

Submitted by Bluebird on Sun, 2008-08-03 13:40
I would like to introduce myself, as I have been reading on this site for awhile now, and am considering doing the CAP.

I have been on the Marshall Protocol (MP) for about two years, in a sort of half-baked fashion, in that I have been on Benicar only for about half that time, and only did the low dose abx for 13 months (mino + clindamycin, no Zith).  I am VERY CONFUSED about the Vitamin D issue, as anyone familiar with the MP will know that we are conditioned to think of D as BAD.  My Vitamin D3 level is <4, and has been for almost two years.  I am slowly attempting to bring Vit D back into my life, via slightly more sun exposure, however this tends to aggravate sx for me, so it is very limited.