Blog posts


Submitted by Arttile on Tue, 2016-12-20 20:36

Has anyone substituted (for CoQ10) or added pqq to their supplements? Do you know how much we should take?


Hi, could I take amoxicilin with wheldon protocol?

Submitted by jade on Thu, 2016-12-08 11:19

Hi, I´m still on wheldon protocol, with roxi and doxy and tini, and my doctor gave me an amoxicillin with clavulanic acid. It is for inflammation in my right ear, there were found streptococus agalactiae B and Enterococcus species. These germs makes me an inflammation of the ear canal and the middle ear, a big headache, dizziness, and I have found brain atrophy too. Brain atrophy is greater on the side of the sick ear..

Once again...

Submitted by willingtocope on Thu, 2016-12-01 17:37

This time in the middle of the night.  Woke up with chills...lasted about 2 hours...then low grade fever.  Trying get up at 5am, and my legs were completely stiff.  I couldn't bend them at the knees.  I had to call the care attendents to get me out of bed and into my powerchair.  At 7am, I stood up to urinate and everything appeared normal.  We'll see how things are when I try to go to bed tonight.

This all puzzles me.  I'm still taking NAC, doxy, and rithro daily.  Most days are pretty good.  I'm not walking any better, but its not any worse either.

I don't pulse anymore...last time my PA noticed my heart skipped beats and suggested I stop.  I did, and my last checkup two weeks ago showed no problems.

Vega machine / zapper

Submitted by supaguy on Sat, 2016-11-26 19:26

A week ago, I had just returned from London after having made a long round trip with an overnight stay. I'd met up with an ex-CAPer / Lyme survivor. This chap was hosting a visitor that was doing Vega testing on a whole tump of people.

Anyway, I had the test run on me. I was already well aware that this sort of thing is regarded as quackery by the medical establishment. After a good 40 minutes of testing, I was shown my results. I was told that I had all sorts of infections, including an intestinal worm, babesia, CMV, flavivirus, borrelia and yes, Chlamydia Pneumonia.


Submitted by MMHHPP on Thu, 2016-11-17 08:43

Hi all I need some help .

 For those who are experienced :  what is it best in the snow a mobility scooter with chains or a wheelchair with front wheels' small skies.

it is my first time in the snow and I need some help !

thank you

Hothouse flower

Submitted by Homina on Wed, 2016-11-16 15:47

I am getting to the point that under good conditions I can have what I call a normal (for me) life

I am doing much better than five years ago

I can work at non strenous jobs part time can get exercise twice a week and get some sleep at night

But  to my surprise I am still a hothouse flower

Recently I went to a workshop in the desert and camped for a few days  It was hot ( I don't do well in heat and cold ) I did not have the chance to lay down which I do frequently in my everyday life etc

I had a very hard time sleeping and got to the point where I could not walk very far I had to get into my car to get from point to point even short distances.