This is my 10th year on Cap. I am still taking Doxy,Roxy and metronidazole continuously. The lesions in my spinal cord still have activities such as burning,itching and tingling. These feelings are happening for the last five years but they are getting less and smaller in time. They were feeling like a thick rope which turned into a thin string. The feelings are fading away slowly. I don't have any spasms or pain like I used to have. I feel much better. Over my shoulders,my neck and my head didn't develop any lesions during this time. I only lost the control of my body below my shoulders but not above. I still can move my shoulders easily. If I didn't take Cap, I believe I wouldn't be able to use my shoulders and above. So fortunately I am happy taking the Cap.
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The activity in my spinal cord changes everyday, it sometimes feels like a cat scratching or itching inside my spine and sometimes i feel light pain in the middle and lower area.This activity in my spinal cord is getting less and moving to my lower back where my first lesion appeared.Besides all this i don't have any other pain or activity in my body.Everytime i pulse Flagyl i happen to feel more activity in my spine and get more spasms all over my body though.
I started minocycline 100mgx2 and rifadin 300mgx2 a day.The next day i felt my spinal cord was more heated than the rest of my body.On the 15th day i had 38.5 degree fever and flu like sendromes ,i stayed in the bed for 7 days.This was my first herx reaction.I also had popping ear when i open and close my mouth, just like in the airplane landings.For the next three months i havent had anything else besides popping ear and pain in my foot.
I had my second herx reaction which was 15 days long with pain in my kidneys and my urine was like transparant jello.I had abdominal pain as severe as in my kidneys.Because my urine was like a jello i kept checking my urine visually in a plastic bottle.Every two or three days the bottom of plastic bottle was getting dark which never happened before i used antibiotics.
I switched to INH 100mg.x1 rifadin 300mgx2 metronidazol 500mgx2 a day without pulses which clears the infected immune cells from the body.For the next three months i kept taking this combination without any side effects,i had mild abdominal pain,tingling in my feet and burning sensation of my spinal cord.The bottom of the plastic bottle was dark red after i switch to this combination.
I had the hardest herx reaction for 45 days,i lost nearly 20 kg. my brother and mother was worrying about me ,they tought i was going to die.They scared me too then i took cortisone (prednisone) to surpress my immune system which ended my herx reaction the next day.End of march i swithed to the combination of doxy and rifadin with pulses of metronidazol.
I had severe joint pain in my knees and my hips and severe pain in my feet.I also started having swelling in both my legs and feet.
Swelling is all gone now but a horrible pain started in my lover spinal cord which sometimes makes me moan.