wiggy's blog

Thank-you for your support!

Submitted by wiggy on Sun, 2012-05-20 08:59

Thank-you all for your votes and support in the Accessible Vehicle Contest.  I did not win but I knew it would be tough as 1200 people were in prior to me entering the contest.  There were a total of 1600 people that entered the contest, many with hard life stories.

 

We will be looking at 2 used vehicles today - I'll keep u posted!

 

Thanks again for voting,

Estelle

Need your votes!!!

Submitted by wiggy on Tue, 2012-05-01 07:22

I am still not able to walk to back of minivan and pull down my scooter.  I have been trying

 

to get there since 2008.  I am stronger but not consistently strong enough.

 

My daughter (now 12) entered me into a contest and I need your votes, they are giving away

some accessible vans.  The National Mobility Equipment Dealers Association (NMEDA) is a

non-profit organization dedicated to expanding mobility options for people with disabilities.  

I am asking for your help because the people with the top ten highest number of votes will

be entered into a lottery type process (and we got in 1 month late :().

 

2012 Brain/Spine MRI

Submitted by wiggy on Thu, 2012-02-16 10:37

I have attached the recent brain/Spine findings.  I had my IV line pulled and went for MRI.  It shows NO ACTIVE LESIONS!  Also it suggests a lesion is gone from brain as in its place there is atrophy.  I still have several old lesions.  It also found a diffused disc bulging at C6-C7.  It was a more powerful machine so they talk more about areas of brain/spine.  If anyone understands what else this is saying and could tell me in laymens terms I would appreciate it.

 

Trying to post MRI Info but having problems

Submitted by wiggy on Sat, 2012-02-11 11:04

Just had brain/spine MRI and it looks good, well no activity going on.  I did have one

question on brain finding.  I will have to get Mr. Wiggy's help to post this later.  They put me on

a more powerful machine and they did comparison from 2002.  I did not start on abx

 

until 2006.  This is my last MRI - tired of that test.

 

They normally just compare to previous , which would have been 2007 and more

 

interesting for me.  I am feeling much better and that is most important.

Time again for Flagyl - continous???? You are kidding

Submitted by wiggy on Wed, 2011-04-06 11:04
I was in PT for a month and was able to work with 2 therapists I worked with in the past. PT noted the following improvements: Standing balance better, transfers better and able to transfer out of low chair (couldn't prior year), gait better able to walk 60 feet with walker. I am now typing with left hand, could only type with right previously. My typing with left hand is good and bad - up and down. Some days I can and others I can't. My walking still up and down - I believe it will be the last thing I will get back. My left side the problem, can not pick up leg, instead shuffle across floor. We have noticed leg is working a tiny bit better but I have a ways to go. I am up to 4 grams of rocephin and tolerating, The doctor up'ed my dose on Mar. 14.

I am doing well on Rocephin

Submitted by wiggy on Fri, 2011-01-07 12:28
I have been on IV Rochephin for 8 weeks and feeling pretty good. At first I was exhausted and napped everyday. I am still napping as it helps me through the day, but not as tired. I saw the doctor on Dec. 20 and we will continue for an additional 6 weeks. He is putting me in Rehab and I start next week. I will go 3 x a week and will report any improvements I make. We have noticed that I seem stronger with my transfers and my legs are moving more but can't tell for sure these as I am still on a Roller coaster. Keep in mind that the meds have taken a toll - making me so tired - not keeping up with daily activities and not exercising at all. Will see how I do as I start back in Rehab. Happy New Year everyone!

It is time for the dreaded PICC line

Submitted by wiggy on Wed, 2010-11-10 14:10
Monday morning I went to the hospital for something I never thought I would have to do...The PICC line. Over the summer I was able to try the Underwater tread mill, which was great. I was strong at the end of August as it really built up strength in hips, thighs and gluts. The tread mill was too fast for me even at the lowest speed so the PT just let me walk in water at my own pace for 30-40 minutes. My LLMD wanted me to do IV abx in 2008. Due to cost, that I have CPN and Lyme and some peoples bad experiences I decided to stick with orals. Last year I tried to rebuild every muscle group to improve my walking.