supaguy's blog

Pulse #28

Submitted by supaguy on Mon, 2016-03-07 18:16

Now that I have a brand new supply of tini and roxi and I have all sorts of suff out of the way - my London visit and my weekend break in the West country - I can start a new pulse. This time it'll be a full pulse.


There are others out there doing remarkably well and I fear that if I don't crack on, I will soon be overtaken. This is only my 2nd pulse this year and we are already well in to March.

Pulse # 26

Submitted by supaguy on Wed, 2015-12-16 01:59

Pulse # 26; another one started early. My next was due about Christmas. I recall the words of the good book: "Thou shalt not pulse over Christmas ... and definitely not over New Year." so I'm getting this one in now.

Jen, watch out ... I will catch you if I can!

When this pulse is over I will be left with only enough meds for another 3 day pulse,  so I'm going to have to make sure I order some more.

Mobility scooter or legs?

Submitted by supaguy on Mon, 2015-11-30 23:24

Over these last few weeks and even months, I have pondered an uncertain future. I have had to realistically face the future that disability may bring. I have already adjusted and acclimatised myself to the routine of not having to get up and go to work. Not working is something that some folks might miss. From my perspective, it depends on what your job is. No, I do not miss it one iota.

Pulse #24 - started early.

Submitted by supaguy on Sun, 2015-11-01 13:19

I have been feeling pretty rubbish for the last couple of weeks and my walking had been mostly awful. It used to be with me that I was up 'n down like a yo-yo but this last period, it's all been down. Foot drag had become the everyday norm for me.


Today was the first day in a good while where I'd been OKish. Without giving it too much thought, I decided to go for another pulse. I should be pulsing in synch with a couple of our lady members but I felt brave and decided to run on ahead. I only finished my last pulse on the 16th. Already I have that "Yucky" feeling. Hopefully, I will start to feel some gains too in the not-too-distant future.

Pulse #22

Submitted by supaguy on Fri, 2015-09-11 21:17

I’m still hanging on; on to this roller coaster ride. Two & half days ago, my legs had to be lifted out of bed for me and I had to be helped to the bathroom. Another flu infection on top of MS makes for a bad crack and certainly no laughing matter. Today my mobility is better than before the little bout of flu I have just had; so much so I have been on the vibroplate exerciser. Having come of that and looked at the calendar, now seems the right time to start tini pulse 22. Trent, catch me if you can. Froggy, we are siblings in synch; we will cross the finish line together.

Pulse # 21

Submitted by supaguy on Mon, 2015-08-17 11:10

Here we go again - another tini pulse just started - number 21. I and Froggy are pulsing at the same time (although she's way ahead in terms of number of pulses). We have a pan - a very cunning plan - to both get well and cross the finishing line together.