rcquilter's blog

Stopping the cycle

What can one do to kill CPNi without taking antibioticsi?

I have read that Ozone can kill one phase of CPN. Will that stop the cycle?

Natural

Hello everybody,

It's been 6 months since I posted. I have chronic active CPNi. Does anyone know of an alternative to Abxi? I am suffering. Every 7 years I get a flare up that leaves me with a new symptom.

Thanks,

Enjoy your day.

Steroids

Hello everyone,

I have been off the Abxi since August, and I don't plan to get back on because I am afraid of how much worse I might become. My cpni IgGi titter is 1:64 and hasen't changed in 3 1/2 years of Abxi, and I haven't seen any signs of improvement. I have an Epstine Barr titter of IGG of 1:02.

I haven't taken steroids in 5 years. I have been taking 300mg of Biotin daily for 7 months, and a lot of other supplementsi. I feel horrible, so I am considering getting back on steroids. Does anyone have any suggestions on this.

Thank you so much,

Rachel

Epstein Bar

Many people with MSi have the Epstein Barr virus. Perhaps it's making the IJV's weak and possibly causing them to collapse. Please tell me you thoughts on this.

VALCYTE (Valganciclovir 450mg)

Hello everyone,

I would like opinions on the drug Valcyte. Dr. Montoya at Stanford perscribed it for me. Dr Powell, and Dr. Stratton think it is worth trying. I am concerned about the side effects on the central nervous system, so please send me your thoughts on this. Dr. Montoya said it may reduce inflammationi in the brain, and it will also help with my Epstein Barr lab test titer which is a little high at 1.09. (IGGi should be less than .90)

I couldn't bear restarting the Abxi, and I never saw a glimmer of improvement in 3 years.

I am interested in fecal transplants from a healthy donor. I took a lot of Abxi during my childhood due to various illnesses. This may likely have had a detrimental effect on my gut bacteria.

Ivermectin

Hello everyone,

I really apprecieate all of your feedback. I got off the Abxi again after a 2 day restartbecause it was too intense after a 6 month holliday from the Capi. I still am bedridden since I got on the Cap. My Cpni level is exaxtly IgGi, 1:64, and it should be less than 1:64. It's been the same since I started the Cap 3 years ago. Does anyone know of another way to get rid of the Cpn besides the Cap? I'm considering Ivermectin. I have severe optic neuritis. Does anyone have any thoughts about Ivermectin and eyesight? I have had MSi for 19 years. I'm in my late 30's. Please give me your thoughts. 

Thank you,

Rachel

Lemtrada

Does anyone know if it is possible for the Drug Lemtrada to Kill Cpni? It requires a once a year infusion for 5 days of Limtrada and a 5 day dose of steroids. The following year it is done again for 3 days, and then it is finished.

Encouraging Stories

Hello everyone,

This is hell. I am on my 4th year of Abxi with Dr. Stratton's protocol. I'm currently taking a holliday from the Abxi suggested by him. I have no strgenth, and I am like a wet noodle, but my mind is sharp. I haven't had a glimmer of inprovement. I would really be grateful for an encouraging true story.
Thank you,
Rachel

Rife Machine

Hello Everyone,

I was wondering if anyone out there has tryed using a Rife Machine, had any success with it and if so which one did you use?

Help -- My doctor is retiring soon

Hello everyone,

My doctor is retiring soon, and I need to find a new local doctor to perscribe the andibiotics for the CAPi. I'm located in San Jose California USA and I need a doctor that will do this in Santa Clara county. I'm in the San Francisco Bay Area. Does anyone know of or have suggestions for a doctor that will do this in my area? 

 

I'm on my 3rd year of the CAP, and it is crucial that I find another doctor soon.

Thank you,

Rachel

Care givers with Cpn

Hello everyone,

I have 2 care givers with FIbromyalgiai, and it is possible that they have Cpni. If so, is there a danger to me by being exposed to them? I am starting my 3rd year on the capi.

Balance / Walking

Hello everyone,

Has anyone heard of someone regaining their balance and walking ability after 4 years on the Capi? I'm starting on my 3rd year. I lost my balance in May 2011. At that time I could walk holding a persons hand. The Cap has made my legs too weak to walk. I am dependent on a wheel chair, and it's driving me crazy. The intention tremors are bad, but not walking is worse. My optic neuritis is worse as well. I have had MSi for 17 years, but it's never too late to kill the infection. This is brutal! I would love to hear some encourgment.

OPINIONS PLEASE

Hello everyone,

This is intense and I have questions that someone may be able to answer or advise.

Stratton time?

A lot has happened since my last post. Please read the accompaning text below the video I'm posting. You might have to go to Youtube to see it. I need some feedback and suggestions. I have been on the Capi since Oct. 2012, and I have done 11 5 day pulses on Metroi. I don't feel any difference. I felt like hell the first 6 months and now I'm in a stagnant disabeled state. You can see my decline by looking at my previous Youthbe videos. Advice would be apprecieated. My eyesight is my bigest concern. It has declined since I have been on the Cap.

http://www.youtube.com/watch?v=UIbe4KK3MGU<

Stem cells and venoplasty for CCSVI while on CAP

Hi, I am a year into the CAPi and have no intension of stopping, therefore I am going to get stem cells from my bone marrow and venoplasty for the CCSVI ( It has been 2 years since I've had it done). I have restenosed for the past 3 procedures and I'm hoping that the CAP has allowed me to have a bit more cerebral perfusion and I had venos TOS surgery on the left side with the intension that my left juglar will stay open this time. I have disabling tremors and I have to do something. Any thoughts would be appriciated.

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