Greetings to all my friends on CpnHelp,Been a while since I posted a blog. Last year, at the end of the summer, I went on the Buhner herbs for Cpn. My right arm was feeling swollen and tight. This is the arm that was so painful when I was really ill. Spots that looked like skin cancer popped up on that arm and my chest.After the first week of herbs, I had a huge headache all day. The next day, my mind felt sharper and clearer. After three weeks the right arm was back to feeling normal and the red spots totally disappeared! Amazing! My energy was better too.Big mistake--I upped the dosages. That really affected my gut. I had to stop all the herbs.
Hello again,just checking in this month. I have been really busy extracting myself from my teaching job. I retired and I'm finally free. Now I will have the time to take better care of my health. Had some Cpn testing done earlier in the year and levels have been rising. I did a few rounds of Ivermectin and it cut the testing amount in half but Ivermectin only goes after the elementary body form of Cpn.
It appears that Ivermectin is able to lower my Cpn IGG. After four treatments, it went from 1:128 to 1:64. Cut in half. Will do another round soon.Thought you would all like to know about this.What side effects did I experience? Lots of leg pain with the first dose. Some headaches. Body aches. Last dose cause some stomach pain. Not anywhere near what I experienced with abx.However, my doc is skeptical about it having lasting effects. Well, abx don't seem to have lasting effects against this bug. We get re exposed and we are back on the merry go round. Or we don't kill them all. Some of my infection got into my bones. I recall having terrible bone pain in my legs with Flagyl.Currently I feel good and I'm able to work a full day and continue on with my workouts.
hi everyone,Its been a long time since I posted. Been working like a slave and busy trying to get my studio renovated. This is my last year teaching and I'm retiring in June. Really looking forward to that.As for my health, I am glad I found a good naturopath. I have learned a lot from her about keeping healthy. Was skeptical at first but found a good one who is very knowledgeable.She had me tested for Lyme and co infections through Igenex in Calif. I did indeed have Lyme as well as Bartonella. So in addition to Cpn, Mycoplasma Pneumoniae and my passel of viruses there were these other infections. She thinks it was the tick bite (that I never noticed) that just sent me over the edge.
Thinking about all of you. Wishing everyone wonderful holidays and happy and healthy New Year.I'm doing well as long as I stay away from mold. Damn stuff is everywhere!love to you all,Ravenxoxoxoxoxo
Best wishes for a very Happy New Year to all my Cpnhelp friends. I haven't been around much as I have been very busy with work.Been feeling good except for a nasty virus I picked up before Thanksgiving. Mold exposure really affected my immune system. Mega doses of C really help. I keep referring people to the site as I keep in touch with some Lyme groups. Many people with Lyme probably also have Cpn and don't know it. This may be complicating their recovery or the protocols we use must be the answer to killing Lyme too.Many thanks for all the support while I was recovering. Love to you all,Raven
I can't believe I was such a chicken about high dose vitamin C! I thought that 7 grams was a big dose.Now that I have overcome my fears, I take about 12 grams a day spaced over the waking hours. Two grams of this are the liposomal C. The rest is Source Naturals. ( will post a link to it at the end)My mold sensitivities had really gone down. My doctor has found that high dosees of C increase MSH (melanite stimulating hormone) something that is very low in mold exposure patients. This is one of the things they test for when exposure is suspected.Also, been dodging all the bugs going 'round this winter. Priceless!!!http://www.iherb.com/Source-Naturals-Ultimate-Ascorbate-C-Powder-16-oz-…
Last year I found out I was working in a room that was water damaged and full of mold toxins and other dangerous organisms. While I was successfully treating Cpn and driving it out, I still was feeling terrible. Eye pain, blurry vision, head pressure, balance and memory issues--I thought my treatment was not working.
My doctor did some blood tests and found I had several markers for biotoxin illness.
The treatment is removal from the environment, Cholestyramine (to remove mycotoxins) and massive doses of vitamin C.
I am much better but now react to any source of mold I encounter. I was lucky to be able to move out of my building as it was torn down this summer and I moved to a much cleaner room.
Here is an article about biotoxin illness.
Been doing a lot of reading on the mold/immune system connection. As we all know, mold is everywhere. However, about 25% of the population have problems dealing with the toxins it produces. I have also found an interesting article about mycotoxins and the immune system:A whole list of articles I haven't had time to get through yet:http://scholar.google.com/scholar?q=aspergillus+and+immune&hl=en&as_sdt… one is revealing:http://mic.sgmjournals.org/content/157/5/1481.abstract
Have been so busy with work, I haven't been around here much in the past few weeks. Miss you all. Definitely have the mold thing happening. I took Cholsteryramine for a few weeks and felt better. Had some exposure today to our garage which smells moldy and had a definite reaction--nerve pain on the side of my head. Funny thing, this weekend, I was feeling better than I have for a long time. No noticeable inflammation.Lots of energy. It may be the Modified Citrus Pectin I began taking last week. Supposed to be a mild chelator, anti cancer and good for lowering inflammation. Still continuing with A-Bart for Bartonella. Have been off the CAP antibiotics since Jan 17th this year. The bumps and itching under my scalp are gone. Naturopath thinks it was Bartonella.