MunchMan's blog

When there's a forest fire, don't bring a squirt gun.Take an arsenal.

Submitted by MunchMan on Fri, 2012-12-28 13:14

Hello Everyone,

I wanted to check in. I see there are more and more people coming to the site, trying the protocol, getting results / not getting results, questions, answers. It's good to see this site here and I'm still absolutely grateful for it.

I wanted to let the newbies know, don't give up with this type of treatment. It has been almost 3 years to be where I'm at today including the health, the knowledge, and the know-how of navigating MS as a BACTERIAL disease.

Keep your head up people, this is real. There are some extremely smart and experienced people in this room willing to help. I myself am not able to come here as much as I want due to working, family, and volunteering.

Sunshine anyone?!?!

Submitted by MunchMan on Tue, 2012-07-31 15:06

Okay, if anyone can add to this, please do so. Mywife and I are sitting in the Houston airport waiting for our connecting flight to the Big D from Cancun. We spent a full 4 days, way too short, for our 10th anniversary. 

Now, everyday, I felt unbelievable. No symptoms that I can recall. No fever, twitching, fatigue, etc., etc? We spent almost all day on the beach or around the pool and under a cabana.

Now that we are heading back, I feel icky. The fatigue is showing up for sure, and the fever is also rearing it's ugly head through. 

I have to wonder if it was the sunshine (vitamin d) and possibly void of mold(even though it's tropical with high humidity. I would think there is a lot of mold)

Any thoughts?

Low and behold, a pneumonia.

Submitted by MunchMan on Sun, 2012-01-29 19:50

I've been quiet the last couple of months mostly connecting to family, work, and a diagnosis with the Lyme MD's. I've been under the care of a great Dr. in Dallas and I finally feel I don't have to fight to get a diagnosis. I ran the iGenix lab along with some other test including Cpn and some other bacterias and viruses. Results.... Negative Lyme, Bart, Erch, Babs, EBV, and Cpn. Positive Mycoplasma Pneumonia and HHV6. Do I have Lyme? I have test that show negative but the two bands that were positive is speculation with my MD. Another person I know from the Lyme Support Group is seeing a Lyme MD and the MD says two bands are good enough for him. I don't know, but I know what I'm doing now feels good to my body.

***Volunteers Needed*** Possible Study of Bacterial induced CCSVI in Dallas / Fort Worth

Submitted by MunchMan on Tue, 2011-08-30 18:01

I have previously posted my experience regarding a recent presentation from a prominent LLMD in the DFW area. He stated that they are trying to conduct a study regarding the possible CCSVI induced MS (and others ) caused by bacteria and how to treat it.

I spoke with the Dr.'s office in the last hour to make sure it was okay to post this. They said yes but please be aware that the study needs to be approved by the IRB so they are in the screening only process at this time. The Dr's are looking to make this a major study. The Doppler screening is currently 1/2 price for the next 3 slots available only this week. Next week and on, the test will be full price.

Well, I’m smarter. So they say!

Submitted by MunchMan on Mon, 2011-08-29 17:37

I recently finished an intense 5 week capstone course to complete my Bachelor’s in Finance. It took a little over 11 years to complete this journey and was almost completely derailed in the last year because of this disease. A few years ago, I struggled through my upper level economic and advanced accounting courses only to receive passing marks. I couldn’t think, I couldn’t see; my thoughts no longer were with me. I exposed myself to massive amounts of highly caffeinated drinks to stay awake and alert for homework and testing. In doing so, my right eye would literally “white-out”. The next semester came with a brush of death, the ice pick headache. A few weeks later I was diagnosed with MS.

iPhone Application to track symptoms

Submitted by MunchMan on Tue, 2011-06-07 16:15

hey everyone

I wanted to tell everyone about an application I found called iLog Lyme. I know it is for "lymies" but I find it beneficial to track my symptoms on the go. Most symptoms coorespond with mine +/- a few. It cost $1.99 and has been worth it. You track your symptoms daily, can email a weekly or monthly report. I find that tracking is important, stated in my previous posting. 

Wellness Tracking Sheets

Submitted by MunchMan on Mon, 2011-05-02 13:20

Hello everyone,

Katherine had requested this simplier version of a symptom tracker and I wanted to make it available to everyone.

It is only to track how you feel overall on a scale of 1-3; 1 = bad, 2 = okay, 3 = great.

I used it when I started rifampin and found the Bartonella 5-day cyle with it.

Remeber to use 3's sparingly. It's for the days that you say, "There's something wrong with me???? I don't think so!!!" Hopefully you will see a pattern of wellness as I did. It's great to see so many 1's turn into 2's and 2's turn into 3's over the CAP program.

I attached instructions as well. If you have any questions, please post or email them to me.