mswillow's blog

End Game

Submitted by mswillow on Mon, 2010-04-19 22:18
Hi folks, 's me again. It's been quite a while since last I posted here. I'm on officially pulse 66 now, day 8 of a planned 10. I feel ... slightly under the weather. That's all :)

When pulses got tolerable, I ramped up the length and shortened the time off. After several week-on, week-off pulses, I'm doing ten on, seven off, and plan to go to full-time next month.

I am seeing improvement, but it's not earth-shattering. Things should get better soon, as I work out a new plan with a new, paid caregiver. Vikki's had it caring for me, and I can't blame her. She plans to get the fnork off the West coast, possibly going to Atlanta or Florida or Arizona, where it's warm. Me? I love this area. I'm here for good.

Forgive me, Father, for I have sinned ;^)

Submitted by mswillow on Mon, 2009-09-21 17:12
It has been 3.6 pulses since my last post. They're not getting any easier, but I'm still doing them. I'm now on day four of this pulse. It started off feeling like a mountain was dropped on me. Day two, it started with a mountain range, and that night I spent under a subduction zone. It got better day 3, and now it's sliding downhill but thankfully not fast. On better news, I have a pic of a wedding ring for my East-coast f2m-ish friend. Its over a carat worth of natural, untreated alexandrite from India, set in sterling silver. http://i967.photobucket.com/albums/ae156/Jeannette_Willow/SolRing.jpg Hope you like it.

Planning ahead

Submitted by mswillow on Sun, 2009-04-19 19:06
I've got my annual physical on Friday, and, given my rate of improvement, it'll be time to start planning what happens next, after I've gone to full-time metro. What's the anti-viral drug, whats the dose, and when will I start it? Finding this info by nose-navigating is frustratingly difficult for me. Any assistance would be appreciated.

Making some progress, I think.

Submitted by mswillow on Mon, 2009-04-13 19:37
Hi folks. I stretched my last pulse to 8 days. Felt miserable, true, but dammit, I wanna get better fast! It seemed to work - I've been able to use my exercise cycle again, without Baclofen even, and I have some use of my left thigh muscles. So, having had a bit of recuperation time, today I started pulse #aleph-null, I'm by no means done with pulses yet, but I can feel the omega pulse getting nearer.

She's at it again.

Submitted by mswillow on Sat, 2009-02-28 19:13
I just started pulse #aleph-null, after a nice long break. Still seeing only trivial improvements, but at least it's improvement.

Rocks are getting cut, and jewelry being planned, with Crystal. Still no photos, though. Vikki had to fix my exercise cycle - I'd worked it so hard that all the nuts holding the motor down had fallen off. Despite that, still no real improvement in limb function. I'll keep working at it.

The battle starts anew

Submitted by mswillow on Sun, 2009-02-01 18:11
I've started pulse aleph-null today. This one should be another week-long run. The last one was ok until day 6, so I'm hoping this one will be that smooth if not better. Exercise is a real pain in the backside - legs are doing ok if I take a baclofen to calm the tremors, but exercising my least-disabled arm is tough - will see if baclofen helps there, too.

Yet another pulse

Submitted by mswillow on Sun, 2009-01-18 18:54
Hi folks. I started pulse aleph-null today (aleph-null is the first number past infinity. Lame math-nerd humor). I'm planning to go a week on this one.

It seems to be helping. I've been riding my motorized exercise cycle this month, and I'm getting some range-of-motion from it. Between the pulses and exercise, it seems that my sense of balance, the first thing I lost, is returning This is a mixed blessing - I'm rather queasy most of the time, when I'm not actually barfing my guts out. Bulemia as weight-loss, how quaint! :^/