Guys I thought I would post this –it might help some out there. I live in Australia. I have had CFS for around 20 years & have always been able to hold down a job (at times coming home early for a nap). I have still been able to get out & exercise (I love cycling & skiing!). I live in Australia. Often it takes me a while to recharge after these activities. You could say that I was running at about 70% of where a healthy person would be. My main symptoms are fatigue & brain fog. After visiting 18 different Dr’s finally one diagnosed me with CPN & I ended up seeing a Dr who is happy to treat this in Australia. He started me on the tinidazole, roxythromycin & minocycline. After not herxing on any of these he switched me to a longer pulse using the metronidazole.
does anyone out there have OAT test results either before or while they were on their CAP? i am curious to see if that shines any light on what our bodies are going through.
Please let me know if you have any results.
I have had no relief from brain fog (or fatigue). I started on abx 21 months ago. I have a CPN infection (no MS) & am still reasonably active & working. I am on most supplements recommended here. Does anyone have any great tricks for getting rid of brain fog? I wish i was batman & had some "anti brain-fog" spray. he had a spray for any tricky situation.
ANy ideas welcome!!!!
I have seen scientific papers stating that resveratrol & quercetin are anti-cpn. Has anyone ever had a herx reaction to them? ie proof that they work?
I am curious - if they do they will be another tool to kill those slimy suckers
CAP for 16 months
My mom has SIADH (syndrome of inappropriate diuretic hormone) where you excrete too much water & end up with low sodium in your blood.
Does anyone else have issues with this? Is it linked to CPN???
I had a dose of 15 mg of THC (tetradydracurcumin) on my skin & then got what i think was a herx reaction. Either that or got the flu by coincidence the next day.
I notice that others are using tumeric/curcumin.
-has anyone measured the antigen once the herx has started? If we are having a big release of C-reactive protein that is probably what knocks us about.
-does anyone have easy access to a lab that does this? we can play
Interestingly the reaction from the THC was far greater than any other abx i am on.
Will see what the brains trust comes back with.