Miying Meng's blog

July 2011- April 2012 update

Submitted by Miying Meng on Thu, 2012-04-26 23:02

2011 - July, Aug., Sept., Oct. (5 day pulses) Neurotransmitter testing Oct. Low in several. Serotonin, epinephrine, PEA and glycine. Doctor recommended I try Tyrosine Spray but stopped because it caused insomnia, chest pain (adrenal issues) Fatigue increased.

2011 - Nov. - Dec. (Continued 5 day pulses) Frequent testing shows no further liver ALT/AST high levels. (had high ALT/AST from doing some 13 day pulses)
Doctor recommended Rhodiola 15% rosavins (adaptogen) - Start: 11/11/11 - Helps with deeper sleep at times and a bit more stamina. Has the added benefit of soothing my stomach each morning as I start the day with it.

Question? D W's protocol method

Submitted by Miying Meng on Fri, 2011-07-22 15:52

I am a bit confused again so please bare with me. Darn brain fog anyway. 

I did three extended Tindamax pulses the past few months. My liver/gallbladder issues allowed me the following pulses on Tini; 11 days, 13 days and then finally 14 days before my liver ALT began to climb. So now I am back to monthly 5 day only pulses.

I actually feel better at start of Tindamax pulse until liver/gallbladder act up followed by a week of status quo and then slowly begin to ebb toward not feeling as good while off pulse until I begin next pulse.

Extended pulses proved therapeutic

Submitted by Miying Meng on Sun, 2011-07-17 20:52

My update for the last several months is quite positive. I hope it will give those of you struggling some hope for better days ahead. First of all, let me say I really appreciate those here that have given me help from time to time. I want you to know that I really do listen. Therefore, I have reaped the benefits for which I am very grateful to you.

Let me contrast my beginnings here with how I am doing now. Scale of 1-10 ... 10 being normal. When I first became sick I was around 2-3 in 2002. Using various treatment methods for several years and riding the roller coaster of my illness by the time I came here in 2008 I was somewhere around 5 but sinking fast. Miserable every day really.

Need help please, my latest Cpn titer result. :)

Submitted by Miying Meng on Mon, 2010-07-19 15:15

I just got some of my recent lab test results back. I will discuss with my doc soon.

 But first I was wondering what your thoughts are on my C.Pn titer result.  I have strictly used the Wheldon Protocol including all supplements (except B12 as curiously I test high for it.) Then after seeking a Lyme Disease diagnosis a few months ago I increased the Doxy. Doubled it with good results as far as feeling better overall now. But of course, I still do have waxing and waning symptoms and still cannot function 100%, etc.

Due to some sensitivity issues with some of the other tests I was taking I stopped ALL meds and supplements 10 days prior to my blood draw. The day of said blood draw I fasted. Here is test result for C.Pn below:

Happy days! My new doc & my ongoing progress.

Submitted by Miying Meng on Sat, 2010-06-19 16:22

Hello faithful Cpn members and newbies.

Persistence pays off! I just finished my #3 Tini pulse for this year. Did as many back in 2009 before complications with LLMD & tests detoured me for awhile. Anyway, this last pulse was interesting. I didn't get nearly as sick during the actual 5 day pulse. This time I had symptom increase the week after but even so I was not slain with unbearable symptoms. It was tiring and trying and the "Troll Queen" had a tamer & more limited visit. This week, which is 23 days later, I have been feeling quite good compared to all my days of illness the past 8-9 years. More energy, less pain and windows of actually feeling like a "normal person". As much as I can recall it, that is. lol

Restarted my CAP

Submitted by Miying Meng on Fri, 2010-03-12 19:22
Jan-Mar. 2010 - My blog update.

After the daily Biaxin doses the entire month of December, the month of January I went completely without antibiotics. I did continue with all the recommended supplements for C.Pn. Interestingly enough the brain pressure I was experiencing did not abate from the yeast treatment or without CAP. Nor did the numbness, with infrequent pain, in my left foot. I did begin to use Lauricidin in Jan. I painstakingly added a couple pellets each day so that I would not severely react. Even at the small doses it was obvious to me that it caused me immunopathology.

Aug - Dec 2009 Update

Submitted by Miying Meng on Fri, 2009-12-18 01:28

Aug - Dec 2009 - My Update

I have not done anymore Tinidazole 5 day pulses since August. I did take Doxy 200 mg. daily and Azithromax MWF until the end of Oct. Then my new LLMD asked me to get off all antibiotics for one month (Nov) then for the month of Dec take Biaxin twice a day. But I am getting ahead of myself. Back tracking now ...

My first party in 7 years!

Submitted by Miying Meng on Mon, 2009-07-27 22:16

6/29-7/3/2009 My first 5 day Tinidazole pulse.

It was a personal victory for me to take Tini for 5 days without excessive nausea or vomiting. I did not need to fight very hard the following 10 days to keep my cookies down. Ginger root tea leveled the playing field for me. The trick was to make it fast enough, pour it on ice and drink as fast as I could manage it. My gallbladder/liver was kept under control with lemon water everyday. Of course among my supplements besides the NAC is a herbal liver/gallbladder cleanser I take with meals. I cannot fail in my use of the above or yaeyama chlorella or charcoal but that is a small effort in this long ordeal to get well without a doubt.