macorn's blog

HELP -- burning up

I AM BURNING UP!!! I just took supps and within b5 min my face started burning. I looked in the mirror and i am RED. i can now feel this on arems and is starting down.  has never happened. i'm scared!!! what to do

3rd PULSE done

Finished 3rd blog -- 5 days.  I dislike them tremendously but I think it's because of normal reactions to metroi vs CPNi die-off -- extremely tired, weak.  I hope not.  I feel that my MSi is progressing to the point that I can't go very far at all with my rollator like I used to.  The reason I think I'm progressing instead of CPN die-off is because this progression began before I started CAPi.  I have never been tested; DO YOU THINK I SHOULD?  On the positive, I got a beautiful Himalyian kitten yesterday -- I think I'm calling her Baby Bleu -- I'll post a picture of her one of these days.   

At 2nd pulse end

I'm on the fifth day of my second full pulse.  I've had no problems and am wondering if I should continue the pulse more days.  The reason for the question is that I think I have read here (someplace) that more days are better.  I'd like to be off the pulse, I guess because I keep waiting for negative reactions and feel that days are consummed with taking pills, but if it would be effective to stay on, than I will.  BTW because I am not having negative reactions, I worry that this "isn't working" for me.  So, 2 questions: 1) should I go more days and 2) is it common to not have negative reactions.  This site is a lifeline and I actually feel close to you all.  Look forward to hearing from someone.  

Now taking Doxy the right way -- with food!

Today I started taking Doxyi with food after taking it wrong since I started!!  I was taking EVERY thing the very first thing in the morning on an empty stomach!  I don't know how I got the idea I was doing it right.  I'm through with my pitty party and am just happy I found out about the "right" way (thanks, Doglover).  BTW, it was clear in the FAQ section under the new Getting Started tab -- I had even read it last week -- guess I just didn't "see" it.   So, I don't have any questions or rants, just wanted to get this into "my journal" so I can look back in a few years and say "see how my mind was working THEN". 

I'M NEW

I finally got the nerve to post.  This is intimidating.  Live in WA state.  Was in Austin TX for 30 years with a cabin about 1 mile from Willie Nelson on Lk Travis.  Diagnosed 1990; now have SPMSi.  Have had all the usual treatments plus metal clips in spine with (now dead) battery in left hip (by Metronics) installed 1992 (that was not a happy time).  It did not ease my pain AND I cannot have a MRI because of the metal.  I don't have a supporting neurologist or GP so I would be very appreciative of help with supportive dr names.  I guess that's the pertinent info. Whew!  But I sure am glad to have been pointed to this site.  Incredible information.