Big Win

Submitted by MacKintosh on Mon, 2017-06-26 15:00

Hi, everyone.  Since there's nothing much going on here (though there's lots of work going on behind the scenes to update our site), I thought I'd tell you a little story.

After a lifetime of fighting what I thought was chronic fatigue, a bout of optic neuritis got me an MS diagnosis in 2005.  As most of you know, I did the protocol for six or seven years.  Within months, I knew it was helping, when NOTHING had helped up til then. 

There, but for the grace of God, go I...

Submitted by MacKintosh on Fri, 2015-01-02 03:28

I'm often reminded this is not the MS site, though many of us migrated here from ThisIsMS and a couple of other MS-centered sites.  Although this post is about MS, it's also about cpn infections and how they steal our lives.

I'm sure, had I not learned of cpn and its treatment, I'd have become Debbie Purdy, in my own way.  I'm so grateful I didn't have to. 

Live curious

Submitted by MacKintosh on Tue, 2014-09-23 22:44

Lately, I've noticed people in and around my life commenting 'because he said so'.  Today, it was a doctor who 'said so'.  Yesterday, it was a soccer coach who 'said so'.  Come to think of it, yesterday it was also an attorney who 'said so'. 

I was raised by two intelligent parents who treated children more as short adults than as difficult goats (apologies, Katman).  My parents encouraged questions, research, learrning, improving.  They rarely, if ever, said 'because I said so'.  As a result, I have always functioned better when someone explained 'why' to me, rather than 'because that's how it is'.

Which brings me to my point, if musings have a point. 

Spam and Missing Responses

Submitted by MacKintosh on Fri, 2012-01-20 21:42

Everyone, we have one tenacious and very prolific spammer coming here on an almost nightly basis, posting advertising links EVERYWHERE on the site.  Sometimes one of us will spot it immediately. (This is the benefit of having editors all over the world, in different time zones.)  Sometimes, it takes up to twelve hours for somebody to spot them, block the spammer and start deleting the dozens of posts.  Each post has to be deleted individually, which takes up to twenty minutes per spammer-slam sometimes.

I've been hijacked / spammed

Submitted by MacKintosh on Fri, 2011-09-09 12:36

This is just a blanket warning to anyone here who I've corresponded personally (off this site) with -

This morning, between 0759 and 0808 CST, my personal email account was hit by a thief and hundreds of spam emails were sent out FROM MY ACCOUNT. It has nothing to do with cpnhelp, except if you and I had a personal correspondence in the past, away from this site.

DO NOT OPEN email from me and do not open attachments. Several of my friends thought it was 'odd' that I'd send a viagra ad (really, like I'd ever do that), but they opened the attachment, anyway, and now their personal email accounts are sending out hundreds of ads to other people, and the stuff is spreading like wildfire.

Cold Turkey

Submitted by MacKintosh on Mon, 2009-04-06 17:27

Well, the good doctor and I have decided I should take a Lyme test, due to my recollection of a round, reddish circle on the back of my left calf some fifteen years ago. I'm off all antibiotics for the two weeks until the test is done. Just as when I started abx without hesitating, I stopped them without another thought; I trust my doctor implicitly.

So, from being in the middle of a flagyl pulse thirty-six hours ago, I went to no abx at all.  NAC and all vitamins and supps are still a go. 

This is so weird.  I feel like I'm waiting for the other shoe to drop.

Tuesday, 07 April 09