I finished my 7th pulse today but it is now changed from flagyli to Tindamax.  What a difference this pulse was!  I had very little reaction to Tindamax compared to how I felt after the past flagyl pulse.  I had one day (4th out of 7) where I was more tired than usual.  But not wiped out like flagyl does to me.  Also no nausea like I experience before.  And it doesn't taste yucky!  If I tolerate this well the doctor wants me to go for 10 days, which I  would do after the next pulse or two if things go well.  The only thing that worries me is if Tindamax is actually doing anything.  At least with flagyl I believed the "feel worse before you feel better" mantra applied.  What would be awesome is if Tindamax works just as well without the side effects of flagyl!

I just completed my 6th flagyli pulse yesterday.   It was supposed to be for 10 days but I struggled to get through 7 days.  I keep having recurrent UTIs and am on an additional antibiotic for that so the combination was a lot to take.  I suffered from body aches and nausea this time as well as another terrific headache yesterday.  Plus, I just don't feel well overall starting about the 3rd day of flagyl.  I feel toxic!  I will make sure I take anti-porphyriai measures regularly next time to keep the bad feelings at bay. 

Interestingly, today (with no flagyl) I feel good.  So I know it is the flagyl, and maybe the combo, that does this to me.

I had my 6 month follow up appointment at Vanderbilt on June 23.  We have been traveling ever since so my internet access has been sporadic.  I tried to send this once and after typing it all in the connection failed.  So I am going to try again!

I completed my 4th flagyli pulse on Wednesday May 21, 2008.  For those of you who don't know, I am following the Vanderbilt protocoli after I went to see the neurologist who prescribes this plan at Vanderbilt.  I started the protocol in early January.  The protocol that I follow is rifampin 300 mg twice a day, azithromycin 300 mg MWF, flagyl 300 mg three times per day for 7 days out of a month.  The flagyl pulse is considered somewhat aggressive and the doctor said that if I found it difficult to tolerate we would make modifications.  However, he wanted me to try this plan first.  I also take 2400 mg NACi daily, 4.5 mg LDNi and Copaxone, as well as a few other supplementsi.