Buhner Update

Submitted by lleach on Tue, 2016-10-18 00:52

I am still faithfully doing the Buhner Protocol, taking the herbs he recommends 6x per day. I also started the protocol for Lyme and the co-infections. After starting the co-infection herbs, I had some really rough days. They were as bad as I ever was on flagyl. I almost cut back but instead I upped cat's claw and started ibuprofen (both for their effect on inflammation) and upped my chlorella intake. Whether the herx passed or those three things helped, or a combination, I'm not 100% sure but I did start feeling better soon thereafter.

Buhner Protocol after relapse

Submitted by lleach on Fri, 2016-10-07 00:54

I haven't posted anything in a while. I thought I had got on top of CPn and that I just needed to build up stamina. Unfortunately, a few months ago, I had to face the fact that my post-exertion malaise was getting worse. I tried 600 mg of NAC and had a reaction. It took me a couple of weeks to get back up to 2400 mg per day. 

I am in a transition period with this. I was a patient of Michael and Dr. P and with the closing of their office I had to decide where I was going next. After reading about the Buhner protocol, particularly in the 2nd edition of Healing Lyme, and being a believer in herbs, I decided to give it a try.

Update on energy supplements

Submitted by lleach on Tue, 2011-05-17 00:10

Just over a month ago I posted about the bodybuilding supplements that I was taking to increase cellular energy:  creatine, beta-alanine, calcium pyruvate, d-ribose and glucose.  Since that time I have learned a few things.

This has been a very rough month.  My brain fog has been much worse than it was before.  I have been trying to counter it with even more glucose and, often, a second dose of ribose in the PM.  I also have been religiously taking charcoal and chlorella.

The price of energy

Submitted by lleach on Thu, 2011-04-07 00:11

Biology and chemistry were never my strongest subjects in school.  So it is a cruel twist of fate that I feel like I have to become semi-educated in the subjects as part of the my treatment.  Even with very competent doctors helping me, I feel like this infection affects everyone so individually that it helps to be able to tweak your own treatment with supplements.

I have been intrigued with the paradox of more energy and feeling worse.  It is a concept that I have been familiar with for years and one that has stumped my doctors who took it seriously.  For at least the last eight years I have avoided supplements that increased my energy level.  But my introduction to charcoal and chlorella gave me something more to work with.

Unexpected die-off reaction

Submitted by lleach on Thu, 2011-03-10 00:04

When I spoke with the PA earlier in the week, I asked if he would consider upping my abx dosages because I am tolerating the treatment well and higher dosages of abx prior to my Cpn diagnosis had had good results.  He assured me that boosting my immune system would do more than increasing the abx.

So that night I started taking Astragalus.  I have had very impressive results with Astragalus in the past.  Once in the late 90s when I was getting bronchitis every three weeks (like clockwork) I tried Astragalus because I read it was good for both the immune system and the lungs.  After I started it, I didn't get sick at all for the next nine months.  It was an amazing reaction.

Making progress

Submitted by lleach on Sun, 2011-02-27 02:33

I just finished my third pulse.  I was a little surprised to get the bad taste in my mouth that I have been reading about from others.  I don't know what it means that I didn't get it until the end of the third pulse.

First pulse - wow

Submitted by lleach on Sun, 2011-01-16 00:19

I just finished my first pulse with metronidazole.  My pulses will generally be 500 mg BID for five days, then two weeks off, then repeat.  I started with only 500 mg for the first two days to see how I would react. 

Day one I became a little sore with a weird, tingly sensation at the base of my neck and upper back.  I wasn't really surprised about this because my illness has involved neck pain at times throughout the years.  I had a slight intestinal response the first day, not quite diarrhea but I thought it was going to be.  Day two the pain continued and I felt a little squirrelly, mentally-speaking.

The learning process - exercise and onions

Submitted by lleach on Sat, 2011-01-01 23:36

It is interesting as I learn more about Cpn and its effect how pieces are starting to come together for me.  I always wondered - sometimes with frustration - why I felt worse for a couple of days after exercise.  After reading on this forum, it now makes sense to me that a) Cpn was stealing energy that my cells neeeded and b) exercise was causing some die-off as the intracellular pH was altered.  I had a first-hand experience with this again this week.  I went on a trip with my wife and we spent several hours one day walking around downtown Seattle.  I was exhausted that night but, unlike my pre-CAP days, I was not feeling ill along with the exhaustion.  The next evening I felt like I was coming down with a cold.  It was the exact same feeling as the NAC flu and when I first star

My story

Submitted by lleach on Wed, 2010-11-24 23:37

This is my story.  I imagine it is relativley typical for readers of this blog.

I became ill in 1990 with pneumonia, accompanied by extreme neck pain and fatigue.  I slept 18 hours a day and took codeine 4-6 times per day.  I was tested for everything they could think of.  I had a broncoscopy for a sputum culture that came back negative.  Gradually, over the course of about 14 months, I got better.  I continued to have lung congestion but my neck pain subsided and my fatigue was pretty much gone.