In 2004, I believe it was, I began this incredible journey, adventure, trial, name it what you will.I have recovered more of me than anyone ever suspected was possible. After many years I stopped all abx last January because after taking my daily doses, I was no longer having any reaction. I still continue with NAC, 30,000 units of sublingual B-12, all the other supplements, lots of vegerables, good exercise - in other words, trying to live well. I do have the essential goat milk ice cream milkshake every night when we come in from the barn.
Twelve and a half years is the time it has taken to get this far. This has enabled me to see my identical twin grandsons grow into wonderrful young men - they both graduated from the University of Michigan with a straight 4.0 GPA and are now enrolled for their Masters degrees. I would not have been here if not for this program. That is one reason I am so delighted that I have had this chance.
This has been a season of triumph and tragedy, with no time for cpn reading or posting, but the grapevine has brought news that there may be some "quitters" in our midst. That is hard to fathom- - surely we all realize that there is no room for that . This takes incredible persistence and self-discipline. I, for one, do not make a good invalid, and would bet that none among us do.It is now ten years for me and it is less that an hour since I took my morning abx, Doxycycline, Amonicillin, flagyl, and Rifampin. Tonight it will be those four and 125 mg of Azithromycin. I still get reaction but nothing even close to the knock-down flat that I experienced for so many, many years.
Or: spin, spin, spin, or drill, baby, drill. Most other things are really good. I have gone from a walker to my morning hour of near normalcy, then back to being flattened till about 2 PM.I am now well into my second round of abx, having done four years, four months, going back to the bottom, then nearly four years of five abx. The battleground is now behind my eyes and the fore top front of my brain. Go on - laugh, but I can FEEL it. Who ever knows the real locations of the activities in the brain is shaking her/his head by now bu I am the only one in there (ha), and this is how I describe it.
This is a very short blog to list another improvement caused by staying with this, living with this monster every day, and simply staying alive to enjoy the events that can happen in life.
A week ago we came home from the National Dairy Goat Show in Loveland, Colorado, a drive of four days - I do all the driving. When we pulled into the barn area our trip odometer said 2012.7. It was a four day trip - one of us was so heavy that he "couldn't get off the ground", so any upward slope slowed us to 50 or 55 MPH. There were four in our caravan going and three coming.We left July 3, arriving July 6, with eleven goats - ten milkers and one dry yearling. She went second in her class of more than fifty, with our milkers going tenth, fifteenth and sixteenth. We didn't get National Champion (did that before) but were pleased with our showings. And the trip was really wonderful!
Last week I had my check-up and got a wonderful more-than-passing grade. He began by saying that I (we here) are blazing a trail. He was, as usual, delighted with my physical well-being, my numbers (more about that later), and the way I looked - well. My numbers were all really good, with cholesterol total 237 - where it has always been - but as usual, my HDL (good) was 97. He always remarks on my ratio, which is phenomenol. My thyroid T4 was a tiny bit low: 0.58 - normal is 0.62 - 1.41. He thinks this may be from five abx long-term, and to call him if I am "tired". Ha! We know about "real" tired. I hope never to experience THAT kind of tired again.
Nearly seven and a half years ago I was approaching the beginning of a very personal war. It has been one battle after another, with a disengagement almost three years ago, then another full-scale, almost three year skirmish with all the big guns blazing away every day. (Since the closest I ever came to a real war was a father in the medical corps in WWII, my military-speak is pretty laughable, but it's honest!)
Yesterday I had my several-times-a-year checkup. My doctor is ecstatic over my progress. He has been pleased almost since the beginning, but is now even more delighted.
It is a very long time since I wrote a blog, so please forgive me if it is a ramble. As MacKintosh says, many of us have moved back into real life. I certainly have. But there is so much need here on this incredible site that those of us who have had so much returned to us have a real obligation to try to give encouragement to those who are struggling with this horror.