Katherine's blog

Genetic or secondary porphyria?

Submitted by Katherine on Mon, 2015-06-08 16:38

For the past month or so I have been attempting a low carb diet, leaning towards a ketogenic diet.  Lots of coconut products, low carb, grain free etc..  (Perlmutter and Wahls) 

For the first few days I felt fine…then I slowly became exhausted and sick. I have had multiple starts, so have seen a pattern.

I finally recognized the signs of porphyria.  Since I am not taking antibiotics, porphyria was not on my radar.

Now no alcohol (1.5 glasses of wine  made me sick to my stomach and in bed for an afternoon—2 x), red meat etc..  Reluctantly I pour on the carbs.  In two hours I can rest, and in 3-4 I can function again.  Though I don’t feel great, I don’t feel sick and can function.

Simplify for repeatable systems

Submitted by Katherine on Mon, 2014-12-29 15:19

Repeatable Systems

I know that this is long,  lol as in omg long,  but just in case this is helpful to someone….I went for the lengthy version.

Have been enjoying my communication with another on  this site :)  who has experienced significant progress on the Wahls Diet.  It is through his progress that I mentally revisit the beginning of my massive food change, and realized that I have a few things to share.  And, hopefully this will be of interest to me as I look back over the years.  Some is a repeat, but it helps to understand how I got to where I am today. Hindsight--so illuminating.

Progress....called "work for a reason"

Submitted by Katherine on Sat, 2014-12-27 23:08

It’s called work for a reason….

This is my housekeeping journal…no fluff here. It is the end of the year and looking over my progress, setting new goals.

I do have my life back—though I am still struggling with the Cpn bacteria. I just need to stir it up for it to let me know that it is still a big player in my life.

Though I attribute it to my recovery, I have not been a strict Wahls Diet person.  Though I may get there—it’s the organ meats.  Omg…but I can do salmon etc.. Most of the principles we had already been practicing. No gluten, no dairy (though I have hard cheeses occasionally), almost grain free, consume fermented foods (not consistently yet) and targeted supplements etc..

Methylation, something I should not have ignored

Submitted by Katherine on Sat, 2014-12-27 22:30

Looking back over the years I see that I should have focused on some issues sooner.  Part of the reason that I didn’t look closer into methylation is that, as soon as someone starts talking about it, I understand and then….blah blah…verrrry complex. Painful.  Until they say that you have to look out for your MTHFR.  See, that cracks me up.

Apparently, I have not one, but two, MTHFR mutations.  Dang.   One from my mother, the other from my father.  Having one is not uncommon or rare, and for that matter, two is not so much either.  But, still impressive to have two MTHFR mutations!  I just want to type MTHFR.

Turmeric as an antibiotic?

Submitted by Katherine on Fri, 2014-10-24 08:55

Have been doing pretty awesome these past few years.  (Turmeric note is at the bottom)

My most irritating symptom that remains is that my right foot wants to drop.  Exercising more, working out at the gym, though still not consistently.  Take a handful of targeted supplements. 
Things aren’t perfect—but I am in the game.

Somewhat between a Wahls and Perlmutter diet plan. I decided, after much thought and work, to devise my own—which is in the works.  Even making an as I go type of cookbook.

I need the intensity of the Wahls ketogenic  diet, and the support of the Perlmutter plan.   Since I am concerned about Alzheimers I decided to go at it pretty seriously.

Flying Without Wings--great book

Submitted by Katherine on Sat, 2013-11-16 21:55

I am writing this as  a blog entry--during some very low times --mostly last year--I discovered this book.  It was enormousely helpful to me and perhaps this will be helpful to someone else.

For fun I would often go to the Good Will bookstores (replaced Blockbuster Video--sign of the times).

Too busy with school right now, but one day will return to my mini shopping sprees. It is a wonderful library like experience, don't need to return them in time, and on certain days the already cheap prices are 30% off.  Sweet! I just love books.

Another step up....amazing.

Submitted by Katherine on Mon, 2013-11-11 19:03

I have decided that all these years I must have   been low on serotonin. For many reasons I started taking 5htp--mostly for sleep issues.  But my general mood is better as well.

Also started ashawaganda and astragulus.  Heavens....I can't remember all of the great reasons now.  lol One, my mother has early Alzheimer’s and ashawaganda is believed to help break up amyloid plaques.  Helpful for her, hopefully preventative for me.   But I again feel another boost in mood.  My   sleep is better but not perfect.  Much better overall.  Deeper sleep and fewer nights on the couch.  

Quercetin and Bromelain

Submitted by Katherine on Sat, 2013-05-18 10:03

Just a quick note as I feel great today--much work to do with the garage disaster....one day it will be a thing of my past!  lol     Just one of those projects that--due to many years of neglect with my illness--just seemed to grow and grow.  

So, I have been ill over the past few months.  Hard to explain--I still functioned but haven't felt great.  Wondered if I was depressed....you know, not happy, not miserable.   Kind of blah.

Looking back I had added quercetin and bromelain due  to my belief that I have developed Dupuytren's on my  right hand (small white lumps--easy to see on Google images).  I am convinced this is what it is since I have had symptoms of it for years and my doctor agreed.