I am blank for words and more at peace with having to deal with MSⁱ based on my MRI results that I had to pull out of my Neurologist after 3 years.

Hope all are well. I have nearly completed 3 months of IV antibioticsⁱ with 4 different midlines. I have done 3 months of Tygacil and 1 month of Rocephinⁱ with it. The first 2 months I was also on Rifampin and Tetracyline. I ended the Tetracycline and Rifampin as my liver and white count started elevating. I am lucky to have been able to withstand all the IVs without problem (other than the 4 midlines) and not much herxing. Many people, I'm told, have extreme nausea and extreme abdominal pain. I've had neither. A few times the herxing is large itching/tingling but overall those are minor and there are majority of days I have no reactions. I know I'm finally getting cleaned out.

FRS by Lance Armstrong is also a great product to provide energy and well being and effective antioxidantⁱ without crashing like you would from caffeine intake. www.frs.com They offer a free trial. No, it's not only for cancer patients You can get a powder mix, flavored chews, concentrate or already mixed in a can as a Red Bull is. It is quercetin and all natural vitaminsⁱ and yes has a small amount of caffeine to aid in absorbtion by the body but no more than equal to a 1/4 cup of coffee which wouldn't really effect anyone should that be all they drink of caffeine in a day.

Has anyone else been using this or knows of it? I highly recommend it. Zeolite is mean't to remove heavy metals from the body that the liver cannot handle. It is negatively charged and attracts the metals in this fashion as they are positively charged. You take it once a day. 1 teaspoon with 8 ounces of water or any other fluid should you require a taste to it. There is a liquid form also available should require it.

Hello all, This complete report was always asked for as it appears information gets lost when say the last MRI is only compared to the one prior. We now were able to get this report to eliminate any cumulative error over the past 2 years as my Neurologist now believes. Here are the results of the comparison of the very first MRI 5/4/06 to the latest 1/11/08- direct from the radiologist and Neurologist. **********************************************************************************

Hello all, I thought it would be helpful to share further good news following my last MRI report. I had a visit with my Neuroⁱ yesterday to go over my last MRI. I give him great respect for having the ability to look me in the eyes and say..., " you've made me a believer." (in the CAPⁱ treatment) After 2 years and no progression of lesions/disease from the start and you have improved so greatly, I am a believer." He then said patients usually in my case with such a severe onset only continue to worsen quickly and steadily from the beginning.

Further consistent results in MRI view. (Always done with GAD dye injection) Reason I have so many MRI's is since the last one I was enduring severe, at times, headaches and deep lesion pain in the head and always the same spot on the largest lesion over 1 cm on my right side. It would be times of what I imagine to be a spike inserted into the brain in these spots. Otherwise it is a heavy, sometimes burning sensation on smaller lesions and quickly goes away. Keep in mind. I never got worse physically after any of this. To me it has to be herxheimer on some level where the lesions are maybe opening up perhaps or something to that effect and the bacteria is on the run or dying. So these results after dealing with this is key to show nothing has worsened or changed.

Prior MRI 5/1/07. Last MRI 10/10/07. I like to push...Always with GAD for Brain, Cervical, Thoracic to show consistency. CERVICAL: MR evaluation of cervical spine is performed with sagittal and axial T1 and T2 weighted scans as well as post contrast sagittal and axial scans and a medic axial sequence. Comparison is made to study from 5/1/2007. The vertebral bodies are normal in signal, height and alignment. The spinal canal is widely patent. There is subtle increased signal within the medullar and extension inferiorly into the cord to about the inferior aspect of the C2 level. This is the best seen on the axial medic sequence. There is no appreciable change. There is no associated enhancement. Sagittal images suggest mild disc bulging at C5-6.

Hello all and we send our best. In the past, I posted about a TV special we were interviewed for that was supposed to initially air in January. The spot is ABC News Primetime Medical Mystery titled - Chronic Lyme Disease as it pertains to ALS and MSⁱ. Delays, delays and delays and it is already fall. My last update from the producer, as of 9/6/07, is the executive producer is waiting for the proper moment and feels summer is a slow season so they are waiting for the new season. The producer, the host and everyone in house loves the special and are anxious to see it air but were hoping for this summer. An air date is checked on weekly and I will be notified as soon as the producer knows. I will then re-post for those who may be interested in hopes to help anyone on any level.

MRI taken May 1st 2007, 3 hours on my back, results May 10, 2007, with Neuroⁱ are 1 year later since MSⁱ diagnosis. Results are consistent with past 3 MRI's since starting the CAPⁱ treatment. All lesions stopped in tracks, still, meaning no new lesions or enhancements and the neck lesion on spinal cord is smaller and on the mend. The numbness left to just my hands is only a light fuzziness and is slowly abating as caused by the neck lesion. There are times of the day when I feel no numbness and the duration is increasing.

Hello all, Just a quick note: Spoke with the ABC producer, today 2/20. No air date yet and also will not be in March but at least a couple more months til air date. She said the air dates change regularly so she isn't surprised at the delay. She said I would receive plenty of notice so as to notify the many people I mentioned to her that are interested. I've contacted family, friends and many clients at prominent Universities and Government Military bases. The special is coming along well and will be done by Jay Schadler. She stated I will like what I see. I look forward to being in touch with air date notification and wish everyone the best. Kind Regards, Karl and Alyson

We've been with the CPNⁱ Help site since I became ill, and we've gained insightful, profound knowledge and learned how much we have in common with many of you. Thank You. I haven't blogged til now as I never really felt up to the simple task. Also, as the treatment progressed, I wanted to know more perspective on how I was doing. There was/is still so much unknown. Here is my story. I hope it will help anyone who is in need of support or direction with respect to the antibiotic treatment.

 

Blog will soon be posted based on the perspective of seeing the results of treatment and our struggle to get there. 

May 4, 2006 diagnosed with Multiple Sclerosisⁱ  18-23+ lesions on brain and spinal cord.  (too many to count accurately, i guess.  all 16 doctors we've seen to this point are all amazed at my functionality/coordination in light of the MRI's)

Bloodwork showed negative/undetermined Lyme with 3 suspicious titers, showed past infection Babsiosis, showed past infection CPNⁱ and new chronic CPN infection.

 I have been on antibioticsⁱ and supplementsⁱ since May 6, 2006.  Currently on 5 antibiotics (IV Rocephinⁱ, Tindamax, Rifampin, Diflucan, Minocycline) (already went through Azithro and Mepron)  at the same time and daily doses.  No pulsing.  I will be finishing all antibiotics at the end of this month and will go off to see how I do.  Then I will follow with pulses, etc..  It's been a crude/rough 6 months, but have felt the need to hit it all at once and not draw it out over time.  We need to get back to living.