JJ's blog

Probable "eureka" moment for me

Submitted by JJ on Thu, 2010-05-27 13:03

Ok, so I've been on CAP for 8-9 months and have seen many improvements. Unfortunately, they've been places other than my biggest problem area. That is jaw, neck, mouth and throat pain, all on the right side. All of those have done nothing but get worse on CAP.

Saw my dentist for a checkup and also to have him check out a bony protrusion at the very back of my mouth (just past the scar tissue from my upper wisdom tooth extraction on the right side). 

He tells me I very likely have Eagle Syndrome, which is basically where an elongated styloid process (more than 30mm) is in conflict with the adjacent anatomical structures. The related ligament can also become calcified.

Shedding my skin

Submitted by JJ on Wed, 2010-04-07 14:02

A number of my blogs and posts have mentioned a lot going on with my skin, particularly my face and head, since beginning CAP back in October. The newest edition is both ears (and also maybe lower lip). It struck me today that what I'm really seeing is problematic skin shedding and being replaced by healthy skin.

Pulse #3 in process

Submitted by JJ on Wed, 2010-03-10 10:52

Just took first dose of Flagyl on day 3 of my 3rd full pulse. (plus two mini-pulses). Nearly started this blog last night and it would have said "entirely uneventful."

Woke up this morning achy and excessively tired. My wife has been sick this week, so it may not have anything to do with the pulse. Interestingly, most of the jaw pain and extremely sore throat from last week has dissapated, improving each day of the pulse. 

This morning's dose of Flagyl + 100mg doxy did result in some nausea. Some dextrose (Pixy Stix, lol!) solved that right quick.

Piecing it all together

Submitted by JJ on Mon, 2010-03-08 15:35

Started my third full pulse this morning. After a rough weekend with a really sore throat, I think I've figured a few things out.

I may have a CPn infection, but I suspect it's co- rather than my primary problem. What's the primary? Lyme.

Right around the beginnings of all of my problems, I went to the doctor with 5 complaints, along with my normal sinus stuff (which was corrected surgically around the same time).


1. Circular rash on my left hip

2. Joint pain, particularly shoulders and elbows

3.  Muscle fasiclations

4. Oral discomfort and a lesion on my cheeks (inside)

5. Seeing little bug-like things floating in my field of vision. "floaters".


DX was:

1. Ringworm,

Explosion of pain

Submitted by JJ on Thu, 2010-03-04 14:49

By far, the biggest problem area for me pre-CAP and especially during has been the combination of sore throat (right side, around the scar tissue from my tonsilectomy), TMJ (right side), some discomfort in the inside gumline on the right lower jaw, and musle and possibly lymph node pain in the under jaw/upper neck area, and neck and upper back pain.

 Last week, all of those were really pretty good. Minimal TMJ issues, minor sore throat and minimal pain in the neck and back.

Starting Monday of this week, every bit of that is individually as bad as it's been ever. I haven't changed the protocol at all this week and am nearly a month out from my last pulse.

The optimist in me says this is a sign of the abx going to work in my biggest problem area.

Odd return of old injury symptom

Submitted by JJ on Thu, 2010-02-25 11:37

Other than the rosacea on my face making major improvements, the other thing I've been able to point to as progress on CAP is that I've regularly had old symptoms return. Sometimes they're things that have not been an issue for years. Sometimes they're old symptoms that had largely gone away.

The latest is rather odd (to me) and it may signal that I've been dealing with CPn for longer than I would have guessed.

I was a catcher in baseball from the age of about 11 up through my freshman year of college. Once pitchers started throwing hard, I regularly had the thumb jammed on my glove hand. Probably a 100 or more times over several years.

Pulse #2 over and out

Submitted by JJ on Sat, 2010-02-13 11:05

Pretty uneventful, really. Started last Saturday with 500mg flagyl. 500 again Sunday. Drank too much during the Super Bowl and had a pretty craptastic Monday, but that was pretty clearly a result of the overindulgence, not the pulse. Despite feeling bad, moved to 1,250mg flagyl on Monday and stayed at that level the rest of the week. A little nausea once or twice, some increased pain and sinus activity, but not near the first full pulse. Thursday and Friday, I actually felt pretty good all the way around.

Trying to not freak out

Submitted by JJ on Thu, 2010-01-28 11:18

I'm having a disturbing new symptom that's messing with my head a bit.


In late 2004, I developed parathesia in the soles of both feet. Over the course of a few days, the tingling/numbness worked it's way up, eventually affecting everything from my belly button down. MRI revealed a lesion on my spinal cord from about T-5 through T-7. I had the typical battery of tests for MS (lumbar puncture, evoked potentials, bloodwork, etc) Eventually my neurologist said he believed the lesion was caused by an excessive immnue system reaction to a virus and the official DX was "acute transverse myelitis."

Results - taking stock at 4 months

Submitted by JJ on Mon, 2010-01-25 14:35

Having a rough day today, just generally feeling unwell and not at ease at all. Decided to look back over 4 months on CAP (two mini-pulses, one full 10 days ago) about what's happened with my symptoms.


Oldest and/or most bothersome symptoms - 

Sore throat on right side - considerably worse

Neck, jaw and upper back muscle pain - Jaw is massively worse. Neck about the same, trapezius trigger points seem to be improving (all on right side)

TMJ dysfunction (right side) - much worse

Ear pain, popping, fullness (right side) - worse

 Rosacea  on nose and cheeks - much, much improved. Not completely gone, but reduced to a light pink

Oral lesions - no change, but likely are not infection-based.

Experimenting with caffeine

Submitted by JJ on Fri, 2010-01-22 12:14

After reading Paul's posts about caffeine as an adjunct, I started taking it with my Doxy and Azith (eod) several weeks ago.

Lately, I've been experiencing nausea with my doxy-taking. Today I decided to experiment a little. 

On waking, I ate a handful of cashews and downed 100mg of Doxy. 30 min later, I got my one-daily large Diet Dr. Pepper.  Two hours after taking the abx, no stomach upset, no noticeable effects at all. On to breakfast.

3 fried eggs and a piece of toast, plus 300mg of doxy.  Waited 30 minutes, no noticeable effect. Down 300mg of caffeine pills. 30 minutes later, heavy duty nausea.