jeanneroz's blog

The Elephant(s) in My Room – Blog Update

Submitted by jeanneroz on Mon, 2011-08-22 00:16

I haven't posted much and my last blog update was in May of this year. I wish the reasons were because I was enjoying a recovery and had my health back, but it's not.   I now join the ranks of some of the others here who came to this site about the time I did.  

 

Last week I had Bioenergetic Testing done which indicated I have:  Bartonella Henselae, Babesia Nosodes, Mycoplasma Fermentes, Borrelia Burgdorferi and high levels of systemic yeast (as well as EBV, HHV-6 and CPN) -- "my elephants" and reasons for not recovering. 

 

Decorum on a Forum

Submitted by jeanneroz on Sun, 2011-03-27 10:20

 

Decorum on a Forum

I have been reflecting on this topic for some time as I participate on this site. (I have been a member here since 2007.)  Some activity over the last several months, and as of late, prompts me to express my feelings here in my blog

We are a diverse group and come here to participate for many different reasons - some out fear, some to confirm their sanity, others frustration with doctors, others to find support, and to ask questions.  This IS the ONLY dedicated CPN support site.   It was my lifeline when I was so very, very ill and still is one of the few places one can go to have comrades who understand what this process is about.   

Time to Add Rifampin?

Submitted by jeanneroz on Fri, 2010-11-26 15:55

What started as a severe sinus problem is now in my chest (again).  I am still having debilitating malaise, deep chest coughing, running a low grade fever off and on.  I have been taking Tini continuously now for a little over a month (as well as Doxy and Roxi).  I am still doing the neti pot, Mucinex (seems to help), nasal sprays, etc.   I still have what appears to be swelling in the mandibular area of my face.

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InterFase Plus and Biofilms

Submitted by jeanneroz on Thu, 2010-02-11 10:15

Last Wednesday, I decided to start the InterFase Plus for the treatment of biofilms.  I was curious to see what, if any, type of reaction I would have.  The recommended dosage (on the bottle) is 2-8 capsules per day.   Additionally, I have a schedule obtained from an autism parent given to her by the autism doc, Dr. McCandless, but it is too agressive IMO, for me so I decided to only take it on M/W/F,  the days I take both Azith and Doxy. (I switched back to Azith, from Roxi January 2010). 

Pulse #12 Culminated with an ER Visit

Submitted by jeanneroz on Sun, 2009-10-11 19:01

For my records here….. I started pulse #12 on Sunday, October 4th.  I have been tolerating my pulses (for the most part) decently.   The first 2 days the left side of my head felt clogged with cement.  My left ear, eye, lymph nodes, sinus were painful.  Right knee painful.   Total inability to concentrate... first 3 days I felt as if I were in "suspended animation" and all I really did was “zone out” and stay in the house.

Trying Roxi instead of Azith

Submitted by jeanneroz on Sat, 2009-09-26 19:35

This is day two of switching from Azith to Roxi.  I have a few months' supply and thought I would switch out one of my ABX since I have been on this protocol for about 2.5 years.   My CPN titers (in June of this year) are still very high.

I really didn't think there would be any noticable change, but today I am having definite endotoxin reactions (red, scratchy eyes),inflammation ( my knees and hips are stiff), my legs feel like mud and it's more difficult to walk today.  Extreme fatigue.

Definitely notice Roxi doesn't seem to have the immunomodulatory effect that Azith does for me (so far anyway).

JeanneRoz