Submitted by JaneK on Mon, 2017-12-18 11:42
  1. Exlwejs  sxjust a question to anyone who can put my mind at rest!

i’m cutting  back the 4  modFiniil (provigil) i tKe each day for fatigue, as it ,owerso blood pressure and ialrsDy havs those symptoms. EHowever, i feel dreadful.  Typing this is so hard, so many mistakes. i feel dreadful,  nauseous and dizzy,  worried of leaving a anything on the stove, and so very  very tired.  

Pulse is a bit low, but  BP is ok. Anyone else?


Here we go again!

Submitted by JaneK on Thu, 2017-12-14 08:20

I’ve checked, and this is definitely pulse 6 and I finish tomorrow.My BP feels low (i’ll check when i have the new batteries) and i’m expecting the hypotension to be psychosomatic, which concerns me. Why am i prone to self imposed suggestion?  

Prior to dx, i realised reds and greens had become muted, i didn’t lose all colour perception, but, suddenly, these colours are vivid again! overall everything is even more blurry than before ... good, because i love being a guide dog owner and, truly, don’t mind that my reflection is in soft focus! 

Some improvement!

Submitted by JaneK on Sat, 2017-11-25 13:37

I'm killing time, so will tell you about the news from my guru! i'm very superstitious, so waited a while to share, besides which, I've been feeling terrible....! Julia massaged my leg, helping my drop-foot, which feels like it stems from my knee. Both legs are affected, the left is the most bothersome, and the problem is intermittent, but, extremely, frequent. However, I slur less and less, in fact now only slur when I'm shattered. i've seen Julia, as a herbalist, masseur and friend, on and off, for a few years now. When my husband saw her last, she confirmed what I knew, that of her MS clients I'm the only one who's improving, that I haven't degraded in the time she's known me, that my speech has become clear and that I'm doing something right!

How daft am I?

Submitted by JaneK on Sun, 2017-11-19 08:38

How daft can I be?  On Friday I finished what, I think, was, actually, pulse 5, but I'm not sure and need to check my diary, when I'm not cuddling my injured dog, whose happiness  is more important than counting!  But, with the need to test for myself, against advice, on my birthday, I had a couple, only a couple, of drinks, while pulsing Metro. For anyone else who needs to find out for themself, drink at home, ill effects weren't immediate, but fairly quick. I didn't throw up, but I could have done! I felt nauseous and exhausted for a couple of days. I'm realising that improvement, for me, really is incremental, but it's there. I'm sure I'll step back again, but every good day tells me that I'm on the right track.

Pulse 4!

Submitted by JaneK on Fri, 2017-10-20 06:08

Nearly done! Two more tabs and I get three weeks off! And, yes, it has been tough, as DW and Sarah warned me. I've been much better at taking my ABX on an empty tummy. I lost so much weight when I was first diagnosed, I was very skinny! But, 10 years later, I'm putting weight on, maybe too much, but I've a feeling it's good, and I feel sure, I'll be walking my very loved guide dog, soon.

It goes like this ...

I pop Metro as soon as I wake and again, about, 8 hours later.  The third, again, 7 or 8 hours later, just before bed, taking Roxy an hour, or so, before tea and Doxy, after, and supplements then, although I sometimes forget, but always take Bs.