Just got results back from Advanced Laboratories saying I have active Lyme disease!!!!!!!!!!!!!!!It says active borellia infectionsⁱ.

I need to start researching, but does this mean my foot drop is from Lyme? Is this why my neuroⁱ couldn't be sure I had MSⁱ?  It's confusing. Do I have all 4? MS, cpnⁱ, lyme and ccsvi?

I'll consult with Dr. Powell.

Ok, really bad right now.

I could use some help. What do you mean by glucose? Can I get specifics? I feel like throwing up and crying.

For the last 2 days I've taken my Rifampin at bedtime, 2 hours after food. Then the charcoal if I wake up a few hours later.

I still wake up a little nauseous but food helps. As does sucking on a piece of candy.

Are there any drawbacks to this?

Thanks!

My treatment protocol is a little different than the three main ones. I wonder if it's a mistake.

 Doxycycline 100mg twice a day. (working up to 200mg) 

Aziithramycin 250 mg one every MWF

 Rifampin, 300mg, daily.

It is most like the Weldon, with Rifampin replacing Flagylⁱ.  I wasn't told to pulse it.

I haven't gotten charcoal yet. Is it important?

I'll ask Dr. P, but wanted your opinions.

(I also take NACⁱ, Nystatin and supplementsⁱ.)

Thanks!

Hi fellow cpners, just wanted to remind you to take your abxⁱ 2 hours before and after your supplementsⁱ. I hadn't been doing it. I just re-read something from Sarah, which I had overlooked before.:

Ok, I was only off for 10 days. But I am so happy to get back on track with CAPⁱ. Dr. P is having me go slow. So I'm only taking Docycycline twice a day, and NACⁱ. I'll check my liver in a week, and then step up.

I asked Dr. P if I had been tested for NMO. It is more rare than MSⁱ, but often gets misdiagnosed as MS. I'm having the test done tomorrow. I'm surprised we don't hear more about it. I probably don't have it, but it's best to rule it out. My neuroⁱ still can't say I have MS for sure.

Hi,

I am researching everything I can on Neuroⁱ Rehab. In addition to PT to strengthen muscles, I want to get the synapses firing to re train my body to walk correctly and my fine motor hand skills to return to my left hand. There is much to be read about electrical stimulation, but I am looking for people who have had good results. I tried the Lokomat once. Am curious about FES bikes. And whether simply walking barefoot on the beach does it. (if only I could.). There is also a Glidtrak and Glidecycle I found online.

I tend to try everything, and hope to save time, money and effort by avoiding some paths based on all of your experiences. That's just one of the reasons  I love this support community.

Thanks.

Sunshine

Dr. Powell just called me back. He is the most caring doctor, truly.

I had been waiting all day, to get the results of my blood test because my ALT was at 47 and now its over 100. He said it's either the antibioticsⁱ killing the cpnⁱ in my liver, or it's a drug reaction. I had been anticipating good results so I added Rifampin today, after only being on Doxyⁱ and Zithro.

I will try NACⁱ again, and lose the Amoxocillin. I'll also stay on Nystatin. He also said to go ahead with the IV Steroids as per my neurologist.

I love that I can talk to him. He is a rare find. He processes and reasons with you. He recommended Saccharomyces boulardii, probiotic.

Who can I talk to to edit my account? thanks!

Ilisa

Hi,  Test results are positive for CPnⁱ. I took my first dose of Doxycycline, and Nystatin. Tomorrow I add Azithromycin and in 2 weeks, Rifampin. My ALT #'s were high so I need a blood test before Rifampin. I'm going to buy some charcoal tablets, and also have Prednisone handy. I also need Folapro.