horses12's blog

air gasping? what could be the cause?

Submitted by horses12 on Tue, 2009-07-21 08:03

I have had trouble sleeping sometimes due to some strange air gasping symptom. At first I thoght it was anxiety but find that I feel like my breathing is out of whack. Not sure if this makes any sence, but could anemia be a possible cause?

My ferritin level has been as low as 13 and my skin looks so pale.  I was reading that a low thyroid could also cause this symptom. The thyroid test keeps in the normal range so, what to do now?


I hate this.......


what to do nausia

Submitted by horses12 on Thu, 2009-07-09 08:09

I have been having problems with eating lately. In the mornings it's seems the worst and now it has turned into severe nausia. Can anyone give some advise on what seemed to help them trough this phase. 

I also need to update my signiture as I still have not started back on my antibiotics due to vascular issues. Maybe this could be the cause.

Thank you all.


journey to wellness update

Submitted by horses12 on Thu, 2009-06-04 09:49

I thought it has been some time since I gave an update to my progress. As I sit here trying to write my update, I feel disappointed in myself that I have not pulsed and moved forward with more improvements.

It began with elevated blood pressure and chest pressure and then I started having difficulty in walking. This made me conclude I have some kind of vascular issues that were getting worse on the antibiotics. I started with Diovan as need for when my blood pressure was out of control , but then my feet started turning red and blue.

fibrin and brain fog

Submitted by horses12 on Mon, 2009-04-27 11:47
As the months have gone by,I was hopeful for a better update. I have hit another road block that has put me on pulse hold. My doctor has been trying to figure out my circulation issues. I was seen by a cardiologist and had echo and stress testing done. All the test came back normal. And then my blood work came back to find that I have a fibrogen gene defect. My body is producing to much fibrogen and this causes sticky blood and circulation issues. This is known to reduce oxygen and nutrients making it to cells. I hope this is making sence, as now I Know why my brain fog is of the charts. I was wondering if anyone has used heprin?

what is going on...strange fear and anxiety

Submitted by horses12 on Sat, 2009-03-21 07:54

I have not been able to sleep a full night lately due to a strange kind of fear.

 My thoughts have become my worst enemy and I can't seem to shake it off.  Is this a normal process that everyone must go through? the loneliness you feel because no one seems to understand you are sick.  My friends invite me places but my legs feel so weak that I find myself concerned on how much walking I may have to do. 

My balance is off again and I feel like my body is swaying. So how does one function when you can't do much and can't sleep?

 Thanks for reading my blog.


hypertension due to plaque or coagulation issues

Submitted by horses12 on Fri, 2009-03-06 18:17

These last few weeks have been pretty tough to say the least. I have had the pleasure of staying in the hospital in the telemetry unit for two days as the doctors scratched their heads not knowing what was causing my hypertension. I was reluctant to go, but had no choice, as my feet were turning cyonotic and my toes swelling like red balloons.

After being placed on high blood pressure medication and sent home, the problem was still not addressed to the cause. I am keenly aware of cpn being a vascular problem, but what is going on?

that uneasy feeling has come upon me

Submitted by horses12 on Fri, 2009-02-06 10:14

I am in need of some help right now!

These last few days I have'nt been able to hold it together and I don't know what has changed. Feelings of confussing like never before and extreme fear have crept in. Yesterday I held off on all antibiotics to see if I would have some relief and today is real bad.

I am having trouble with walking again, very stiff in my right leg and lower back. And very dizzy and hard to concentrate.

The only thing I can see diffrent may be the yeast problem on my tongue that has developed, but I have been taking the oregano oil for it.

Maybe I haven't been taking my charcoal and cholest. like I should?

I am treating my adrenals with hydrocortisone, half of a 5mg. tablet four times a day.

Update on starting pulsing

Submitted by horses12 on Sat, 2009-01-24 09:56


Friday, I had my monthly appointment with my doctor and was wanting to hear her mention..... YOU ARE DOING GREAT, SO LET'S START THE PULSING.

Needless to say I am very disappointed to report once again, I am on hold. Here is a overall update to my health quandry.

My feet have been turning cyonotic(BLUE) and I have developed a slight case of vasculitis. It happens when  I'm cold or when I take a hot shower.

My adrenals are having trouble with the chronic illness along with my thyroid. Although, I am very aware of this during treatment from doing research and reading others blogs, I feel horrible.

Here is my doctors game plan, and I would like to know form others about their opinion.

You may have Wilson's Syndrome if..

Submitted by horses12 on Thu, 2009-01-08 09:34

My doctor is concerned I may have wilson's syndrome.

Now I am thinking to myself, oh great, another illness to add to the list. But wait, after further investigation, this may explain many symptoms. 

This condition is better known as, 'Wilson's Temperature Syndrome' . Let me give you a review of how the doctor explained it to me. 

the big 7 month update on cap

Submitted by horses12 on Tue, 2008-12-02 19:25

I have been able to make it to the seventh month of cap and it has not been a easy road. When I started the Wheldon protocol my legs had gotten to a point they were so weak I could bearly stand ,and walking forget it. My husband had to get a wheelchair to help get me arounnd. My children would go grocery shopping for me and then come to the car and help me into the store so I could pay. If I had not been my own health advocate and found a doctor who had compassion and could see how sick I was my life by now would have been a nursing home.

I look back at the seven months and can't believe the strength God has placed in me to get me through this challenge.