gkirilova's blog

Noticing a change 2 months in

I am really glad to report a positive change since I've started CAPi.  My first symptoms when I became ill were digestive issues.  That is when my IBSi began.  I have had uncontrollable sugar cravings ever since (8 years).  This is definitely due to my candidiasis, which feeds off of sugar, and the cpni that allows the candidiasis to grow out of control.  Anyway, I just ovulated and usually would be going to the grocery store for a box of twinkies and cherry turnovers.  The craving would be so strong that I would give in every time.  It's not just feeling like sweets but you have to have it.  It was like a drug addiction.  I am a very healthy eater and would feel guilty for every twinkie I ate but I felt better after my sugar fix..for a while anyway.  This is a huge deal to me b

Not ready for 200mg doxy yet

I have more fatigue than before I began CAPi for sure.  Also my stomach's been very fragile and it seems that nothing is on the "safe to eat" list.  My CFSi began with IBSi and I know that the bacterial loadi is probably very high.  I'm popping probiotics like candy though and trying to get as much done as I can around the house.  I don't have terrible reactions but I wonder if I should take any moppers.  I don't know much about the moppers but might have to look into it. 

Sinus infection draining my little energy supply

It's been almost a week now with this darn sinus infection.  I'm crabbier than usual and am just dragging.  So I guess double the doxyi isn't going to make much difference because I feel like hell already.  I want to crawl into bed and not come out for a while.  My accomplisments have been laundry, supper, errands, dishes and house cleaning.  I should focus on what I have accomplished instead of what I wish I could.

Tried 2 doxy this morning

I thought I'd try two doxyi this morning instead of one that I've been on.  Right now I want to be put out of my mysery...ha ha.  I was just in the shower and feeling very dizzy and out of breath.  My poor husband was told to leave me alone.  Poor man, he's been handling it very well.  He just asks me if I'm feeling lousy and then lets me be.  Those those buggers don't like all these meds.  I honestly cannot complain because I've heard horror stories from others about their porphyriai and so on.  I'm doing well compared to some.  I want to get on the full dose of everything as soon as possible without distroying my digestive system.  I have Candidiasis, but with a probiotic I've been able to control it.  It doesn't help that I have been sick with a sinus infection on top of it al

My CFS Story

In the winter of 2000 I came down with appendicitis.  I went into surgery and things got better even though I was quite weak.  Things were supposed to improve after the surgery but did not.  I had a lot of pressure in my abdominal area and pain.  They did an MRI I believe and found that I was bleeding internally.  Apparently a blood vessel was punctured during surgery.  I had cysts on my ovaries drained during surgery and it might have happened then, who knows.  Anyway I went back into surgery that same week and got a drainage tube placed in my abdomen.  My hemoglobin was at 7.5 and at 7 they give you a blood transfusion.  Thank goodness I didn't have to go that route.  I lost about 15 lbs in two weeks.  I couldn't eat because the morphine shots gave me nausea.  Easiest 15 l

Hard to be a Type A personality with CFS

Probably one of the hardest things for me have been not being able to go to school and "make something of myself".  Also watching my body go down hill physically hasn't been easy.  I can't wait to lift weights again and get rid of the flab.  I wish I could do something about it but with CFSi physical exercise is difficult if not impossible and my muscles are so weak that it wouldn't do much as far as weight loss or firming up anyway.  I only need to lose about 10-15 lbs anyway but being a young 29 years it is hard to see other girls in shape when I would like to hit the gym but can't.  It is also difficult to say that I am a home health aide because I could be so much more than that and I don't even want to bother to explain myself when people ask about what I do.  If anythi

Horrible stomach ache on Saturday

I took my first Azithro on Fri the 3rd.  Yikes it cost me $90.  Ouch!!  I might look on the internet to get it cheaper.  Thank goodness it's only M, W, F.  Anyway I do have Candida/IBSi whatever you personally want to call it.  So I'm used to stomach pain and discomfort.  However on Sat I had a horrible stomache ache all day.  Also partly on Sunday.  Now sometimes I don't even realize I have a stomach bug until days later when someone else comes down with it in the family because I always blame it on my Candidiasis.  But now I'm wondering if it was the azithro, a bug, or just my candidiasis.  I'm taking another one on Monday night so we'll see if I have a stomach ache on Tues.  If it was the abxi, that will be great because something is reacting to the abxi

WooHoo!! Feeling Worse.

Yes, I'm happy that I'm not feeling well.  Something's happening. Usually after I ovulate I feel like I've been hit by a train.  Yesterday I had pain in my lower back and the muscles in my shoulders ached.  Usually my symptoms aren't this bad so I'm attributing it to the 100m doxyi.  I have CFSi not fibro so pain is not normal for me.  I'm sooo glad to have other people to keep me on track and see them plugging away despite the symptoms.  So far it's nothing I can't handle. 

Beginning the journey

I began my CAPi journey on August 10th.  It was such a great feeling to actively be doing something that would not be treating the symptoms but actually get to cause of the illness. 

I've now been on doxyi for about a month and a half and wondering if I should be starting azithromycin.  Due to the replies I've gotten from others, I've decided to begin the next step when I see my dr on Oct 2nd.  So far I haven't had any problems with doxy.  I've been taking Lactinex, a strong probiotic, and it has helped me tremendously. 

Medical school may still be in my future if I can get back to a 100%. I had to give up the dream 8 years ago when my CFSi started.