cypriane's blog

Joyce's CAP Log: The Beginning

Submitted by cypriane on Fri, 2007-06-01 15:30

May 15, 2007 was my start date. I took 100mg doxycycline for 5 days with very mild reactions: 3-1/2 year old hysterectomy scar turned red and itchy for 2 days, eyes red-rimmed for a day, residual puffiness and redness underlying 3 month old surgery scars on cheek and upper lip increased for 1 day, then "deflated" to a lower profile than before.

Steve J's Update: "Deja vu all over again"

Submitted by cypriane on Sun, 2007-05-20 19:08

This is what I wrote 5 months ago, about a week following Steve's 2nd pulse:

"This morning I noticed that......the whites of his eyes are unusually white for him.  Something unusual happened during Mass this morning.....he drifted off to sleep during the homily (not unusual), but...the sleep had been very unusually deep, something like a loss of consciousness. When he woke from it, the sanctuary seemed darkened for a moment and his tinnitusi was suddenly much louder than usual."

A Year of Pre-Protocol

Submitted by cypriane on Fri, 2007-05-11 18:34

I started taking the recommended supplements one year ago, went through NAC flu, and I have felt generally better except for periods of high stress. After a lifetime of frequent acute respiratory infections and maintaining a constant low-grade sinus infection, since starting the supplements, I have been free of those acute infections and free of the symptoms of chronic sinus infection (except for a nagging little dry cough). There have been times of minor allergy symptoms when the mold spore counts, or mountain cedar and ragweed pollen counts were high, but they have gone away when the counts lowered instead of launching me into an acute sinus infection as they had done in the past.


Submitted by cypriane on Sat, 2007-05-05 19:51

I apologize for the wide text spread, but after many attempts at getting rid of it and

having lost this post three times already, I'm going with it as is.  Since the real value of

this post is as a reference list, I don't think the wide text field will matter much (unless

it causes a site problem).

Please read the attachment first for an understanding of why I have posted this

reference list.  I hope it will help you, but please use this information cautiously.

The following is a compilation of resources I've been gathering for the past nine months

on lauric acid/monolaurin/glycerol monolaurate/Lauricidin.

Query~Implications of Negative Liver Testing

Submitted by cypriane on Thu, 2007-04-26 13:50

Occasionally we have a site user who has to take a break from abx due to liver enzyme testing with results indicative of damage. Of course, it's difficult to discern exactly what's causing the problem. But if someone is doing something exotic, let's say, like a CAP for example, the antibiotics will be the # 1 suspect in their physician's view, and the doc orders a break from the abx and anything else that could be problematic. Momentarily, whether or not the culprit has been one or more of the CAP antibiotics becomes a secondary issue, the primary consideration being the abstinence from anything that might be contributing to liver stress until the condition is resolved. Then the suspects must be sorted out and dealt with.

Steve J's Update: Approaching a Corner?

Submitted by cypriane on Fri, 2007-03-09 00:01

With 5 pulses behind him, we are anticipating what will come in the CAP phase of pulses 7 - 9. Some of the CAP "old-timers" report that phase to be one of turning a corner in the treatment, a time of having reached appreciable improvements when drawing a comparison to their conditions before starting the CAP. We recently opted to do the pulses on a four-week cycle from start of pulse to start of next pulse. This is working out better for Steve because his post-pulse period is a full two weeks. At least he has near 1-1/2 weeks of "normal" time. That "normal" time is really the only time to assess his progress on the CAP, and so far, we are very encouraged by the results.

Is DCA the same thing as naltrexone?

Submitted by cypriane on Mon, 2007-02-12 06:52

I just read a sketchy thread on another site that leaves the impression that DCA (dichloroacetate) is naltrexone. DCA was the subject of a recent post from Ron, but I can't find it now. The article Ron posted was about DCA as a safe, cheap, long out of patent drug that has already been in use for a long time. The big recent news is that it has been found to kill cancer cells by waking up the cancer cells' mitochondria which then signal apoptosis. So can anyone verify if naltrexone and DCA are the same?

Joyce~caregiver-advocate in Dallas for Steve (SPMS)-Wheldon CAP since Aug 06

Buddy List?

Submitted by cypriane on Tue, 2007-01-30 11:23
I've just discovered this new feature, the "buddy list." Poking around, I discovered that someone who is already a buddy had requested me to be a site "buddy." Question: What are we supposed to be doing with this feature that we are not already doing? And how do you "operate" it? When I think of all those I want to be my buddies, the list of names seems endless. There isn't anyone on the site I want to exclude. Are there dues involved? PS: That last question was a "tongue-in-cheek" query, but Michele's ingenious tongue-in-cheek punctuation isn't working out since the site overhaul. Joyce~caregiver-advocate in Dallas for Steve (SPMS): Wheldon CAP since Aug.06 for Cpn+Mpn; antivirals for EBV+CMV; completed heavy metal chelation; LDN.