cypriane's blog

Mother has duodenal ulcer/on abx now

Submitted by cypriane on Wed, 2009-04-29 12:48

Last week my mother was hospitalized with the symptoms of tarry stools, weakness, cold sweats.  Endoscopy discovered an ulcer in the duodenum located over an artery.  To make matters worse, she's been taking Plavix for several weeks.  If she had waited much longer to seek help, she would have bled out and died.

Yes, tests confirmed that H. pylori caused the ulcer.  She was given Vancomycin by IV for a day, then switched to a medication called Prevpak that contains amoxicillin, clarithromycin, and lansoprazole (a proton pump inhibitor).  She'll be taking the Prevpak for 2 weeks.  And yes, I'm pushing the probiotics.

Steve J's Update: Abx change and more

Submitted by cypriane on Fri, 2009-04-10 13:18

Last Saturday marked my 3rd anniversary of signing on at Cpnhelp.org.  Finding this site was the result of sacrificing television during Lent in 2006 and a strong desire to find a meaningful treatment for my wonderful husband who was declining fast on Rebif, one of the mainstream MS drugs.  I can't thank Jim, Marie, Bleu, and any others enough for the work and heart that has gone into starting and maintaining Cpnhelp.org.

2nd Try at Graduation

Submitted by cypriane on Wed, 2009-01-28 17:42

Today is my last day on full-time CAP.  I tried to graduate about this same time last year and fell flat on my face (my CAP started Spring '07).  For those who don't know me, my problems are:  high blood lipids, adult-onset diabetes, arthritis, hyperostosis, and osteopenia (depositing bone where it doesn't belong and losing it from where it should be denser).  There are other minor complaints, but those are the main ones.

Steve J's Update: Lost Job

Submitted by cypriane on Fri, 2009-01-09 14:58

Steve was laid off this morning along with many others in his company. Any layoff is life-changing, but I fear life as we have known it has reached a definitive end. Steve feels pretty hopeless that he will ever be employed again, and in this economy at this time in his life, he's probably right. Still, he will seek help from agencies who help the disabled find work.

In the meantime, he's already filed for state unemployment benefits, and I'm tackling the task of filing for disability benefits. Even though we both knew it was a fair possibility, we are both like "deer caught in the headlights."

If there's a word to describe this feeling, the one that comes to mind at this moment is BEREFT.

Genetically Engineered Food for Thought

Submitted by cypriane on Tue, 2009-01-06 10:19

Lots to think about here from a few different angles:

***********************

 

NAME: Agrobacterium

IMAGE WIDTH: 12 microns

IMAGE CREDITS: Shirley Owens, Microbe Zoo Project, Comm Tech Lab, Michigan State University.

Steve J's Update: One-week break, then new abx

Submitted by cypriane on Mon, 2008-09-29 12:04

The following is what Steve's LLMD prescribed, but I hope it also does something for his Cpn and Mpn infections:

1st:  One week off all abx (to observe what happens and to entice Bb out of cystic form and into spirochete form).  This ended yesterday.

2nd:  Begin new course today of Biaxin and Ceftin.  This started today, and we have no inkling what effect it might have.  They're not noted for good BBB penetration, but Lymies' BBB's lack integrity.  So, maybe there will be some neuro benefit by virtue of leakage.

This past week off of abx was interesting:

Day 1 - Crummy

Day 2 - Pretty good

Day 3 - Crummy and tired

Day 4 - Very good with exceptional bladder function

Day 5 - Crummy with pretty good bladder function

Unmitigated Gall

Submitted by cypriane on Fri, 2008-09-12 13:23

My main die-off symptom is fatigue---I'm a limp, sleepy dishrag while pulsing.  Dr. X recently switched my pulse pattern to 10 days on/10days off.  While riding to work this morning, I mentioned to Steve that I would start another pulse on Monday.  In a very frustrated voice, he asked "When are going to be done with that?"  "When I'm well," I replied.  "When are you going to be well?!" was his very exasperated comeback. 

Can you believe it?!  How would he feel if I asked him that question, especially in that tone of voice?  No, I'm not hurt or angry; it's strangely funny.

Joyce's PBS Update: A breakthrough

Submitted by cypriane on Mon, 2008-08-04 10:24

Those who "know" me know that I have Potbelly Syndrome issues and other issues that are equally pedestrian. The only difference between me and billions of other middle-aged women with pudgy midsections is that I discovered that my common maladies are linked to chronic Cpn and other chronic infections, because I found this site while investigating meaningful treatment for my husband who has MS.