arthritic's blog

Need help re: CAP or thyroid effects?

Submitted by arthritic on Mon, 2009-10-12 11:10

I've been on CAP for almost 21 months with the exception of a 3-4 weeks break over this past summer. Never had a problem with stool. The worst I've had in these months of CAP was a soft stool 2-3 times a day.

Well, a couple of weeks ago I switched to a different thyroid regiment - I decreased my Synthroid dose and added Armour Thyroid instead (together to match my previous dose of Synthroid). At that time I already had been on Flagyl pulse for 5 days in addition to my 3-abx CAP. I do Flagyl pulses as long as tolerated. When I started new thyroid treatment, I noticed frequent soft stools which was welcome b/c on Flagyl I usually constipate. However, over the past 2 weeks it slowly got worse and today I am having completely liquid stool but without any cramps or pain.

New thyroid regiment

Submitted by arthritic on Fri, 2009-10-02 09:38

This week I switched to a new thyroid regiment. Instead of 100 mcg/day of Synthroid, I am taking now a combo of Synthroid 50 mcg + Armour Thyroid (canadian equivalent) 15 mg x 2/day.

I've been only a few days on this and so far the result is amazing. Some hours of the day I feel like a normal person (with the exception of the joint issues). I mean my head is clear and I can think. My "drunken" & unbalanced feeling is reduced to almost nothing. Though I do experience brainfog late afternoon. I am going to take my second dose of Armour earier in the afternoon today to counteract this.

My workout in the GYM yesterday felt very easy too and my digestive tract working just fine. I am just crossing my fingers it's going to last.

1 year and 9 months on CAP.

Submitted by arthritic on Thu, 2009-09-24 18:11

I didn't even notice how time went by. It's been 1 year and 9 months since I started CAP. When I started, I thought I'd be on it only for a year. Then I hoped to stop at 2 years mark but now I see that I may need a bit more time b/c I still have a few unresolved symptoms.

I am guilty though for taking about 3-4 weeks break from treatment this summer. It happened sponteneously. I ran out of meds, didn't refill on time, we needed to go away for vacation, oh well, many excuses. The truth is that I am burnt out.  I put myself back on track but I can't wait when the treatment will be over. 

Generic Levaquin question

Submitted by arthritic on Sun, 2009-09-06 08:12

My provider changed my CAP and gave me an Rx of Levaquin instead of Biaxin. Also, changed back to Bactrim from Amoxicillin. And I continue to take Mino and Flagyl pulses.

Well, I looked everywhere and it seems that in US  I only can get brand name for Levaquin which is expensive and out of my price range. I see that some online non-US pharmacies have generic Levofloxacin for various prices. 

If anyone  has good experience getting generic Leva from online, could you please let me know where? I am kind of unsure if it's OK to buy non-US generic brand from unknown place b/c who knows the quality? In US all generics have to be complied with the same regulations as brands but that may not be true for other countries.

Do I add more drugs?

Submitted by arthritic on Wed, 2009-06-03 08:03

I saw both my endocrinologist and my CAP prescriber this week. I have a painful heartbeat that's been bothering me mainly with some movements and deep breaths. So my endo wants me to take Advil in addition to my CAP. My CAP prescriber didn't have any suggestions in that regard but wants me to add Diflucan into the protocol for possible candida issues just b/c I've been so long on abx.

Right now I am taking Amoxicillin 1000 mg x 2/day, Clarith 500 mg x 2/day, Mino 100 mg x 2/day, Flagyl 500 mg x 2/day. If I add Advil and Diflucan, would it be too many drugs for my poor liver? On the other hand, I'd like to try something for that painful heartbeat.

Any thoughts? Thanks for any input.

My new dr

Submitted by arthritic on Sat, 2009-04-25 21:16

My previous LLMD who was my CAP prescriber moved out of state and I transitioned to another dr in the same practice group. Yesterday was my first appt. I was a bit apprehensive to change the dr but I am happy now I must say.

My new dr has a different approach to the disease in terms of that he treats whole body. If my previous provider just gave me CAP rx, this dr wants to address all my conditions - hypoT, hypertension, nutritional issues, wants to check heavy metals as well. He even asked if I have a ObGyn and do regular pap smears.

Stopped Rifampin & switching to Biaxin.

Submitted by arthritic on Mon, 2009-03-30 11:03

I've been on Rifampin for about 14 months and finally decided to stop it. My LLMD has tried to take me off of it for the past 6 mns numerous times but I was reluctant. My dr is subscribing to the idea of changing protocol at least partially every 3-4 mns, 6 mns at the most or as soon as a patient hits plateau.

Multiple factors played a role in this decision:

A) I suspect that I may have developed resistance to Rif.

B) I'd like to take it out of equasion due to its possible interference with my Synthroid absorption.

C) I'd like to challenge my symptoms with a new abx and there is no room in my protocol to add another abx without removing an old one as I am already on 3 abx + Flagyl pulses.

Can bacterial cryptic form develop resistance to Flagyl?

Submitted by arthritic on Sat, 2009-02-07 18:38

Yesterday I took my first Flagyl 250 mg, no reaction. Today took 2 x 250 mg and started to wonder, is it possible to develop resistance to Flagyl if taken in small doses? I'll be increasing the dose in future pulses if tolerated. My dr wants me to take 500 mg x 2/day for 14 days a month eventually.

First CAP anniversar, progress report and thoughts...

Submitted by arthritic on Tue, 2009-01-27 22:14

It's hard to believe but I am on 13th month of CAP treatment. I started on January 02, 2008, twicked my protocol a little for a couple of months. Since March'08 I settled on Doxy 200 mg/day and Rifampin 600 mg/day. In Nov'08 Bactrim was added twice a day. 2 weeks ago I switched from Doxy to Minocycline. So, right now I am on Mino + Rif + Bactrim.