Cpnhelp.org

Hi all

I am writing again in the hopes of some advice as i didnt receive much of a response.

Summary:

51 yr old australian woman, with chronically remitting, unexplained symptoms ie joint pain, headaches, utis, nausea etc

I re developed severe thoracic joint pain with headaches late April 17

Stem cells ( had a bad cold) in may. Mild asthma like symptoms phx childhood asthma

2 days later, 1st episode rapid af

2 days after this, respiratory symptoms. Initially thought to be asthma exac by a respiratory infection. Didnt respond to medication

Symptoms are..low grade fever, cough, shortness of breath especially on exertion, chest tightness and a feeling of suffocation.

Fever responded to keflex.

Tests;

Oral lipoic acid, a powerful antioxidant, has been found to reduce the progress of brain atrophy in secondary progressive MS.

Here is a link to this fascinating paper. http://nn.neurology.org/content/4/5/e374.full.pdf   The trial was a small one, but the authors hope to conduct larger multicentre trials in the future.

The day before yesterday I walked home, an easy peesy walk, wearing my ruck sack, which had very little weight, but some. As I reached the end of my street the weight threw my balance off, so I couldn't help but stumble backwards into the road and fall. Thankfully our quiet road was empty so, having righted myself, I continued on my way, staying close to the wall and now I take hubby out with me. I've always been very, very strong and capable and walked fast, but can't now,so this scared me, and convinced the neighbours that I'm a boozer! I began pulse 2 today with a little trepidation but realised my vibrating ear drum has been quiet for a few weeks, so I'm feeling it willall be worth it, just take David's advice, to be careful of falls, seriously!

Here is a fascinating paper entitled “Neuroprotective mechanisms of astaxanthin: a potential therapeutic role in preserving cognitive function in age and neurodegeneration.” Link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5352583/  The complete paper is available as a pdf. 

Astaxanthin supplementation sounds a good idea.

Hello everybody,

After much exploring and reading this very informative site, and after much thinking and hesitation, I have decided to finally make my debut on here.

I have been suffering from Chronic Fatigue syndrome since being a teenager in the late 1980’s, but have only been diagnosed in 2011.

Hi folks, pleased to say that Terri completed her 41st pulse yesterday, improvements are still coming slowly but more importantly they are staying with us.The pulses are much easier now but it is still apparent that the Tinni is still doing its job. Tiredness and extra inflamation during or after pulsing is now down to just a few days and is so much easier to cope with.

Can anyone tell me where the entry, pith the link to David Wheldon's piece, coming down to his conclusion that chickenpox is not causal in MS?

Thanks

Jane

also, I realise I've posted too much! Sorry!

So strange to say that feeling dreadful, nauseous, weak and tired, as I do today, reminds me that I'm only four months into CAP, but haven't felt this way since I began, whereas I often felt this way previously!  I have drunk alcohol, although not much, and have been to several functions, involving a bit of travelling. Maybe I'm being'Pollyanna-ish, but isn't that better than the alternative?

A couple of hours ago I popped my first tini tab of this, pulse 43.  When this strip of tinidazole is finished, that will be my last tini pulse; I have no more.  I have a box of 21 metronidazole that I brought back from Spain latest autumn. If I do decide to pulse after that, I'll pick up some more metro when I'm in Madeira.

I am currently still taking rifampacin. That supply is due to run out in October too. It'd certainly be great if I could look back then and say that I am now fit.  Being realistic is no fun at all.

Froggy:

Two tabs more and my first pulse is done! I've been lucky,  although I may not be, in future! I've been, a little, nauseous, I've been tired, but not horribly fatigued, as before, my remaining sight has been dreadful and my, already dodgy, leg turned to lead! And I've laughed at It all! I have also felt invincible! Doing something positive is so much more empowering than just allowing MS to do its worst! CPN is cruel, self-worth is powerful And good!