Time Flies

Submitted by hdwhit on Wed, 2022-11-09 15:15

I was suggesting this site to someone I recently discovered has M.S. when I realized I hadn't actually been here in a while.

The biggest recent development on the M.S. front is that my neurologist, who has been skeptical of the CAP treatment, ordered an MRI (I guess so she could point out progression that just HAD to be there). 

Testing for the Bad Bugs Again

Submitted by raven on Thu, 2022-11-03 01:23

Busy, busy me. Finally made time to see my naturopath and get some testing done.
T4 is a bit low so she may start me on a glandular thyroid supplement.
Cpn is up. IgG is 1:64.
EBV is high. I just really hate that nasty virus.
So I have lots of reliable herbs for EBV
Such as: Larrea, Lemon Balm, Licorice, Lysine and Bee Propolis.

Mymom_andme22 Have 325 pages of hospital records from 1976

shawn002
Submitted by Guest (not verified) on Wed, 2022-09-28 23:27

On the way to me now. Endocarditis, resistant to everything back then, except one doc had a few tricks up his sleeve. I wonder what mysteries will be unlocked from that two and a half month stay. Her persistent vague symptoms/conditions have endured/evolved over the years. Parallel with this site's info. Anxiously awaiting to see what bugs and drugs were/are in the mix. Mom and me have some reading to do!

11 year and 2 months update

Submitted by boadicea on Sun, 2022-08-14 08:49

It was pointed out to me yesterday that my last update here was in 2016 – that was my 5 year and 5 month update – so, as we are now able to post here again, it seems like time for another update.  This site tells me I have been a member here for 11 years and 3 months, so that must make this my 11 year and 2 month update.

 

CAP for CPN for person affected by ALS

Submitted by minow69 on Thu, 2021-12-30 13:10

Hi to everybody, congratulations for this wonderful website which gives hopes to people who haven't any left due to hospitals and doctors carelessness.

I am Italian and my wife is Turkish we live in Istanbul, my wife was diagnosed with Bulbar onset ALS in May 2020.

95% of the doctors who visited my wife said that there is nothing to do.

The problem is that I do not want to give up and I am becoming a doctor myself. We have had a CPN PCR test and it was positive

I have tried Dr. William Reid Protocol but my wife did not tolerate the antifungal agent. 

CPN treatment with Health Revival Partners (US)

Submitted by mamatriagain on Mon, 2021-10-11 18:00

Hi.  Has anybody been treated for CPN by Health Revival Partners (in the US)?  I listened to an interview with their doctors, and they focus heavily on testing/treating CPN.  Seriously considering using them, but would like to know if anybody has any experience with them, or if not...is there another US-based doctor/practice that does telemedicine (prefer not to travel)?   Thanks!

https://www.healthrevivalpartners.com/product-page/chronic-disease-temp…