Second month on abx

I suffered with progressively worsening pain in my hands, wrists, arms, and shoulders for 4 years. Last year, I was diagnosed with polymyalgia rheumatica and had such severe pain by then I was prescribed 20 mg of prednisone to try to alleviate the progression and pain. However when I dropped the dose biweekly per doctor instruction, the pain was returning.  Although I did what the doctor ordered, over time the pain was getting bad again and I couldn’t get below 10 mg.

Still uti? Porphyria? Imagination?

I’m so sorry for banging on with the same subject!

i thought i had a utii, tests said no! I took the poor man’s porphyrin test‘, it also said no, although the urine was deep yellow, almost golden, but i had been drinking coffee!  Usually my urine is pretty colourless, although sometimes cloudy! My fatigue and weakness is severe, although, it had seemed under control! I really am at my wit’s end,


What a difference a day makes

Little things can mean a lot.

Although I do not dwell on it, I cannot deny that my mobility has slowly but surely become steadily worse over these years of MSi.

Just started pulse # 49

I will be late for my own funeral. As per normal for me, I am late starting this pulse too. This is pulse 49 and will be a mixed pulse; half tinidazole and half metronidazolei. I only have a few tini tabs but I have a box of 21 metronidazole (7 days supply). I'll use a few out of those for this pulse. My next pulse will be all 5 days on metro. After that, I have no idea how I will proceed. I have only ever taken metro once before ... and it was surprisingly OK.

In the meantime, I better get myself a script for some azithromycin; I only have 3 left. At least they are easy enough to pick up.



Fall down or sit down

After my last pulse i seemed to develop a bad utii. I seemed to be responding very well to the capi whenj, the day i finished the Metroi,  i became, suddenly and totally, exhausted. Stupidly, i hadn’t taken my  probiotics, those 5 days.  I must have looked dreadful because i  went to an event where a lot of people were trying to make me sit down, which i had to do anyway, sit down or fall down ... no choice, really! The last time i felt dreadful, i increased my B12,hugely! I took D Mannose and gave up all refined sugars. i’ve sent a sample to the GP, but haven’t heard back, so it must be clear! What on earth could mimic cystitis or utii?


How did you feel?

pulse 7 is, by far, the hardest yet! i haven’t measured my BP, but i feel very faint and tired, my breathing is not easy and my shoulders ache. If i were a quitter i’d stop, but i’m not. I know Sarah described her fourth as the worst and i know we’re all different, but could anyone tell me their worst?

Pulse 7

Day1 of pulse 7 and, so far,  i can feel the abxi! Which, i guess, is a good sign!

But, in truth, i wanted to post about vitamin B12, and, strangely, just saw Rica’s  response to a different post,, mentioning her intake of it.

Pulse # 48

Very late starting this one. I could try and blame Father Christmas. Twelfth night has been and gone. So, here we go: pulse 48 with tinidazole

New Year - New Life

I completed the Wheldon Protocol for MSi several years ago. 

Since then, my follow-up MRIs have all been "remarkably stable".  I don't hide the fact I did the Wheldon Protocol without medical supervision from my doctors - in fact I shave the documents and the MRIs under their noses any time they will let me.  Still, only my primary care doctor (who is an O.D., not an M.D.) is willing to believe the treatment had any effect on the disease. 

That's too bad for the other patients who could be helped by it, but great news for me.

NAC as a partial cause of high uric acid?

I have higher uric acid over the past 2 years am and looking for the cause (s). Diet is fine. I read that NACi in larger doses can cause this...

I am not on abxi anymore, but have maintained the NAC dosage in the Wheldon protocol. Is there rather a "maintenance" dose of NAC to take instead?

I would like to try that to see if urate levels go down.

Thank-you Mack.

I’d like to thank Mackintosh, in particular, for defending this site from interference.  She could teach all our governments a thing or two!

Thyroid and MS ... and Bint!

Well, Christmas is over, again and, as usual, i couldn’t be more pleased, it was lovely, but i always exhausting, busy and expensive, although since we began giving quite large donations to different charities instead of some presents, it’s easier and feels so much less wasteful.

immune system

If the brain is in control as stated by scientists at the university of virginia in june 2015 then how is it called auto immunei, it dont make sense to me, the brain is directly connected to the lymphatic system according to these scientists by vessels not previously thought to exist, only bacteria would impede it from doing its job , after all 10 trillion bacteria cells versus 1 trillion human cells is apparently what we have,, think we are heavily outnumbered, can we still rely on Thunderbirds for assistance, anyone know?. Robert.

immune system

if the brain is directly connected to the immunei system by vessels that have previously not thought to exist, then why is diseasesi called auto immune disease, when the brain is in control, what am i missing here, can anyone comment on that.Robert

Happy Christmas, Everyone!

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