Blog posts

Herx

Submitted by JaneK on Thu, 2018-04-26 04:47

Herxing quite badly, but, such good news, really!

Thank goodness for this site, otherwise I wouldn’t know that I feel terrible because I take large doses of vitamin D, or that my response to NAC is, probably, die- ofF. I felt wonderful last week, and, now, realise that I could reduce my supplements, increase moppers, and accept this deal means the CAP may take longer, but I can choose! What I  can‘t and won’t do, is cut back, or pause, the ABX. I guess this is what feeling toxic is!

oh, and good luck with the upgrade, Mac!

Jane

Menopause or perimenopause and hrt.

Submitted by JaneK on Thu, 2018-04-19 07:23

i know lots of people have been here, so they’re in a perfect position to advise Me ...  please?

i read, somewhere, that hrt stops adequate absorption of B vitamins or one of the abx, doxi, roxi or metro. I had chemo (for MS, several years ago, which put me into premature menopause, although the menses began again after several years, but I’m 50 now, and it’s happening for real! 

would anyone advise?  i gave up hrt, but am getting severe fatigue and nausea, so would like to start again. I am extremely gluten intolerant so , probably, have absorption issues and pernicious anaemia.

Jane

Pulse #50

Submitted by TandT on Wed, 2018-04-11 05:28

Hi everyone, Terri completed her 50th pulse yesterday, which was her third 10 day pulse with 10 day intervals. We built up to this with three 7 day pulses and a nine day pulse at normal intervals after reactions were virtually un-detectable by pulse #43.

We have tried to increase the Tini on two previous occasions and quickly had to back-track due to lack of recovery time between pulses causing increased weakness, so we find it extremely encouraging that this attempt sees no build-up of die-off or weakness.

Pulse # 51

Submitted by supaguy on Tue, 2018-04-10 21:22

Late as per usual, I started pulse number 51 yesterday lunchtime. I have a strong lead but am conscious of JaneK coming up fast on the inside.

For any spectators wondering how come I'm late yet again, I always have an excuse, and this time itsi a good one. JaneK has commented that it's been a while since I last posted ... so I'll do a separate post featuring my excuse.

Smile

G.

"Here she goes again!"

Submitted by Sarah on Sun, 2018-04-08 12:19

"Here she goes again!"  You must be saying, but please could some people occasionally pop into Thisisms.  I am about to post there that they can find the correct address for this site at the bottom of one of my webpages, but if they come here and likewhat they see, they will have a lotof trouble to try to join.  Thank-you all!.....................Sarah

Double figures

Submitted by JaneK on Thu, 2018-04-05 13:20

At last, i’ve reached double figures, but, pulse 10 is even more difficult than 1-9, which, maybe naively, i’m taking as a good sign. In my ignorance, reacting means the cpn is being wheedled out of more of its hiding places! Even so, i look forward to tomorrow night, and my last Metro tab, this month!

Jane

Pulse number 1

Submitted by pjdelambo on Sun, 2018-04-01 23:40

In my last entry, I had made it down to 7 mg of prednisone. Today I am down to 3 mg. I also started my first pulse of metronidazole. So far so good! I seem to be a bit tired but am uncertain if the metro is causing it. Any feedback is appreciated!

Thank you!

Trish

Natural way to kill CPn

Submitted by Irene4k on Sun, 2018-03-18 06:39

Not been on this site recently so forgive me if this info has already been shared.

I continue to research and try to take my health forward, and an ongoing battle is sorting out my gut.  I've had this problem since age 4, when I had my first hospitalisation with CPn.  t seems I may have found my answer!  

One day wanerding around in my local Sainsbury's I saw Roquefort Cheese, made from raw sheep's milk, in an area of France from a particular breed of sheep, and ripened in caves traditionally.  I've not taken dairy for years, but I so yearned for a piece of that cheese that I gave in.  My gut has considerably improved!  I have since been wondering why, and I found this article on pub med to share with you all.

Cytokine raction?

Submitted by JaneK on Sat, 2018-03-17 12:05

when i first contacted David Wheldon i was going mad, i was having cognitive issues, as well as many MS issues, High doses of B12, as  methylcolbamin , taken sublingually, sorted this out and, in doses is expensive, but less so than not taking it!

anyway, once again, i’m having cognitive issues, simply put, i can’t work out which hand, or foot to use, i’m only 50 and have no personal or familial mental health issue.  Could this be a cytokine reaction I’m quite bright, usually! But worried! I’vw returned to the handbook and hope ths s a cytokine or die-off response.  I began cap a year ago and finished my ninth pulse 8 days ago.

please tell me!

jane

2 Years on CAP Improvement

Submitted by panc on Tue, 2018-03-13 12:01

Two years on CAP and the improvements are becoming more obvious. Before I started the CAP I was fainting and feeling terribly sick almost every few weeks, It's more than a year now since my last fainting and sickness episode. 

Also it's about four months in a row that my heart area feels normal and not swollen or with burning and tearing sensations episodes. The weird and skiped heart beatings are long gone and only a few very minor ones occur very rarely, they are so minor that I literally smile when it hapens, I know how bad it was before.

By no means I feel 100% "cured" but it's definetly a huge improvement, I will continue for at least one more year if not more, I don't want to stop early and risk relapsing.