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One more time

Chills yesterday afternoon.  Had to call care attendent to help me get in bed.  She left my powerchair with the front casters sticking out forward.  I felt okay when I got up around 5:30am...weak, but somewhat mobile.  Used my walker to move over to the powerchar and got my legs all tangled in the wheels.  Hit the floor.

No damage done, but had to call the troups to lift me off the floor.

Doxy and Azithro for strep

Would anyone know if instead of the azithro 3X a week only, if I could take it for 5 days in a row with the doxyi? Just the 5 days.....Strep...

Pulse # 42

I'm a little late ... but I stated tinii pulse 42 a few hours ago. Still hoping for magic.

G.

Six and a half weeks

Feeling like I'm getting worse, I've been horribly depressed (although I'm over that now) a bit nauseous and weak and generally MSi fatigued.  I, initially, wondered if the abxi weren't doing their job, but, realised that feeling worse is still movement and that, although it doesn't feel good, I should probably blame (an oxymoron) improvement!  Hope my improvement improves soon!

Cpn treatment for Chronic fatigue - 1 year in

I have been on CPNi treatment for Chronic Fatigue for over a year now, and have been very bad at keeping tabs on this forum. I have done really well until the last month or so, but I really just followed the protocol, and stuck on a relatively low sugar diet, which seemed to help me in the past. Right now I am struggling a little, and realizing that I need to keep better tabs on the forum: to receive your collective help and help others too. I struggle to keep up with my email and so stopped getting the automatic messages. In fact I mostly struggle to keep up with my life in general - I have a family and am the sole breadwinner - somehow I've managed to keep up with a fairly demanding job, but it's very challenging.

Still here

I stopped the abxi for approx two months due to stomach issues. 

The panic was too much and i am now back on the train.   Just finished a three day pulse with Ornidazole.   I was feeling the effects.  I may stick to three if it is too much.  


Jam







Lift legs on bed

Hi all
I hope someone can help here. I am reaching desperation now….

When i walk my feet are so stuck on the floor that in order to move with my walker is daunting! 

I only walk from sofa to toilet from bed to toilet from bed to landing

Go on my bottom down staircase, husband needs to lift my legs up the stairs

This is so desperate, and when i finally make it to the bed my legs don’t lift up and my upper body is not strong enough to do anything . 

I see many of you have just started msi but is there someone in same situation? Please reply saying how you do it! 

I am most of the time on my own kids in school husband working so this is now quite upsetting…..

20 days in!

It's been nearly thre weeks, I'm taking Doxyand Roxyi and some supplementsi, including NACi.

I've been taking my ABXi twice a day (Doxy after breakfast and Roxy 12 hours later), but today I've decided to take them together, after my evening meal, remembering that they multiply in strength, when taken together, but I don't know if this means concurrently!

A few side effects, but nothing to write about and nothing no-one else knows!.

Sarah warned me to expect my early  progress to unravel, and it has, it 's good to know this is normal.  but what could be more onerous than the permanency of MSi disability? 

Jane

Pulse # 4I

Tinii pulse 41 nearly finished. One more tab to take at lunchtime and I'm done.

11th 12th 13th Pulse

11th and 12th pulse gave me some really bad headaches, maybe because I acted really stupid and did not use any mopers.

13th pulse, I felt only the usual flagyli "anoyances" that reminds you that you are on flagyl, like metalic mouth taste, very slight nausea etc

Another one.

This time i went to bed at normal time, watched some TV for awhile, and went to sleep.  Woke at 1am...chills...lasted until about 2:30.  Went back to sleep.  Woke at 5:30.  Tried to get out of bed.  Legs gone.  Went back to sleep again.  Woke again at 7:30...struggled...but finally got out of bed.  Legs not real cooperative, but I was able to get in my power chair without falling.

Its now about 1:30pm, and I'm feeling better.  I can stand and move around in my chair.

Overall, I've bee feeling okay for the past two months.  Not great, and I do have trouble co9ntrolling my body temperature...flucuates between 97 and 100 F.

At last!

I haven't ever believed MSi is incurable, nor do I believe it's a stand-alone, simply definable disease, but what do I know? My neurologist had a, surprising, change of heart and , although British law says he could be struck-off if he prescribed so many ABXi, he intends to monitor my progress.

Pulse 40 (2nd with rifampicin)

In the early hours of last Monday (27th) I started tinidazole pulse 40. A couple of hours ago I took my last tini tab of this pulse ... and I'm still here. Hey, this has been two pulses in the same month! I have found this pulse less irksome than the last. I am weaker than ever but ever hopeful. The weather has been dreadful with torrential rain and blustery winds, so I haven't missed brisk power-walking along the Coastal Path (yeah, if only!).

Seeking Rheumatologist in New York Area - But Will Travel

Hello, I'm new to the site. I found you in comments on The Perfect Health Diet site (authors, Jaminet). I'm 52 and have been declining in health for the past 10 years. Once very fit and active, cycling and bootcamp almost daily, I started struggled with muscle pain, joint pain, and fatigue around 2007. I'm suspecting either Lyme or C. pneumonia infection. Symptoms initially seemed like classic Hypothyroid, though TSH was always in range, so my old doc would not treat me. 

Things that happened around 2007: I divorced, moved to a home with a garden that came with a lot of yard work, and bought a summer cottage in Long Island near the Ferry to Connecticut, where I also did a lot of yard work.

Long and hard - but it works.

In 2004, I believe it was, I began this incredible journey, adventure, trial, name it what you will.

I have recovered more of me than anyone ever suspected was possible.  After many years I stopped all abxi last January because after taking my daily doses, I was no longer having any reaction.  I still continue with NACi, 30,000 units of sublingual B-12, all the other supplementsi, lots of vegerables, good exercise - in other words, trying to live well.  I do have the essential goat milk ice cream milkshake every night when we come in from the barn.

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