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Quercetin and Bromelain

Just a quick note as I feel great today--much work to do with the garage disaster....one day it will be a thing of my past!  lol     Just one of those projects that--due to many years of neglect with my illness--just seemed to grow and grow.  

So, I have been ill over the past few months.  Hard to explain--I still functioned but haven't felt great.  Wondered if I was depressed....you know, not happy, not miserable.   Kind of blah.

Looking back I had added quercetin and bromelain due  to my belief that I have developed Dupuytren's on my  right hand (small white lumps--easy to see on Google images).  I am convinced this is what it is since I have had symptoms of it for years and my doctor agreed.

French CAP beginner. Story and questions

Hi all.

School time is now far away so please  excuse my mistakes, mister Google will help me to write these few lines.

I am a 57 yrs  old man diagnosed with PPMSi 2 years ago.

My current base treatment consist of  interferon injections (every 2 days).

Last year, i read  the different theories from  dr Zamboni (jugular vein stenosis) ,  dr.Wheldon about the role of Cpni in MS and  dr Thibault presenting their synthesis. For me it all made ​​sense. For myself, the medical examinations have shown:

Successful results- Suggestion for new entry

This is maybe a message for the administrator of this webpage.

Wouldn't it be very useful to have an entry on the left side of this webpage

where people who has been on Dr Wheldon's or similar protocol and the protocol is indeed 

working could have a small summary stating e.g. diagnosis, protocol, length, benefits.

The thing is that there are loads of people starting the protocolsi, it seems they take a long time to work (it seems). I know that you still have a section with patient stories but they seem outdated. 

It takes long and i feel lost trying to find people for which the protocol has worked, so much informaton!

19th Tini Pulse

Considering how miserable I've been feeling lately with the allergy issue, starting the next pulse might not have seemed like a great idea. But instead of feeling worse, I've been feeling better. Not great, but better. I've noticed this before during other pulses, just never commented on it before.

Does Lymecycline have any effect on Cpn?

My daughter and I are looking into  Cpni and the antibiotic protocol for M.E and our doctor is willing to precribe doxycycline for her skin but has suggested she tries Lymecycline instead as she is going  abroad to a hot climate for 7 weeks. We are wondering whether to wait until she returns before starting the treatment with Doxycycline or to start on the Lymecycline now and change to Doxycycline when she returns to England. Any help would be greatly appreciated.

from my journal in January 2013 - first pulse week 12 to 15

This is from my journal in January.  It covers my first pulse. 

We live in a bushfire area and around 2 weeks after the pulse I had to evacuate with our animals while my husband stayed to defend the house.  Luckily the fire did not come too close and all was ok.  I was extremly stressed.  a week later there was another fire while I was home alone, which I could see, as it was accross the road on a hill about 2 klm away.  I was very stressed through this time as it brought back memories of Black Saturday in February 2009. we were ok then as well but it was the stress of not knowing what would happen for weeks after.  each time I went out I worried.  That is when my MSi really started to progress quickly.

Here I go.

G'day everyone,
today is my first day at starting the protocol, please correct me if I am wrong or missing any supplementsi.
NACi 600 mg.
Acetyl-Carnitine 500 mg.
CoQ10 60 mg.
Vitamin C 1000 mg.
Vitamin D3 1000iu.
Fish oil 1000 mg.
Multi-vitamin.

I take the above supplementsi once per day after launch.

started part-time work!

I'm into my eighth month of the Wheldon Protocol for rrmsi and am pleased to say that I've just started doing some part-time work from home. My health is improving slowly but surely and my brainpower is such that I feel able to tackle some brain taxing work - I'm a heritage architect.

I'm also doing my third flagyll pulse this week - I delayed the pulses to be kind to my body - and so far, so good.

Thankyou again Dr Wheldon (and others) for being so tenacious about researching and publicising this treatment! It is working....

Yeast

Still fighting yeast.  On antibioticsi 22 yrs for chronic sinus.  Also have nasal fungal. Treating with ampho b nasal wash.  Want to try caproyl, bentonite, and psyllium instead of diflucan again, (taken for years, dont think it works, also tried nizoral and sporanox) but can't find dosage or how to mix these.  Can't afford whole approach package.  I think they have to be mixed with water to form a gel that coats my colon.  I'm sure I have leaky gut.  Does anyone have the info on how much to take a day, dosage, if I can take all together. Also read somewhere that has to be in liquid form in order to coat colona does anyone know how to take this? Thx

Fatigue

Hi there,

I am on my second full day of doxyi and I am exhausted!  I just woke up from a nap and now I want another one.

 

My abdomin still feels swollen and it doesn't like it when I bend over.

 

My feet are burning - but that's not unusual as I am trying to get a lot of housework done today -- between naps.

Otherwise my spirits are good.  I am not weepy like I was when I started NACi.  I am very optomistic that I am on the road to health.

 

 

 

Starting Doxy

HI there,

I have been diagnosed with Lyme Disease, but also reacted badly to NACi so I presume I also have CPni.

After easing into the protocol with NAC I hve now added Doxycyclin.  This is my 2nd day and my kidneys feel swollen.  Is this normal?  It is very uncomfortable.  Has anyone experienced this?  Any suggestions on how to relieve this?

Thanks for you assistance.

Sign In

HI there,

I saw that someone else wrote in about this same issue.  I must be doing something wrong because everytime I try to post the system doesn't recognize me and I have to apply for a new password.  I duly write it down, but it doesn't work the next time I try to use it. . .

 

 

If doctor stops prescribing antibiotics ...

Hi All,

 

I am very concerned as there is a chance that my doctor will stop prescribing antibioticsi as he believes 6 months is the maximum.

 

I live in South Africa and pay for the drugs out of my own pocket.

 

If I can't get a doctor in South Africa, my options are:

  • ordering from an online pharmacy without prescription (which I have done before) - the problem is I cannot be certain if they are legitimate
  • I am a British citizen so if I move to the UK is there any doctor there that can prescribe the antibiotics if I pay myself i.e. not through the NHS

 

Ideas anyone?

 

Many thanks indeed.

Another old issue emerges...

Spring has brought back warm weather, beautiful flowers...and alas allergies.

This and that

This post may be a hodge podge of info to keep track of things I may otherwise forget:

It's almost two weeks since starting NACi at 2400mg/day. I can't determine if I'm reacting to the NAC, certainly nothing like others have experienced. My symptoms right now are very mild achiness and sinus involvement. I am not ready to say I'm reacting to the NAC, because it's spring and the change of weather often brings on these symptoms. The only real difference that I felt, which may be significant, is that my head felt like a grape that someone was gently rolling between his fingers. That sensation has since disappeared and I'm left with the occasional brain twinge.

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