It's been awhile since my last visit - could not find MD to do the WP or Stratton. But I have found one who would do the Marshall protocol. The MP  is similar in many ways including the Herx response and the antibioticsi (at much lower doses) but adds the use of the drug Olmestartan (Benicar) to reactivate the innate immunei system which is inactivated by VitD toxicity. This is cutting edge research using molecular genomomics and seems to be more accepted by authorities (ex. FDA-where he is a visiting professor). He is hitting the same road blocks as many who support the established (entrenched) antiquated status quo-despite their inability to make progress in these disease processes claim is postulates and results are bogus(many have link to big pharmacy and govt agencies).

Has anyone else been using this or knows of it? I highly recommend it. Zeolite is mean't to remove heavy metals from the body that the liver cannot handle. It is negatively charged and attracts the metals in this fashion as they are positively charged. You take it once a day. 1 teaspoon with 8 ounces of water or any other fluid should you require a taste to it. There is a liquid form also available should require it.

Against the advice of my friends here on this site, I embarked on pulse number three today just a few days before I leave on a two week vacation. I can't see any other way. If I skip it, I will be six weeks between pulses, and at this point in my treatment, I am not willing to interupt treatment that much. I am hoping and praying that this pulse will be like the last in that I will not suffer too much. The only problem last time was the terrible rash that I got after the pulse when I went and spent a day at the zoo. I won't expose myself to sun this time for sure. I am not fully recovered from the last rash. I still have some redness but the pain is gone. I went to the beach yesterday but spent the whole time in the shade of big trees while my family was in the sand. I didn't mind tho.

As I write this today I am not fully recovered but will try my best to convey what my latest experience involved. Am writing this with my right eye closed as a matter of fact. So anyway ... what I want to write about in my blog today is reflective of years of chronic illness that I merely pushed off as hormonal induced migraines that we women had to bear in life. Of course ... I think I know better now. Not that hormones cannot play a role in this illness but that I know the true instigator I believe.

I want to update my blog while I can. My vacation was great and I was able to keep covered up and enjoy the beach. I am leaving again this weekend - so counting pills and doing laundry. I am still taking 400 mgs doxyi + diflucan. I am keeping a journal as I am up and down but managing to get out. For Barbara: My spasticity is much improved and I am giving credit to the meds. I am on the stationary bike - keep in mind a very slow speed, can't get bike to light up also had to use hands to pull up legs to keep going. Just this week I was able to bike with no hands. I starting screaming to husband and daughter "look, no hands"!!!!! I also was pedaling hard enough to get lights flickering - I'll take it.

During my first flagyli pulse I craved bread with peanut butter every day sometimes eating it 2-3 times a day. When my pulse was done so was the desire for peanut butter. I thought maybe it was a coincidence but the first day of my second flagyl pulse I'm back into the peanut butter jar! Why on Earth would flagyl make me crave peanut butter? Anyone else get weird cravings during pulses?

Hi all, 

Started NACi 7/23. Began with 1 capi every other day and am currently up 1 per day. Initially caused sinus like headache and congestion. Plan on upping dosage and was wondering if it can be taken along with other supplementsi or should it be taken solo. Also- better taken with/without food... or does it matter? 

thanks

Well the combination of the heat and abxi induced inflammationi has really left me waddling. I just read far and wide , wiggy and minai and I wonder why some of us msi'ers have more mobility issues than others. Why are some improving why some not? I used to get breaks of feeling realitively looser and able to move pretty well but those improved times have stopped as i've continued with abxi. Hmm I take a lot of probiotics, and for the first time I have started to feel like I am starting to get a pre-yeast so I added nystatin. So i upped my magnesium and I can't say I am any loosy goosier though I deffinately go to the bathroom more.  So I reread sarah and katman and they seem to say that tightness does fade. Well when ?

Cpni does live in my oral cavity. It was confirmed by CPR of the granulation tissue from my jaw. Everything else was negative including candida, mycoplasma and staph. Thats just insane.

Although Im doing well right now, I feel discouraged because I wonder at what point does cpn have a hold on you where you cant escape it ever.

The msi clinic finally called me back and booked my MRI. I do know that just based on the way i feel now compared to before that the mri will show less activity, so Im curious to see whether dr stupid #2 will actually acknolege the abxi as the CAUSE of the improvement, Yes I said CAUSE- For any professionals reading this. I need to say it again "CAUSE" of the improvement. Just making that clear.

The title was suggested by a conversation between two of our most battle-hardened warriors, and I couldn't resist it. This has been one of the most eventful years of my life - busy, too. Beginning in January with surgery and moving through kidding season, then a very, very good show season, this last taking a temporary break after the best Nationals in years, then linear classification of our goats, now a break for the really bad August heat (this is AFTER the really bad July heat), then a resumption of show season next month, which wil begin my fifth year of MSi treatment.

I was reflecting on my morning and decided to put something down.  This is a typical  morning in terms of what can and often happens to me.  The CAPi I've been following for 25 months has impacted it somewhat, albeit in subtle ways. 

Most recently, I have thought that I _may_ have greater heat tolerance then last year (last summer) but it's hard to tell when the ambient temperature jumps so much, so fast.  If my imagining are correct, I've inched up to about 90 degrees F before the heat really starts to slow me down and impact my mobility.  Last year, it was 87 degrees F.  The year before, 81 degrees F.  I'm not sure about it though, just seem to be tolerating the heat a little better.

Those who "know" me know that I have Potbelly Syndrome issues and other issues that are equally pedestrian. The only difference between me and billions of other middle-aged women with pudgy midsections is that I discovered that my common maladies are linked to chronic Cpni and other chronic infectionsi, because I found this site while investigating meaningful treatment for my husband who has MSi.

I know that the reason for a blog is so when things are getting a bit better, you can look back to how bad things were.

Or, when things are going bad, you can look back to how worse things used to be.

This is my reason for this post.

Paula doesn't like me "airing my dirty laundry in public", but when she is better that's when she can tell me off for doing it.

The way I see it, this blog is for both of us.

I would like to introduce myself, as I have been reading on this site for awhile now, and am considering doing the CAPi.

I have been on the Marshall Protocol (MPi) for about two years, in a sort of half-baked fashion, in that I have been on Benicar only for about half that time, and only did the low dose abxi for 13 months (minoi + clindamycin, no Zithi).  I am VERY CONFUSED about the Vitamin Di issue, as anyone familiar with the MP will know that we are conditioned to think of D as BAD.  My Vitamin D3 level is <4, and has been for almost two years.  I am slowly attempting to bring Vit D back into my life, via slightly more sun exposure, however this tends to aggravate sxi for me, so it is very limited.

Hello :)

First want to give my thanks for this site and all of the intelligent and caring people that contribute...

I've been treating Lyme disease for 7 weeks via heavy IV abxi (Rocephini) and several oral ABXi with NO result whatsoever!

My Lyme dx was clinical although supported with an Igenex Lyme test that was VERY reactive to 'something' - for those familiar with the test I had 12 bands that were either positive or indeterminate (weak positive)!  BTW, I have tested negative for hepatitis, hiv, syphillis etc.  Apart from neuroi sxi's listed below, I consider myself completely healthy at age 39.