blogs

At last!

I haven't ever believed MSi is incurable, nor do I believe it's a stand-alone, simply definable disease, but what do I know? My neurologist had a, surprising, change of heart and , although British law says he could be struck-off if he prescribed so many ABXi, he intends to monitor my progress.

Pulse 40 (2nd with rifampicin)

In the early hours of last Monday (27th) I started tinidazole pulse 40. A couple of hours ago I took my last tini tab of this pulse ... and I'm still here. Hey, this has been two pulses in the same month! I have found this pulse less irksome than the last. I am weaker than ever but ever hopeful. The weather has been dreadful with torrential rain and blustery winds, so I haven't missed brisk power-walking along the Coastal Path (yeah, if only!).

Seeking Rheumatologist in New York Area - But Will Travel

Hello, I'm new to the site. I found you in comments on The Perfect Health Diet site (authors, Jaminet). I'm 52 and have been declining in health for the past 10 years. Once very fit and active, cycling and bootcamp almost daily, I started struggled with muscle pain, joint pain, and fatigue around 2007. I'm suspecting either Lyme or C. pneumonia infection. Symptoms initially seemed like classic Hypothyroid, though TSH was always in range, so my old doc would not treat me. 

Things that happened around 2007: I divorced, moved to a home with a garden that came with a lot of yard work, and bought a summer cottage in Long Island near the Ferry to Connecticut, where I also did a lot of yard work.

Long and hard - but it works.

In 2004, I believe it was, I began this incredible journey, adventure, trial, name it what you will.

I have recovered more of me than anyone ever suspected was possible.  After many years I stopped all abxi last January because after taking my daily doses, I was no longer having any reaction.  I still continue with NACi, 30,000 units of sublingual B-12, all the other supplementsi, lots of vegerables, good exercise - in other words, trying to live well.  I do have the essential goat milk ice cream milkshake every night when we come in from the barn.

Just checking in--it's been a long time.

Greetings to all my friends on CpnHelp,

Been a while since I posted a blog. Last year, at the end of the summer, I went on the Buhner herbs for Cpn. My right arm was feeling swollen and tight. This is the arm that was so painful when I was really ill. Spots that looked like skin cancer popped up on that arm and my chest.

After the first week of herbs, I had a huge headache all day. The next day, my mind felt sharper and clearer. After three weeks the right arm was back to feeling normal and the red spots totally disappeared! Amazing! My energy was better too.

Big mistake--I upped the dosages. That really affected my gut. I had to stop all the herbs.

clarification on CPN treatment

I'm about to start CAPi treatment and a bit nervous - I've never taken so much antibiotic, different pills, etc for so long!  Though I read so many pages and comments, I'm concerned I may mix up treatment and make it less effective.  Can someone please help to confirm I got it all right:

Pulse 39 (1st with rifampicin)

A couple of hours ago I popped my final tablet of this pulse. It is actually the first time that I have pulsed whilst taking rifampicin and amoxacillin. Was it any different? It was certainly more arduous fitting everything in. Rifampicin, amoxicillini and azithromycin without food ... then doxycycline and tinidazole with food. Then on top of that one has to take probiotics away from all of the antibioticsi. There are only so many hours in the day and so sometimes I have had to give the probiotics a miss (like tonight).

Antibiotics looking for a good home - all gone

I have some Rifampicin 500mg capsules and some Roxi 300mg tablets that I no longer require.  They are free to anyone who needs them in the UK.  Just send me a PM.  Irene 

Gone to a good home already

Vielight Neuro

I've been using this for 6 months or so.  It improves energy supply to damaged brain cells through the medium of light.  Here is our dear 'doctor Mercola' waxing lyrical about it.  Don't let that put you off because the clinical researchers have a video presentation showing their work.

http://articles.mercola.com/sites/articles/archive/2017/03/05/photobiomo...<

Irene 

Another infective agent implicated in neurodegenerative disease

Seeing a Neuroi never has a happy ending Frown and not seeing a Neuro always makes me better Tongue Out

And yet again..

This time during the day, yesterday.  Okay until about 2pm, then chills...fever around 100F.  Legs completely gone.  After trying to go pee twice, and having to call the care attendents to get me back in my chair...twice...I decided to get in bed around 5pm.  And, of course, I had to call for help to do that.

Fell asleep.  Slept until about 10pm.  Tried to get out of bed to pee...couldn't...but luckily, I have a bottle.  Went back to sleep.  Woke again around 3am...got up just fine.  Peed.  Went back to sleep until 6am.  I got up, got in my chair, and I've been "normal" all day.

Whatever these episodes are (psuedo-exaccerbation?), they only last about 12 hours, then I'm good to go for another couple months.

My Darling Husband!

No longer working as a medical doctor, but showing that he has been far from idle.  This year he has at least four short stories being published: two different editions of the British journal, Confingo, the first in April, the second in October, one story as a chapbook published by the Nightjar Press and one story available now from The Woven Tale Press, an American journal:

http://online.flipbuilder.com/eovs/vlpw/<

This can be seen online at page 59, but the whole magazine may be bought: containing stories, poems and art work, it is full of interesting things!

Started rifampicin

In the early hours of this morning, I popped my first capsule of rifampicin. As far as I am aware, I didn't wake up dead, so about an hour ago I put my 2nd capsule ... and it seems that I'm still not dead.  I am on half dose of 300 milligrams per day and shall double up two-fold within the coming week.  I must say that I did seem to feel it ... but then it could have been just my imagination.

Still going

Twelve and a half years is the time it has taken to get this far.  This has enabled me to see my identical twin grandsons grow into wonderrful young men - they both graduated from the University of Michigan with a straight 4.0 GPA and are now enrolled for their Masters degrees.  I would not have been here if not for this program.  That is one reason I am so delighted that I have had this chance.  

9th and 10th Pulse

9th pulse

After quite some time I had finally one more terifying fainting episode(I lost conciousness) and I was feeling like I was going to faint again for the next few days Frown. I also had a cold at this point, I guees it didn't make things easy.

10th pusle

All was fine. Also I feel some more improvements in all the weird symptoms in the heart area ("pressure","burning", "tearing", minor pains and anoyances) Right now that I'm writing these lines I feel almost normal, so far it has been two steps forward one step backwards, slowly improving.... I hope this will continue...

Syndicate content