Forums › Cpnhelp Discussion Forum › Generally Falling Apart (GFA): Cpn & nonspecific diseases

Birdie's Notes

Submitted by Birdie on Thu, 2011-11-03 12:34

I am still doing the NACi. For about 6 months I'd been taking it off and on with no trouble. However, Oct 8th I began to take 600mg every morning without food. I became miserable. Increased depression. Myalgia arms, back hitting strong... Arthralgia - Lt hip, Rt knee. Nausea at times. Stopped it Oct 25.

Oct 28th decided to try smaller dose. Took about 150-200 each morning. Still symptoms above but decreased frequency and intensity. Keeping at that dose for now.

At this rate it will take a long time to get to 1200mg/day which I think is the recommended dose before starting antibioticsi. I believe Paul Jaminet did the doxyi first. But I have some problems first... I don't have a doctor to prescribe them. I see one recommended and hour away but do not know if she does this protocol. She will consult with other docs so that's encouraging. 

The other thing holding me back is that we are leaving this area at the end of the month. So, do I get started before I go? Will I be high enough with the NAC to start any doxy...  I will probably not be settled in one place for a year or so. 

Anybody have some ideas to help? I want to go slow but if I don't start before we leave it will be put off for several months. I'm not progressing rapidly but I'm 67! I've had FMSi/CE for about 30 years. I have gotten myself out of bed. Was bedridden in 94...  Supplementsi, gentle exercise.... Got to go now.

I'm not sure what category to use for my post so GFAi sounds right.

 

 

 

‹ Looking for doc in DFW, Texas area Immune sytem defect may cause ME ›
Submitted by Birdie on Thu, 2011-11-03 12:36.

Now I see the typo. I know to put in this second post to show my ds info tho.

Fibromyalgiai, CE/CFSi, Post Polio Syn.

Submitted by Birdie on Thu, 2011-11-03 12:39.

I fixed the typo. Much to learn here.

Fibromyalgiai, CE/CFSi, Post Polio Syn.

Submitted by Birdie on Thu, 2011-11-03 18:46.

So, right now, I am taking the supplementsi and have been for years. Some amounts I am adjusting to the list. I've taken NACi for a year but not constantly. I would forget it. And then, I began to take it daily about a month ago and was careful to take it away from meals. That's when the trouble began. I got to a point where I was sure I was going mad. I felt hopeless. This was on a 600mg dose. So, I stopped 3 days. Then, started again, still away from meals, dividing up the capsule. About 150-200mg a day. Still having depression but think I am getting used to this dose. 

I will wait another week at least before upping the dose to 300..  

Unfortunately, I did not know about the tryptophan, 5-HTP problem. So I'd been taking 5-HTP for years and then switched to tryptophan which I took for 6 months. Now, I am getting it out of my diet amap. 

I bought the Great Lakes gelatin and am using that. 

 

Fibromyalgiai, CE/CFSi, Post Polio Syn.

Submitted by MSmom on Sat, 2011-11-05 11:21.

Birdie,

Why do you take NACi on an empty stomach?  Perhaps it might "work" a bit slower, but at least you could be ridding your system of millions of elementary bodies every day. If die off is the nausea problem, then that is a different story: "as fast as possible, but not any faster"! Have you ever tried NAC with food?  It is not "the end of the world" if you don't take NAC: Sarah didn't the whole first year she was on CAPi...AND she got "well." AND she now can take it with no bad reactions. Everyone is diferent. Erica (the reason my "name" is MSmom), cannot take NAC at all. The die off and the nausea are intolerable for herr. 

There is much varied experience here. Someone will blog to help you more than I can.

I wish you WELL!

MSmom

Submitted by Birdie on Sat, 2011-11-05 12:22.
Hi msmom, I am so glad to hear from you. I seem to recall that the supplement list advised strongly to take the naci at the 1200 dose for 2 wks before starting abxi. It is helpful to know others have done the protocol without nac. I had started it before I came to this site. I must have been taking it away from meals cuz there is a little sticky note telling me to do it that way. If I use it with food, it won't be absorbed as well so I might as well just take a tiny dose so I figured at least. I don't yet have a doc to Rx the abxi so thought to do the preliminaries with the nac now. I am doing okay with 150 about. So, I am going very slowly with it. I am procrastinating about the doc part. There is a lady about an hour away. I should look her practice up on the Internet. Okay, I've put that on the list. Thanks. It's the motivation that's missing so you helped there.. Birdie

Fibromyalgiai, CE/CFSi, Post Polio Syn.

Submitted by Birdie on Tue, 2011-11-08 16:41.
Last night I took my NACi at bedtime. Will see how this works. I've done that in the past and maybe that's why I didn't have the bad side effects.

Fibromyalgiai, CE/CFSi, Post Polio Syn.

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