MediTest
Submitted by Sarah on Sat, 2015-08-15 14:06

I started this treatment in August 2003, along with my husband, Dr David Wheldon: the same treatment but for different reasons: I had secondary progressive MS but his problems were mainly cardio but also arthritic.  As you can see from out Patient Stories, we both made vast improvements.  I finished the treatment in late 2007 and have since then not had a single attack of MS returning: in fact in the following years I have even had a few new improvements, the most recent being the complete disappearance of my Babinski’s reflex, where my feet, especially the right one, would shoot upwards if touched on the sole.  This made cutting my toenails an arduous process.  My walking is still not of the best though, as is my handwriting, although my drawing skills are back in full force.  Wondering what more I could do, I hit upon the following:There is a trial for high dose biotin underway for progressive MS.  This trial was in France but the paper is written in impeccable English:http://www.sciencedirect.com/science/article/pii/S2211034815000061Various dosages given were from 100mg to 600mg.  If you read it you will see that there are some more than encouraging results. Now, neither of us are looking for an actual cure for MS, since I have already found mine and David doesn’t have MS in any case.  Neither of us can claim to be 100% neurologically perfect so we are looking to see what improvements either of us might make by taking 100mg a day and will post accordingly.This is a worthwhile experiment because much can be seen on the internet about how good biotin is for hair loss, which sounds nugatory until you think of the fact that hair is ectoderm as is the embryonic brain.  This pdf is fascinating:http://www.columbia.edu/itc/hs/medical/humandev/2004/Chapt4-Ectoderm.pdf ………………..Sarah

Sphinx, why are you worried that it may damage your kidneys?  People are safely taking high-dose biotin up to 600mg a day: I am taking 100mg...................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hello Sarah 

Are you still using biotin in high doses and how is it benefiting you now?

Thanks 

DAILY:  NAC 2400MG , DHEA sublingual , vit D3 , multi vits,./ Three times  a week: B12 injections (Hydroxycobalamin). Deer antler./  Once every few months methyl B12 Methyl injections

Homina, yes most days I am taking 200 mg of biotin most days.  For a time I was taking 300 mg and maybe I should have carried on at that dose for longer, since this isn't an instant aid, but at that rate I could nearly watch my fingernails grow and I really dislike long nails................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.